17 episodes

We seek to raise awareness and education of Lupus globally by speaking with medical professionals, physicians, researchers and patients to better understand the lupus journey, diagnosis and treatments.

For more information about Lupus and Lupus Ontario, please visit Lupus Ontario at www.lupusontario.org, or follow us on Instagram, Twitter, Facebook or YouTube.

We'd love to hear from you! If you have topic suggestions for the podcast, reach out to us at media@lupusontario.org.

Lupus Ontario Podcast Lupus Ontario

    • Health & Fitness

We seek to raise awareness and education of Lupus globally by speaking with medical professionals, physicians, researchers and patients to better understand the lupus journey, diagnosis and treatments.

For more information about Lupus and Lupus Ontario, please visit Lupus Ontario at www.lupusontario.org, or follow us on Instagram, Twitter, Facebook or YouTube.

We'd love to hear from you! If you have topic suggestions for the podcast, reach out to us at media@lupusontario.org.

    Social Prescribing - Benefits For Your Health Journey and The Health System

    Social Prescribing - Benefits For Your Health Journey and The Health System

    Hello everyone, coming up on the Lupus Ontario podcast, we
    talk about Social Prescribing! What it is, all the aspects of support for an individual that it entails, how social prescribing is delivered and go through examples of how social prescribing can benefit you in your health journey.


    We also speak about how Social Prescribing can benefit the entire health system including hospitals and primary care.

      

    We also mention the Alliance for Healthier Communities. If
    you would like to find out more about the Alliance or Social prescribing, you can visit https://www.allianceon.org/ or simply search for Alliance For Healthier Communities online.



    Hopefully as you listen to this episode you gain some
    practical takeaways on how you can use the principles of social prescribing in your everyday life, as well as ways to get involved in your community to help encourage others to make connections and support them in their health journey.



    Question? media@lupusontario.org

    www.lupusontario.org


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    • 32 min
    Transitioning From Pediatric Care to Adult Care in Lupus - Dr. Stephanie Wong

    Transitioning From Pediatric Care to Adult Care in Lupus - Dr. Stephanie Wong

    Our conversation today is on the Transition of Care - from Pediatrics to Adult Care. We are pleased to be joined by Dr. Stephanie Wong and Nameerah Hasan for today’s conversation.

    Dr. Wong is the 2022-2023 Lupus Ontario Geoff Carr Fellow. Having completed her MD at the University of BC, Dr. Wong is expanding her clinical experience at SickKids Hospital in Toronto and also attending the transition clinics at Mount Sinai and Toronto Western. 

    Nameerah Hasan is a lupus warrior. Contracting double pneumonia and experiencing a month-long hospital stay at the age of 12, Nameerah began exhibiting other hallmarks of lupus such as fevers, muscle and joint aches, migraines and blood clots. She was treated by the incredible team at SickKids Hospital and eventually diagnosed with SLE and Antiphospholipid Syndrome.

    Enjoy the conversation!






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    • 34 min
    Organ Damage in Lupus - Dr. Zahi Touma, UHN Toronto

    Organ Damage in Lupus - Dr. Zahi Touma, UHN Toronto

    In this episode we speak with Dr. Zahi Touma, Director of the Lupus Program at UHN in Toronto, Ontario about organ damage caused by lupus, but also damaged potentially caused by treatments for the disease.



    Please send us your lupus questions: media@lupusontario.org



    Note: this podcast is not intended to convey health information specific to a person's health journey and is intended for educational purposes only. For concerns about your specific health journey, always contact your physicians and/or medical team.


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    • 40 min
    Lupus and The Sjögren’s Society of Canada

    Lupus and The Sjögren’s Society of Canada

    Today on the podcast we have a very special guest – Mary McNeil joins us to speak about Sjogren’s disease (www.sjogrenscanada.org).

    Sjögren’s is a chronic, systemic, inflammatory autoimmune disease that usually attacks and damages salivary, tear and mucous secreting glands. This results in dry mouth which can impact the ability to communicate verbally, dry eyes, or even internal organ damage, arthritis, painful weak muscles, neuropathy, and debilitating fatigue.

    Lupus patients often have associated illnesses, Sjogren’s is among the most common experienced by those with systemic lupus with some estimates indicating up to 19% of those with SLE also develop Sjogren’s disease.

    Like lupus, Sjogren’s is difficult to diagnose and 90% of those diagnosed are women.

    Mary McNeil is the Vice Preside of the Sjogren’s Society of Canada and also lives with Sjogren’s disease.



    Be sure to checkout the 2022 Walk For Lupus event page: 

    https://www.lupusontario.org/walk/



    Register for our virtual symposium and tune in from anywhere in the world!

    https://pheedloop.com/register/EVEDNDOVRDCBM/attendee/?


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    • 30 min
    Life With Lupus - Rupee's Story

    Life With Lupus - Rupee's Story

    For today’s podcast we have a special guest with us sharing her lupus story. Rupee discusses her diagnosis at a young age with lupus, the complications that arose and the importance of having a support network. We talk about how she satisfied her natural curiosity to learn about lupus and how her journey helped shape where she is at today.

    Visit our website (www.lupusontario.org) or our social media to register on May 19th, 2022 for the virtual Lupus Symposium taking place on October 22nd, 2022. The symposium will bring together leaders in medicine, research, health-tech and even policy to further support the community we care so deeply about.

    Register for the 2022 Symposium!

    https://pheedloop.com/EVEDNDOVRDCBM/site/home/

    Let us know what you want to see in a Lupus Symposium! Email is at media@lupusontario.org.




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    • 29 min
    Lupus and Naturopathic Medicine With Dr. Sasha Coleman, ND

    Lupus and Naturopathic Medicine With Dr. Sasha Coleman, ND

    Have you ever considered naturopathic medicine to help you through your health journey? Have you wondered what a visit to a naturopath might look like or what a naturopathic practitioner can do for lupus or other chronic illnesses? If so, then you'll love this episode!



    Today we speak with Dr. Sasha Coleman, ND about naturopathic medicine. We discuss specifically how a lupus patient may benefit from a naturopathic approach, but also of other chronic illness as well. We talk about the tools and approach naturopathic medicine can take in assessing, treating and helping to prevent illness, as well as what that first meeting with a naturopathic doctor is like.



    Please stay tuned to the Lupus Ontario Podcast and Lupus Ontario Social Media as we move closer to the month of May. As many of you know, the month of May is Lupus Awareness month and specifically May 10th has been declared Lupus Awareness Day in Ontario. We will have special announcements throughout the month of May. Please stay tuned for some exciting events to come!


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    • 32 min

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