30 episodes

I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

A mom's journey with 22q11.2 Kristi Allen

    • Kids & Family
    • 5.0 • 2 Ratings

I have a 26 year old daughter with 22q.11. I've learned a lot on this journey. Some things might be helpful to some of you, but due to the nature of 22q.11, and how the syndrome manifests differently in each person, some things might not be. I'm simply hoping that people will become educated about this interesting genetic syndrome.

    Hygiene

    Hygiene

    People with intellectual disabilities are often unaware of their personal hygiene. Teaching hygiene when they’re young may be helpful.

    • 13 min
    Black Lives Matter and 22q11.2

    Black Lives Matter and 22q11.2

    Just some thoughts.

    • 20 min
    Conversations about world events with a 22q11.2 individual.

    Conversations about world events with a 22q11.2 individual.

    All the events happening in the world right now are really confusing for anyone, but imagine how confusing it is for an individual with intellectual disabilities. Our conversations matter. These issues can bring fear and anxiety. It's our jobs as caretakers to explain world events simply and very carefully. Our conversations with others need to be monitored because even though your child may not be the one you're talking to, they may be listening, and are trying to make sense of everything they are seeing on TV and hearing all around them.

    • 19 min
    Season 1 finale - The Cliffhanger! 😁

    Season 1 finale - The Cliffhanger! 😁

    It seems fitting to end this season now - when the world awaits the current coronavirus Cliffhanger. May God bless you in your journey, and know that I truly believe that God sends extra angels to protect families with special needs children.

    • 14 min
    Train of Thought

    Train of Thought

    The thinking process can be interesting, and sometimes genuinely doesn't seem to make any sense. You can respond in different ways. That's YOUR choice, and, trust me when I say that can I say that empathetically. Either you can get frustrated, or annoyed or you can find humor in it, OR if you're really feeling patient you can try to follow the train/trail of where the thought began and how it led to the verbal communication. Good luck!

    • 13 min
    Always Thinking For Two

    Always Thinking For Two

    Thinking for two can be EXHAUSTING! I personally believe that it means we're not only amazing, we're also freaking brilliant! Here's why!

    • 22 min

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