40 episodes

Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.

Hope With Answers: Living With Lung Cancer Lung Cancer Foundation of America

    • Health & Fitness
    • 5.0 • 15 Ratings

Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.

    What is my biomarker? THE question to ask

    What is my biomarker? THE question to ask

    What is my biomarker?
    A newly diagnosed lung cancer patient should ask this question before starting treatment. Why? Because the answer to this question can change the odds and the choices for your personalized treatment plan, especially for Black or African American patients.

    Black and African Americans must ask their doctors, “What is my biomarker?” to ensure they receive the latest targeted therapy treatment that is applicable. Hear from Dr. Sydney Barned and Brandi Bryant in this episode as they discuss their care and what a difference it made in knowing their biomarkers. And maybe even more importantly, they are advocating that every black or African American should ask that question, “What is my biomarker?” 

    There are more options for treating lung cancer and they want to make sure every black or African American patient, like everybody, else gains access to that full range of options.

    Why do Biomarkers matter in lung cancer treatment?
    Minority and underserved communities must advocate for themselves to get the best treatments, especially treatment that can increase the quality of their lives. Guest Dr. Osarogiagbon dives into not only the importance of asking, “what is my biomarker?”, but why it is essential that Black and African Americans make this question a priority. Thanks to lung cancer research, he’s really excited that lots of biomarkers have been discovered to help doctors split what used to be a single disease, into a disease of many different bits and of different sizes. 

    Understanding biomarkers now allows doctors to predict how the cancer is going to behave. And then determine what treatment is most likely to benefit the patient, in terms of surviving lung cancer - and the quality of life, in response to cancer treatment. 

    “So, you go from 4% to 6% five-year survival, to up to 60%, if you get the right treatment for right cancer. As with ALK mutated lung cancer, so with some of the other subsets, the EGFR mutated lung cancers, the ROS1 mutated lung cancers, the BRAFF mutated lung cancers, the MET exon 14 mutated lung cancer, all... There are at least nine subsets of biomarker-driven lung cancers, and that continues to change all the time. So, that's why it's vital that we get tested, so we know which treatment would benefit us.”

    - Dr. Raymond Osarogiagbon

    Guests:

    Dr. Sydney Barned, a hospitalist at Ann Arundel Medical Center in Annapolis, Maryland, a lung cancer patient, and a member of the LCFA Speakers Bureau

    Brandi Bryant, a lung cancer patient, and a member of the LCFA Speakers Bureau

    Dr. Raymond Osarogiagbon, Chief Scientist for Baptist Memorial Health Care, Director of Baptist Cancer Center’s Multidisciplinary Thoracic Oncology Program and Thoracic Oncology Research Group, and Principal Investigator of Baptist’s Mid-South Minority-Underserved Consortium initiative, NCORP, in Memphis, Tennessee

    Show Notes | Transcript | Watch the video

    Resources:

    What Do I Need to Know About Biomarker Testing?

    National Comprehensive Cancer Network (NCCN) Guidelines for Non-Small Cell Lung Cancer

    What is a Liquid Biopsy for Lung Cancer?

    7 Signs of Lung Cancer You Should Know

    • 35 min
    How a nurse navigator helps map lung cancer care

    How a nurse navigator helps map lung cancer care

    There is so much hope in lung cancer today. But lung cancer is also inherently very complicated. And the process of getting to a treatment plan takes a lot of expertise, different members of a medical team, and lots of tests. And one way to make this process easier on patients and more efficient for doctors who are making those treatment plans is to use an expert called a patient or nurse navigator.

    Guests

    Charity Holien, RN, a patient navigator with the University of Colorado Cancer Center
    Ross Camidge, MD, PhD, Director of the Thoracic Oncology Clinical and Clinical Research Programs at University of Colorado Cancer Center

    Video Podcast on YouTube | Transcription

    Resources

    A Lung Cancer Diagnosis: What’s Next

    The First 7 Days podcast series

    What Do I Need to Know About Biomarker Testing?

     

    LCFA is a nonprofit dedicated to improving the survivorship of lung cancer patients by funding lung cancer research. Visit lcfamerica.org.

    • 22 min
    Comprender los biomarcadores del cáncer de pulmón

    Comprender los biomarcadores del cáncer de pulmón

    Un diagnóstico de cáncer de pulmón llegó de repente para Emma Pompeo. Pero afortunadamente, ella tenía dos cosas a su favor: apoyo de su familia cuando aprendió de su diagnóstico y encontró a un doctor en un centro de cáncer comprensivo que podía contestar sus preguntas en español para que ella y su familia pudieran entender toda la nueva información. Su doctor le explicó bien sobre los biomarcadores de cáncer de pulmón, organizó los exámenes requeridos, y dio buenas recomendaciones de otros doctores quienes ayudaron a formar su equipo de salud. Estos diálogos eran increíblemente importantes mientras ella aprendía el nuevo vocabulario que es parte del diagnóstico de cáncer de pulmón y del tratamiento apropiado.

    • 31 min
    What every EGFR patient needs to know

    What every EGFR patient needs to know

    For years, researchers knew different factors were causing lung cancer tumors to grow, but they didn't know why, or how to interrupt the process. Then, a group of lung cancer researchers discovered the EGFR biomarker, which opened the door for targeted therapies that were easier to take, more effective, and led to better patient outcomes than anything used before. Take this opportunity to hear from someone who had a part in discovering the first lung cancer biomarker. Learn more about the EGFR biomarker from Dr. Carbone – important information that every EGFR patient needs to know.

    Guest

    Dr. David Carbone is a lung cancer clinician, researcher and specialist at The Ohio State University Comprehensive Cancer Center. He’s been working on developing treatments for lung cancer for years, and played an important role in discovering the first targeted therapy aimed at the EGFR biomarker.

    Transcript | Video Podcast

    • 40 min
    EGFR Biomarker Community: Hope Living With Lung Cancer

    EGFR Biomarker Community: Hope Living With Lung Cancer

    A lung cancer diagnosis can be very overwhelming. How do you make a connection and create a sense of community with people who truly understand what you’re going through?  Hear from two people living with EGFR lung cancer who are creating connections among others with the same biomarker. Learn how sharing experiences, information, and understanding, is creating hope with answers for those in the EGFR biomarker community - while advocating for more lung cancer research.

    Guests:
    Jill Feldman, lung cancer patient/advocate, follow her on Twitter @jillfeldman4

    Ivy Elkins, lung cancer patient/advocate, follow her on Twitter @Ivybelkins

    Podcast Transcript
    Meet patient advocates Jill Feldman and Ivy Elkins. They are working hard to level the playing field for people living with EGFR lung cancer by:

    making sure that everyone has access to the best treatments and information
    building a network of support for people living with the same type of lung cancer they have.

    Resources:
    What do I need to know about biomarker testing?
    Targeted therapies for lung cancer treatment
    EGFR Resisters, a patient-driven community dedicated to improving the outcomes for those with EGFR positive lung cancer.

    • 30 min
    Investment in grants change the future for lung cancer patients

    Investment in grants change the future for lung cancer patients

    Lung cancer is a disease that affects people: family, friends, co-workers, neighbors. It's a disease that comes with in some stark figures about survival and research funding. But the numbers don't lie, and they also show the amazing strides being made against the disease: increasing survival rates, incredible strides in treatment options, and ever-growing ranks of researchers dedicating their professional careers to improving the odds for people living with lung cancer. Join us for this episode of Hope With Answers: Living With Lung Cancer, where we talk about hope, by the numbers.

    Guests:

    Kim Norris, Lung Cancer Foundation of America co-founder and president

    Dr. Jessica Donington, professor of surgery at the University of Chicago Pritzker School of Medicine

    Dr. Triparna Sen, an assistant attending at Memorial Sloan Kettering Cancer Center

    Kellie Smith, PhD, assistant professor of oncology at Johns Hopkins Medicine

     

    Show Notes | Transcript

    BY THE NUMBERS: 20  The quickening pace of research the last 20 years
    Twenty years ago, the lung cancer treatments available were surgery, chemotherapy, and radiation. Then came the discovery of treatable lung cancer biomarkers. The discovery that each lung cancer tumor is unique opened up a whole new world of discovery. After that, immunotherapy opened up even more ways to treat different types of lung cancer. And for many people, living with lung cancer it has become more like managing a chronic disease rather than the usually fatal diagnosis it was just a handful of years ago.

    “... the entire landscape has changed for people diagnosed with lung cancer. I even wonder if my husband, who died 20 years ago, would still be alive if he had been able to take advantage of all the research that’s been happening in just the past five or ten years. We now know people living 8, 13, 15, and 19 years after diagnosis. And then we realized that these numbers are really powerful-- they’re not just black and white numbers, they’re people.“ - Kim Norris
    BY THE NUMBERS: Double Duty
    LCFA Young Investigator Research Grants do double duty in the field of lung cancer research. Funding from foundations like the Lung Cancer Foundation of America is essential in building a pool of investigators. It takes a long time and a lot of money to go from a great idea and a bright star with a great mind to an NIH-funded investigator. But as Dr. Triparna Sen points out, these grants also help to train young investigators.

    “Like with this funding, we get postdocs and trainees and technicians into the lab. So we are essentially training the next generation of cancer investigators who will go on to become in independent investigators themselves. So you're not only just providing resource to advanced research, but you're also providing resource to train the next generation of cancer investigators. And I think that has a much more long term impact the next clinical trial. So I think overall, uh, the funding that I got from LCFA has been absolutely critical in developing me as a researcher. So thank you so much.”
    BY THE NUMBERS: 17
    LCFA has invested in 17 grants so far, and 10 of them have gone to women.
    Women in science face many challenges. When Dr. Donington got into lung cancer 15 years ago, it was a very male-dominated field in terms of the doctors who treated it and the researchers who performed the research. And I always believe that a group of physicians and researchers that matches their patients provides the best care.

    The Power Of The Patient Advocate Voice
    Women advocates are making a difference in lung cancer research as well. As Dr. Donington discusses, “Lung cancer for a long time has had a stigma issue as being seen as a male disease, with people who have smoked for 100 years. And it's just not, it's not that disease. And I think that our advocates which are very heavily female like a lot of cancer advocates are, have really done so much to change the face of lung cancer…. I think

    • 24 min

Customer Reviews

5.0 out of 5
15 Ratings

15 Ratings

Gddhdhhebx ,

Best lung cancer podcast!

Fantastic podcast! Everyone diagnosed with lung cancer should listen to this!

linno11 ,

Hope with answers

Excellent resource for those with lung cancer—whether recently diagnosed or a long term survivor.

COpodcastor ,

A must listen podcast!

This podcast is the perfect combination of patient advocates working with doctors to explain what it’s like to truly live with lung cancer. I highly recommend for patients who were recently diagnosed or who’ve been searching for new platforms for their advocacy.

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