99 episodes

Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a lack of knowledge and understanding. Your story has the potential to touch and reach those who can relate and who otherwise feel alone. Together through our struggles, we can show our strength.

Because We Are Strong Kristine Hoestermann

    • Health & Fitness
    • 5.0 • 9 Ratings

Welcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a lack of knowledge and understanding. Your story has the potential to touch and reach those who can relate and who otherwise feel alone. Together through our struggles, we can show our strength.

    INTERVIEW: Mathew Horsnell & Narcolepsy

    INTERVIEW: Mathew Horsnell & Narcolepsy

    Today we are sitting down with Matthew Horsnell from TREND Community. TREND Community’s mission is to improve the quality of life for those living with rare and chronic diseases. They utilize technology to leverage social media to understand the disease burden. Let’s dive in!____________________________________________This episode was produced and edited by : Ruwan Basnayake___________________________________________ This episode was sponsored by:The CUBE and OOLER systems are two really...

    • 30 min
    INTERVIEW: Tori and Congenital Heart Defect

    INTERVIEW: Tori and Congenital Heart Defect

    Meet Tori:Tori is a congenital heart defect survivor and has undergone multiple open-heart surgeries and procedures throughout her life, including a life-changing visit to the ER where she narrowly escaped cardiac arrest and was defibrillated 3 times. Sharing her story of resilience and lessons for living victoriously, Tori is a bestselling author of the book, From Vulnerable to Victorious: Turning Your Chronic Illness Into Your Victory Story. Growing up, she was an avid athlete, partici...

    • 20 min
    INTERVIEW: Kenzi Paquin & Cervical Cancer

    INTERVIEW: Kenzi Paquin & Cervical Cancer

    Your listening experience is extremely important to us with that being said please forgive Kristine's audio track. We apologize and will continue to work to improve your overall experience. Thank you for helping us bridge the gap between rare diseases and the rest of the world._____________________________________________Meet Kenzi: I had a positive pap in 2016, got a biopsy and found out it was stage 1 cancer. I was told I had HPV 16 and that’s what had caused my cancer. I Had a colposc...

    • 52 min
    INTERVIEW: Lindsay

    INTERVIEW: Lindsay

    • 26 min
    INTERVIEW: Marie & R.A.R.E Advocates

    INTERVIEW: Marie & R.A.R.E Advocates

    Meet Marie: Marie Dagenaia-Lewis is a very pridefully disabled art activist, speaker, author and creator of the Chronically Spooky series, a coloring book inspired by Disability & Chronic Illness. On top of running her own business, she is the Content Manager at Diversability and the Social Media Manager at Omnium Circus. She spent almost a decade in the broadcast industry as a primetime television director until she was a victim of ableism. Now, she uses her art and storytelling to disma...

    • 1 hr 6 min
    INTERVIEW: Amber

    INTERVIEW: Amber

    • 41 min

Customer Reviews

5.0 out of 5
9 Ratings

9 Ratings

Chad11988 ,

Rare ❤️♿️🔥

As a man that has chatted with Rare founders. I found myself in a happy place. See we aren’t able bodied, disabled, white, black, Christian, Muslim. We are a human being. All of us. That’s what the founders and total strangers have showed me. I couldn’t be more thrilled for this great group of people.

Brooke Norton ,

A must listen!

This podcast is a MUST for anyone! The hosts give space for people on rare medical journeys to share their stories. It doesn’t matter who you are, these stories need to be heard. Awareness is the first step towards real change in our world!

Jazziedanielle ,

Love!!!

Love these ladies and RARE. Always so positive and real! Genuine conversations ♥️

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