365 episodes

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.

Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.

Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.

Learn more about PH at www.phaware.global

I'm Aware That I'm Rare: the phaware® podcas‪t‬ phaware global association

    • Medicine
    • 5.0 • 9 Ratings

I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.

Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.

Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.

Learn more about PH at www.phaware.global

    Are you #phaware?

    Are you #phaware?

    Are you #phaware?  

    EVERYBODY HAS A STORY. WHAT'S YOURS?

    phaware® wants to share your pulmonary hypertension story with our engaged global audience. Whether you are a patient, caregiver, or medical professional, we are enlisting PH community members from across the globe. We can record anyone... from anywhere... anytime.  Contact us at: www.phawarepodcast.libsyn.com/contact

    • 1 min
    Raymond Benza, MD - Pulmonary Hypertension

    Raymond Benza, MD - Pulmonary Hypertension

    Dr. Raymond Benza discusses GossamerBio’s GB002 Phase 2 Study and explains what differentiates GB002 from other investigational drugs in development.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials

    • 9 min
    Roz Jones - Caregiving in times of Covid19

    Roz Jones - Caregiving in times of Covid19

    Rosalind Marshall-Jones is an innovative speaker with more than 15 years of experience in the caregiving industry. She is a seasoned health care provider, who runs Jacksonville’s Best Caregivers, which provides short & long-term health care. Roz discusses the impact #covid19 has had on home healthcare from anxiety, depression to feelings of isolation.

    Learn more about PH trials at www.phaware.global/clinicaltrials. Follow us @phaware Engage for a cure: www.phaware.global/donate #phaware #covid19

    • 11 min
    Episode 357: PAH Today - Moving Forward

    Episode 357: PAH Today - Moving Forward

    SPECIAL EDITION: Moving Forward
    The PAH Initiative and United Therapeutics are excited to bring you the PAH Today National Broadcast Series. This series of virtual events is intended for adult patients with pulmonary arterial hypertension (PAH) and their caregivers.

    Advancements in the care and treatment of PAH are improving the lives of those impacted by this life-threatening disease. The National Broadcast Series will include insights and perspectives on today’s approaches to managing PAH from nationally recognized PAH healthcare providers. Join patients and caregivers across the nation to hear current considerations in the care of PAH.

    This is the 4th of 4 PAH Today broadcasts to learn about how you can be empowered to stay informed, motivated, and focused on your future.
    Presented by Dr. Lana Melendres-Groves the Director of the Pulmonary Hypertension Program at the University of New Mexico and PAH patients Denise B. & Lauren J. Learn more at: www.pahinitiative.com 
    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials

    • 17 min
    asthma, awareness, blood, breathless, catheterization, heart, lung, lungdisease, oxygen, pah, ph, phaware, pulmonary, pulmonaryhypertension, rare, raredisease, research, support, clinicatrials

    asthma, awareness, blood, breathless, catheterization, heart, lung, lungdisease, oxygen, pah, ph, phaware, pulmonary, pulmonaryhypertension, rare, raredisease, research, support, clinicatrials

    David F. Harris discusses the qualitative & quantitative work he conducts with #PAH patients, so patients who participate in these types of studies understand the process and what gets done with those results.

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials

    • 11 min
    PAH Today: The Pathways To Treatment

    PAH Today: The Pathways To Treatment

    This is the 3rd of 4 PAH Today broadcasts to learn about how medications work to treat PAH and how finding the right combination of medications could help improve your symptoms.

    Presented by Dr. Lana Melendres-Groves and Dr. Sean M. Studer. Learn more at: www.pahinitiative.com 

    Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us @phaware Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials

    • 22 min

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5.0 out of 5
9 Ratings

9 Ratings

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