68 episodes

Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic.
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eCysticFibrosis Review eCysticFibrosis Review

    • Health & Fitness
    • 4.0 • 3 Ratings

Expert insight and analysis providing information directly relevant to cystic fibrosis care, through topic-focused newsletters summarizing the peer-reviewed literature and accompanying podcasts to illustrate how to apply that information in the clinic.
See acast.com/privacy for privacy and opt-out information.

    The Pancreas, Malnutrition, and CFTR Modulators

    The Pancreas, Malnutrition, and CFTR Modulators

    Pancreatic insufficiency. In children with CF, it’s been associated with delayed development and increased odds of developing severe lung disease. How can it be more accurately diagnosed? And what does the evidence say about the effects of treatment with CFTR modulators?
    That’s what we explore in this case-based podcast, with Dr. Vikesh Singh, Associate Professor of Medicine and Director of the Pancreatitis Center at Johns Hopkins Medical Institutions.  
    Take our post-test to claim CME credits.
    Read this podcast's companion newsletter here.


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    • 14 min
    CF and COVID-19: The Data and the Real World

    CF and COVID-19: The Data and the Real World

    Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF care teams’ ability to effectively maintain their patients’ health? What information out there is proved, what’s speculation, and what is simply unknown? 
    These questions are the focus of this eCysticFibrosis Review Special COVID Edition issue. Lisa Saiman MD, MPH, professor of pediatrics at Columbia University Irving Medical Center, analyzes the current literature investigating these questions and then speaks directly with front-line clinicians about what they’re experiencing as they navigate a disrupted health care system. 
    In addition to presenting her analysis of the data-driven evidence describing the effects of the COVID-19 virus on people with cystic fibrosis, Dr. Saiman also spoke directly with front-line CF clinicians to learn about what they’ve been experiencing as they work to maintain effective patient care. Transcripts of these interviews can be accessed throughout the newsletter.
    Take our post-test to claim CME credits.

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    • 34 min
    Managing Psychosocial and Economic Stress

    Managing Psychosocial and Economic Stress

    Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF care teams’ ability to effectively maintain their patients’ health? What information out there is proved, what’s speculation, and what is simply unknown? 
     
    These questions are the focus of this eCysticFibrosis Review Special COVID Edition issue.

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    • 6 min
    Overcoming Shutdown Challenges

    Overcoming Shutdown Challenges

    Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF care teams’ ability to effectively maintain their patients’ health? What information out there is proved, what’s speculation, and what is simply unknown? 
     
    These questions are the focus of this eCysticFibrosis Review Special COVID Edition issue.

    See acast.com/privacy for privacy and opt-out information.

    • 8 min
    Maintaining CF Infection Prevention and Control

    Maintaining CF Infection Prevention and Control

    Do cystic fibrosis lung impairment and the COVID-19 virus create the disastrous combination they would seem to make? What do the currently published data say about the clinical effects of the pandemic on people living with CF? How have the safety-mandated lockdowns and clinic closures affected CF care teams’ ability to effectively maintain their patients’ health? What information out there is proved, what’s speculation, and what is simply unknown? 
     
    These questions are the focus of this eCysticFibrosis Review Special COVID Edition issue.

    See acast.com/privacy for privacy and opt-out information.

    • 5 min
    Clinical Considerations for Women with CF

    Clinical Considerations for Women with CF

    Studies have shown that adolescent and young adult women with cystic fibrosis often turn to their CF care team for answers to their questions about their sexual and reproductive health. But how prepared are CF clinicians to initiate conversations? Do they have the most current data about pregnancy decisions for women taking CFTR modulators? When should modulator therapy be stopped? When is it safe to continue?
    In this eCysticFibrosis Review podcast, Dr. Traci Kazmerski from UPMC Children's Hospital of Pittsburgh and Dr. Natalie West from Johns Hopkins University take us into the clinic to address these important questions.
    To read a companion newsletter click here.

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    • 17 min

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