I'm Dying to Tell You

Lorri Carey
  • 5.0 (156)
  • PERSONAL JOURNALS
  • UPDATED MONTHLY
I'm Dying to Tell You

Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!

  1. MAR 5

    Carrying an ALS Gene: Mindy Uhrlaub’s Story of Hope & Action

    What happens when you learn that your DNA carries the same mutation that led to a loved one’s battle with ALS? In this episode, I sit down with Mindy Uhrlaub, who discovered she is a carrier of the C9orf72 gene—the most common genetic cause of ALS and Frontotemporal Dementia. Mindy shares her emotional journey of genetic testing, the weight of living in the unknown and the unique challenges that come with being pre-symptomatic. We dive into the mental and emotional impact of her hereditary di...

    50 min

  2. JAN 28

    I AM ALS Turns 6: Community Teams Inspiring Change

    Welcome to "I'm Dying to Tell You," where we shine a light on resilience and hope. In this special episode, we’re celebrating six years of I AM ALS, an organization created for patients, by patients. Why is this so important? Because for far too long, those most impacted by ALS weren’t leading the charge in our collective mission for a cure. But I AM ALS changed the game. By putting patients at the forefront, they are not only better equipped to serve the ALS community, but we’re opera...

    1h 6m

  3. JAN 15

    Fashion, HOPE, ALS Reversals: All with Dr. Richard Bedlack

    Here I chat with Dr. Richard Bedlack, a neurologist known not only for his relentless ALS research but also for his unique style. This episode unfolds the fascinating story of how an encounter with legendary designer Manuel Cuevas led to the creation of a special jacket that embodies Dr. Bedlack's fight against ALS. We also celebrate the powerful alliances formed through advocacy, as highlighted by a heartfelt recognition from Zac Brown Band's John Driskell Hopkins. I loved hearing him talk a...

    1h 4m

  4. 12/12/2024

    Facing ALS with Resilience: Johnny Rodriguez's Inspiring Journey

    Imagine facing a life-changing ALS diagnosis and tackling it with resilience and positivity. That’s what Johnny Rodriguez, a 35-year-old high school lacrosse coach, husband, and father, has done. Johnny’s story is one of inspiration, determination, and the power of community. From playing lacrosse in Hawaii to mentoring athletes at Mater Dei High School in Santa Ana, California, he pushes the boundaries of what’s possible with ALS. Johnny’s support network and the lacrosse community have bee...

    55 min

  5. 11/25/2024

    "Clayton Rakes" - Two Siblings’ Mission to Honor Their Dad and Fight ALS

    What if two young siblings could inspire an entire community to rally against a devastating disease? Brady and Brooklyn Yozwiak from Hudson, Ohio, are doing just that with their initiative, Clayton Rakes. Their story begins with a deeply personal journey, motivated by their father Chris's battle with ALS. Sadly, Chris passed away in early 2024, but these incredible kids, aged just 11 and 8, have turned their grief into action by raising substantial funds for ALS research through their leaf-cl...

    37 min

  6. 10/30/2024

    Animated Film, LUKi & the Lights: Helping Children Understand ALS/MND

    "LUKi and the Lights" is not just an animated short film; it's a beacon for children trying to grasp the complexities of ALS. Inspired by the real-life journey of Anjo Snijders and Sascha Groen, this episode unravels how their personal ALS/MND experiences fueled the creation of a groundbreaking resource for families worldwide. Hear how the layers of creativity, medical accuracy, and emotional authenticity make this film a vital tool for understanding ALS/MND. Meet my insightful guests ...

    53 min

  7. 10/01/2024

    Episode 100: A Chat with 100-Year-Old ​Mildred Kirschenbaum

    To celebrate Episode 100 of this podcast, here I chat with 100-year-old Mildred Kirschenbaum. Mildred has become a social media star and is happily sharing some life lessons of her ten decades. She not only became an author at 100, Mildred entertains over 100,000 on TikTok and Instagram. Her videos have been featured on mainstream media outlets like the Today Show, CBS and Fox. Mildred and her daghter Gayle collaborated on a book, Mildred’s Mindset: Wisdom from a Woman...

    43 min

  8. 09/11/2024

    Broadway's Aaron Lazar on Making the Impossible, Possible ... Even with ALS

    In this conversation, Aaron Lazar shares how he discovered a new life purpose after being diagnosed with a terminal illness, ALS. Aaron has been in the spotlight for over two decades in his successful career as a singer, actor and now speaker and advocate. Aaron took a couple years before going public with his ALS in order to discover how he would shape and control his future. As a result, Aaron is currently rebuilding his life to achieve his new impossible dream which is he...

    1 hr
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Trailer

5
out of 5
156 Ratings

About

Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!

Information

  • Creator
    Lorri Carey
  • Years Active
    2020 - 2025
  • Episodes
    107
  • Rating
    Explicit
  • Copyright
    © 2025 I'm Dying to Tell You
  • Show Website
    I'm Dying to Tell You

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