Across Europe, the lived experience of adults with Spinal Muscular Atrophy (SMA) varies drastically. That’s why it’s important that we recognise disparities in care and champion positive change, as advocates for the SMA community. Join us for this episode as we explore perspectives from people living with SMA on best practices and critical changes needed for those living with this rare disease in Europe.
Listen with subtitles via YouTube. For a transcript of this episode: https://global.smamyway.com/resources.
Please note, this episode features the specific, personal stories of individuals with SMA. Their views and experiences do not necessarily represent those of the entire community.
This podcast series is sponsored by Roche. M-XX-00017821. Date of Preparation: June 2024
Hosted on Acast. See acast.com/privacy for more information.
Information
- Show
- FrequencyMonthly
- Published5 July 2024 at 13:24 UTC
- Length30 min
- Season1
- Episode3
- RatingClean