32 episodes

Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.

Hope With Answers: Living With Lung Cancer Lung Cancer Foundation of America

    • Health & Fitness
    • 5.0 • 13 Ratings

Find out what you need to know for your personal lung cancer journey through stories and interviews with patients, lung cancer specialists, and key participants in the quest for a cure.

    Understanding Gut Microbiome in Lung Cancer Treatment

    Understanding Gut Microbiome in Lung Cancer Treatment

    What if your lung cancer doctor could get a huge amount of information about your health, how you might respond to different treatments, and possibly even be able to tell you the best diet for your specific needs, all based on a simple test that involves no needles, no surgery, no special preparation, just a small sample… of your stool. That’s the potential of studying the gut microbiome. Find out why some of LCFA’s Young Investigators are so excited about including the gut microbiome in the fight against lung cancer.


    Guests


    Dr. Jarushka Naidoo
    Dr. Daniel Spakowicz
    Dr. Zoltan Loinai


    Dr. David Carbone, The Ohio State University


    Show Notes | Transcription


    Getting over the ick factor: Talking about poop
    Our bodies are teeming with microorganisms. Only 10% of the 100 trillion cells in us are human – the rest are microbes. Most of these microorganisms are found in the gastrointestinal tract with the highest concentrations found in our large intestine or gut.


    “So the microbiome is the collection of organisms that live on you and in you. So you have about 10 trillion human cells on your body and roughly the same number of microbes, either bacteria, viruses, fungi, and other things. They live all over, but mostly in your gut in terms of concentration. And they’ve got something like a hundredfold more genes than you do for being able to degrade different carbohydrates, make different molecules. And we’re just starting to understand how they affect many different things, including cancer.” says Dr. Daniel Spakowicz.


    The immune effect of the microbiome on lung cancer may be due to specific compositions of both lung and gut microbiomes. Three of LCFA’s Young Investigator grant recipients are continuing this study of gut microbiome and lung cancer, Dr. Jarushka Naidoo, Dr. Daniel Spakowicz, and Dr. Zoltan Lohinai.


    Gut microbiome and immunotherapy
    The composition of bacteria in the gut may also have a strong influence on how well advanced lung cancer patients respond to immunotherapy. Finding a positive correlation will allow doctors to use the gut microbiome as a biomarker to predict how well future patients may respond to treatment. It also raises the possibility of modifying the patient’s gut bacteria before therapy with the expectation of improved effectiveness of immunotherapy.



    “We know that certain cells that line the gut are very important for modifying or changing our immune response. And now that we have new treatments that harness our immune response to fight cancers such as lung cancer treatments called immunotherapy, it becomes very important to understand why some immune responses are the way they are in certain patients. And can we make those immune responses stronger for some patients or change the immune responses so that perhaps patients who develop the side effects of these immune related treatments don’t happen as severely or as often.” – Dr. Jarushka Naidoo

    The 3rd Revolution: Gut microbiomes in lung cancer treatment
    According to Dr. Jarushka Naidoo there have been two revolutions in lung cancer: the genomic revolution and the immunotherapy revolution.


    The genomic revolution happened about 10 to 15 years ago with the discovery of several genomic biomarkers. This discovery then led to several targeted therapies and understanding that lung cancer is not all created equal. And that some patients may have cancers that do well with special targeted pill therapies that may shrink those cancers.


    And then from there came the immunotherapy revolution, where the understanding came that maybe different lung cancers might respond to immunotherapy – using the body’s immune system to fight cancer.



    “I think, and I hope, that our projects are the start of the microbial revolution. That we will understand that our microbiome is somehow intrinsically related to perhaps how lung cancer develops, why lung cancer grows, and how long cancer is treated. And we may be able to

    • 25 min
    Men living with lung cancer: Finding Their Voice While They Tackle the Taboo

    Men living with lung cancer: Finding Their Voice While They Tackle the Taboo

    It's no secret that lung cancer affects a patient's entire community: family, friends, co-workers and more. Learning to live with lung cancer is its own challenge, especially for men. Hear from three guys who found their own patient voice, and help others find theirs, as they tackle living with lung cancer in unique and powerful ways.


    Guests:


    AJ Patel, James Hiter, and Frank McKenna


    Show Notes | Transcription


    Accepting the Challenges As Men Living with Lung Cancer
    AJ Patel, James Hiter, and Frank McKenna have been living with lung cancer for a number of years. Thanks to research and new treatments, they have the experience and commitment to help others facing the same shocking diagnosis. However, they each have unique journeys and different approaches mentally.


    AJ Patel went from being the guy who doesn’t like to ask for directions when he’s lost to recognizing his own vulnerability. He has learned to bring the very best version of himself into the moment that he’s living - even when he’s not feeling that great. 


    For James dealing with a lung cancer diagnosis, he was grateful for the support he got that allowed him to make that shift from , "Why me?” to “Why not me?" His advice from a mental standpoint is “the sooner you can get there, the sooner you can start to feel in control through a time when there's very little, that you feel so out of control.”


    Frank McKenna was never sure what his purpose in life was prior to lung cancer and he knows now. He has an appreciation that “I am still alive, still kicking” and feels he needs to give back, shine a light, and use it as a platform to educate people. 


    A Deeper Relationship with their Partners
    Frank McKenna acknowledges that he and his wife always had a good, strong relationship and it strengthened even more since his lung cancer diagnosis. During the early days of diagnosis and treatment, his wife took charge and said, "We're going to fight this and you're not going anywhere." Frank feels like their relationship now is better than it's ever been. 


    James expressed that the greatest gift we can give to our spouse is to try and be the best patient we can be - even though it's hard for men to ask for help. And despite it being trying at times when his wife turned his stomach with food suggestions after every single chemo session, he appreciated that she was trying to have the right foods in the house to make sure that there was something that he might like to eat.


    AJ recognized that living with lung cancer has helped to nurture a much deeper relationship and an appreciation of really what a partner brings when they say, "I do."



    “You realize just how fragile life is, but at the same moment just how beautiful it is, because you can see the love from a person.”



    Branching Out into Advocacy
    Knowing the fact that lung cancer kills more people than breast, colon and prostate cancer combined, each of these men have become advocates for lung cancer in their own ways. James Hiter is working to change this statistic by advocating for parity when it comes to research funding. James created a non profit, Streak For a Cure,  designed to raise awareness to the fact one only needs lungs to get lung cancer, as well as to raise money for research.


    AJ chose to get involved with the patient advocacy side. He sees this work as simply paying it forward. “The only reason I am here today is because a phone buddy was matched with me eight years ago.” That buddy provided AJ with a tremendous amount of hope by showing that he was living with lung cancer. James also volunteers as a phone buddy - talking to people who are newly diagnosed. 


    Frank McKenna is now a Cancer Exercise Specialist who helps people living with lung cancer learn how to continue making exercise a part of their lives. He is so thrilled to be feeling so well and, through speaking engagements, volunteering and sharing his story, his life has new meaning.  “We're willing to

    • 16 min
    Los Primeros Siete Días - ¿Hablas cáncer? Aprender un nuevo vocabulario sobre el cáncer de pulmón

    Los Primeros Siete Días - ¿Hablas cáncer? Aprender un nuevo vocabulario sobre el cáncer de pulmón

    Un diagnóstico de cáncer de pulmón casi requiere aprender un nuevo idioma. En este episodio, usted empezará a escuchar términos como biomarcadores, inmunoterapia y oncólogo torácico. Primero escuche al médico Dr. Christian Rolfo que es experto en el cáncer del pulmón, sobre cómo un paciente puede empezar a desarrollar conceptos y vocabulario muy diferente.


    Después, escucharás el testimonio de personas que han estado exactamente dónde usted está ahora y como aprender “hablar cáncer.”


     


    Guests


    Dr. Christian Rolfo - Dr. Christian Rolfo es Oncólogo Torácico y experto en oncología molecular, biopsias líquidas y desarrollo de nuevos fármacos en el ámbito de cáncer de pulmón y mesotelioma en el centro de Oncología Torácica de Mount Sinai.


    Yovana Portillo, Sobreviviente de Cancer de Pulmon, LCFA Mesa de Oradores


    Juanita Segura, Sobreviviente de Cancer de Pulmon, LCFA Mesa de Oradores


     


    Recursos


    Los primeros 7 pasos que debe seguir después de un diagnóstico de cáncer de pulmón


     


    Notas del Programa | Transcripción


     


    La misión de LCFA es mejorar la supervivencia de los pacientes con cáncer de pulmón mediante la financiación de la ciencia transformadora. Mientras recauda fondos para apoyar la investigación del cáncer de pulmón, LCFA aumentará la conciencia del público y servirá como un recurso para los pacientes o cualquier persona que busque respuestas, esperanza y acceso a información actualizada sobre tratamientos, investigaciones científicas y ensayos clínicos.  


    Usted también puede unirse a la conversación con LCFA en Facebook, Twitter, e Instagram. 


     

    • 44 min
    Los Primeros Siete Días - Cómo obtener el diagnóstico correcto

    Los Primeros Siete Días - Cómo obtener el diagnóstico correcto

    Este programa está diseñado para ayudarles a responder algunas de las preguntas más importantes que surgen inmediatamente después de un diagnóstico. Escucharás el testimonio de personas que han estado exactamente dónde usted está ahora y están viviendo y disfrutando la vida aun con cáncer de pulmón. Ellos serán sus guías a lo largo de la primera parte de su viaje contra el cáncer que estamos llamando Los Primeros Siete Días.


    Guests


    Dr. Christian Rolfo - Dr. Christian Rolfo es Oncólogo Torácico y experto en oncología molecular, biopsias líquidas y desarrollo de nuevos fármacos en el ámbito de cáncer de pulmón y mesotelioma en el centro de Oncología Torácica de Mount Sinai.


    Yovana Portillo, Sobreviviente de Cancer de Pulmon, LCFA Mesa de Oradores


    Juanita Segura, Sobreviviente de Cancer de Pulmon, LCFA Mesa de Oradores


    Recursos


    Los primeros 7 pasos que debe seguir después de un diagnóstico de cáncer de pulmón


     


    Notas del Programa | Transcripción


     


    La misión de LCFA es mejorar la supervivencia de los pacientes con cáncer de pulmón mediante la financiación de la ciencia transformadora. Mientras recauda fondos para apoyar la investigación del cáncer de pulmón, LCFA aumentará la conciencia del público y servirá como un recurso para los pacientes o cualquier persona que busque respuestas, esperanza y acceso a información actualizada sobre tratamientos, investigaciones científicas y ensayos clínicos.  


    Usted también puede unirse a la conversación con LCFA en Facebook, Twitter, e Instagram. 


     

    • 33 min
    Who Says Men Can Only Talk Sports?

    Who Says Men Can Only Talk Sports?

    If you had to guess what a personal trainer, a die-hard runner, and a healthful vegetarian have in common, you would probably never guess "lung cancer." But far more than their diagnosis, these three guys are connected by the strength they find in their families, the openness and vulnerability they share in talking about their diagnosis, and the focus they put on reaching other men who, like them, are also learning how to live with lung cancer. 


    Guests:


    Speakers Bureau members James Hiter, Frank McKenna, and AJ Patel


    Jim Baranski, Executive Director 


    Show Notes | Transcription


    Sharing Their Lung Cancer Diagnosis
    Guys DO want and need to share their feelings about the challenges of living with lung cancer. Listen to these poignant stories of James Hiter, Frank McKenna, and AJ Patel. These guys, living with lung cancer, are first and foremost, husbands and fathers. They talk about the strength they draw from the most fundamental relationships in their lives. They talked about sharing their lung cancer diagnosis with their kids—and how those relationships helped change their perception of being diagnosed with lung cancer.


    AJ Patel talks about how communicating honestly about these issues with his kids helps them work through their own feelings about his diagnosis.


    Appreciating Their Support Network
    A lung cancer diagnosis is a stressful experience in a person's life. The support of family and friends is incredibly helpful and appreciated by these men, even if they were reluctant at first.


    Frank shares how the actions of his sons were just so inspiring to him.  “To know that I had that effect on them, that they wanted to give back to me and, and, you know, make their dreams and wishes come true with the little time that we had.” 


    Since AJ’s diagnosis, he is now more open to family members and others talking to them and sharing his emotions and feelings. This openness was something new - he was reserved and never really talked about his health because he thought he was supposed to be the head of the household. “What am I going to do? Being vulnerable? But now I realize that vulnerability leads to discussions and dialogues, and it's not necessarily always an outcome that we're, well, now we feel better.”


    AJ has stepped up to connect as a “buddy” to other men facing a lung cancer diagnosis. 



    “I would just encourage if anybody's listening to this and you've been recently diagnosed, you know, somebody has been recently diagnosed, set aside, whatever preconceived ideas you have about talking to people that you don't know about this, and just know it can be really beneficial just to have a second set of ears.”



    Men Also Advocate for Lung Cancer Research
    Another thing that all three men have in common is the knowledge that the latest lung cancer research has been vital to their survival of this disease. Knowing that there is much more work to be done, they have chosen different ways to advocate for lung cancer research. Besides being part of the LCFA’s Speakers Bureau, each of them found a way to give back even while managing their own cancer journey.



    “And it's, it's so important for guys to know that there were other guys in here, you know, like the three of us who work with the speaker's bureau in order to get that word out there. And do the events that we do - appear on some of the podcasts and on the websites, and some of the things we do to let people know that there were other guys out here that are willing to help, they're willing to, you know, either lead by example or give advice, or, you know, just kind of say, it's okay to talk to someone who knows what you're going through or has been through it.” - Frank McKenna



    James also shares an important message:



    “My hope is that you will be inspired to spread the word. It’s time for this disease to be funded and treated like all other types of cancer. It's time for the world to know that if you have lungs, you can g

    • 21 min
    Finding Your Lung Cancer Tribe: Tips from Patient Advocates

    Finding Your Lung Cancer Tribe: Tips from Patient Advocates

    Living with lung cancer is never easy, but finding your lung cancer tribe with other patient advocates can help newly-diagnosed patients harness the power of their own voice in treatment. Hear from LCFA's group of patient advocates about how they got connected through patient groups that helped them learn how to navigate the lung cancer journey. You'll also hear from lung cancer specialist Dr. Raymond Osarogiagbon of Baptist Cancer Center in Memphis, who shares his hopes for the future of lung cancer treatment.

    Guests:

    Dr. Raymond Osarogiagbon of Baptist Cancer Center in Memphis, Tennessee

    LCFA Speakers Bureau members Terri Conneran, Linnea Olson, Ivy Elkins, Yovana Portillo, AJ Patel, Montessa Lee, Gina Hollenbeck, and Frank McKenna

    • 21 min

Customer Reviews

5.0 out of 5
13 Ratings

13 Ratings

Gddhdhhebx ,

Best lung cancer podcast!

Fantastic podcast! Everyone diagnosed with lung cancer should listen to this!

linno11 ,

Hope with answers

Excellent resource for those with lung cancer—whether recently diagnosed or a long term survivor.

COpodcastor ,

A must listen podcast!

This podcast is the perfect combination of patient advocates working with doctors to explain what it’s like to truly live with lung cancer. I highly recommend for patients who were recently diagnosed or who’ve been searching for new platforms for their advocacy.

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