184 episodes

Illuminating the invisibilities of autoimmune disease.

Designed to bring voice to HSCT journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are as unique in our HSCT journey as we are in our experience with autoimmune disease.

HSCT Warriors Zen Jen Stansbury Koenig

    • Health & Fitness
    • 4.5 • 21 Ratings

Illuminating the invisibilities of autoimmune disease.

Designed to bring voice to HSCT journeys – highlight the snowflakes (individual experiences) and recognize our superpowers – because we are as unique in our HSCT journey as we are in our experience with autoimmune disease.

    Reconnect with Lynn and gain insights on the nuances of CIDP (S5 replay)

    Reconnect with Lynn and gain insights on the nuances of CIDP (S5 replay)

    Warrior: Lynn Rogers
    AI: Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
    HSCT Hopeful:
    Superpower: widened lens

    Have you ever worried about asking people for help when their investment isn't a sure thing? How do you define barriers to treatment for your autoimmune disease?

    As a triathlete, crossfit-er, and marathoner preparing for an Ironman race, imagine the frustration when Lynn found herself paralyzed after two weeks of testing that led to no answers. Having a career in biomedical engineering with a focus on helping individuals with motor-recovery, Lynn was very surprised to find herself struggling with the same acute neurological issues as her patients.

    Tune in to learn more about her journey with symptoms that were not “textbook” and how the diagnostic testing not designed to pick up subtleties rendered her borderline, ultimately prolonging a diagnosis. Learn more about Lynn's efforts to find answers and collaborate with her doctors over the course of three years to develop a plan of action that is leading her to pursue HSCT.

    Be sure to visit our website, HSCTWarriorsPodcast.org where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find podcasts.

    It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well.
    _________________________________

    Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician.

    Resources:
    Clinica Ruiz
    https://hsctmexico.com

    • 1 hr 45 min
    Revisit Sagirah's commitments in defining success with HSCT (S5 replay)

    Revisit Sagirah's commitments in defining success with HSCT (S5 replay)

    Warrior: Sagira Ahmed Norris
    AI: Multiple Sclerosis
    HSCT: January 2020
    Superpower: flexibility

    Are you someone who prefers to schedule a plan for every detail in life? Do you

    After first being diagnosed, Sagira found herself more driven than ever to complete life goals ahead of schedule while she was able, including travel to foreign countries to run marathons. Once her symptoms began matching what her doctor projected for her years down the road, she happened upon HSCT by chance while in Europe. After returning home, Sagira did more research and then talked with her doctor, only to be told that HSCT wasn’t an option for her, particularly the kind of HSCT that involved leaving the country.

    Tune in to learn more about how Sagira defined her path to HSCT, the flexibility she gained throughout her experience, and whether she qualified for the Boston Marathon even before her one-year HSCT birthday.

    Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

    It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well.
    _________________________________

    Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician.

    Resources:
    HSCT Warriors, Inc.

    • 1 hr
    Revisit our chat with Brooke Slick about managing setbacks post-HSCT (S5 replay)

    Revisit our chat with Brooke Slick about managing setbacks post-HSCT (S5 replay)

    Warrior: Brooke Slick
    AI: Multiple Sclerosis
    HSCT: 2013
    Superpower: surrender

    Are you able to surrender to all that seems out of your control? How easy is it for you to allow things to just happen?

    Revisit Brooke’s journey to HSCT and learn more about the setbacks she has faced post-HSCT, (including surgeries for trigeminal neuralgia) but also the influence of mindset, and the inspirations she has found with persevering in her battle with MS beyond HSCT.

    Tune in to check-in with our dear friend, Brooke and hear more about how she continues to support others along their journey to HSCT and celebrate the gifts of community and service to others.

    Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

    It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well.
    _________________________________

    Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician.

    Resources:
    The MS Gym Podcast
    The MS Gym
    HSCT Moscow
    HSCT Warriors, Inc.

    • 1 hr 1 min
    Reconnect with Felicia and how she fought against the odds and COVID to pursue HSCT (S5 replay)

    Reconnect with Felicia and how she fought against the odds and COVID to pursue HSCT (S5 replay)

    Warrior: Felicia Merritt
    AI: Progressive Multiple Sclerosis
    HSCT: August 2020
    Superpower: Feeling invincible

    Have you ever suddenly realized just how much you were taking for granted? Have you been able to find internal strength? What about internal peace?

    Shortly after turning 30, Felicia began experiencing vision issues and weakness. Following an intense crossfit workout, Felicia hoped she could laugh things off until she checked herself into the hospital. Her doctors referred her to Ohio State University and once surrounded by a medical team for a few days, Felicia was diagnosed with multiple sclerosis in 2018.

    Tune in to learn more about HSCT despite COVID and details about the level of detail, treatment and care Felicia received at Clinica Ruiz, and all that she has gained in just the first couple of weeks post-HSCT. Be sure to visit our website, HSCTWarriorsPodcast.com where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

    It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well.
    _________________________________

    Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician.

    • 1 hr 22 min
    Revisit our catch-up with Marlo, who persevered despite a super twisted path to HSCT (S5 replay)

    Revisit our catch-up with Marlo, who persevered despite a super twisted path to HSCT (S5 replay)

    Warrior: Marlo Kalb
    AI: Relapsing Remitting Multiple Sclerosis
    HSCT: confidence to fight back
    Superpower: 9.30.19

    How will you face the many curves that lie ahead?

    Diagnosed at just 13 years old, Marlo found herself eager for HSCT after doing research and listening to this podcast. First interviewed as a HSCT Hopeful during Season 2, Marlo shared her journey to become the first person transplanted in Boston. After facing administrative issues, delays, and opinions not favorable to her candidacy, tune in to learn more about how Marlo faced the multiple twists and turns that eventually led her to Clinica Ruiz. Join us in celebrating Marlo’s one-year stem-cell birthday and how HSCT has impacted her after spending 13 years living with MS.

    Be sure to visit our website, HSCTWarriorsPodcast.org where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find your podcasts.

    It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well.
    _________________________________

    Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician.

    • 1 hr 4 min
    Meet Mendo and the positive mindset he embraces, thanks to HSCT (Ep. 84)

    Meet Mendo and the positive mindset he embraces, thanks to HSCT (Ep. 84)

    Warrior: Mendo Micevski
    AI: Primary Progressive Multiple Sclerosis
    HSCT: June 2021
    Superpower: Mindset

    Are you someone who prefers to live in the shadows? How well do you notice the ‘chalk and cheese’?

    After years of noticing odd symptoms that doctors could not figure out, Mendo was walking to dinner one Saturday evening when his vision became blurry and doubled in his left eye. The following day he visited a specialist’s hospital in Melbourne where the doctor noticed inflammation of his optic nerve, suggested it could be multiple sclerosis, and encouraged him to get an MRI. After receiving the diagnosis in 2005, Mendo was in a bit of shock as he was unfamiliar with the disease, aside from commercials about the medications that depicted people in a wheelchair.

    Tune in to learn more about the slow decline that Mendo experienced, how he learned that HSCT might be an option for him (though not in Australia), his journey to Russia, his experience during HSCT and returning to quarantine in Australia, and how he is faring and all the differences he is noticing at 10 months post-transplant.

    Be sure to visit our website, HSCTWarriorsPodcast.org where you can find notes from today’s episode, submit ideas or feedback, or connect with HSCT Warriors, Inc. and schedule time to “Talk with a Warrior”, find the latest research and resources, or explore the world map. Special thanks to musical genius Billy Alletzhauser for sharing his superpowers to produce the soundtrack, and engineer the audio to make this podcast possible. You can find us both when you subscribe on SoundCloud, iTunes or wherever you find podcasts.

    It has been great to connect with Warriors worldwide, so please reach out if you’re interested in sharing your story. We would love to learn how the podcast has helped your journey with autoimmune disease so if you could take a moment, leave us a comment on instagram or share feedback on our website. We hope you’ll tune in next Wednesday for another episode, highlighting another HSCT Warrior. Until then, be a snowflake and embrace your superpowers. Be kind. Be well.
    _________________________________

    Jen Stansbury Koenig and the producers disclaim medical influence and responsibility for any possible adverse effects from the use of information contained herein. If you think you have a medical problem, please contact a licensed physician.

    • 52 min

Customer Reviews

4.5 out of 5
21 Ratings

21 Ratings

Addy May McGovern ,

AMAZING podcast

I don’t actually have an autoimmune disease, but this podcast is inspirational nonetheless. Thank you, Jen, for your zenness and overall amazing podcast.

Dr. Conda ,

HSCT Warriors Review

I was recently diagnosed with MS and am learning as much as I can. I love the honesty of the participants and feel it helps me understand my options.

Eileen Zen Jen's Mom ,

Mrs. E Stansbury

Thank you Ron for your candor and positivity! Thank you Zen Jen for your dedication to getting the word out to all people, especially someone suffering from auto-immune disease!

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