Living With Alzheimer's Christoph Sisson

In this episode on the Living with Alzheimer's podcast, Christoph interviews Max Sherman, author of Releasing the Butterfly: A Love Affair in Four Acts. 
The book shares many insights about caring for a spouse with Alzheimer’s while telling the story of Max and his wife Gene Alice (Genie) who met as teenagers in the 1950s while volunteering at a jail in the Texas Panhandle. 
Max tells the story of how he and Genie created a partnership that enabled Max to become a lawyer, state senator and university president while Genie earned her doctorate to become a professor of music. The story continues as he tells how their shared love of literature, theater, film, and music became a critical connection after Genie was diagnosed with Alzheimer’s.
In the episode, Max shares many of the insights he has gained as a caregiver, and thoughts on how to maintain connection even while grieving the losses of the fading abilities of a spouse living with Alzheimer’s.
Max wanted to be certain to share that, in honor of Genie, all proceeds from the book go to Austin Presbyterian Theological Seminary's program in sacred music.

In this episode on the Living with Alzheimer's podcast, Christoph interviews Steve Mullen, co-host with his wife Jennifer on Caregiving Gen X Style, a podcast by Gen Xers for Gen Xers who are taking care of their aging parents.
Steve describes many of the unique caregiving challenges faced by Gen Xers. As the current Sandwich Generation, they are often raising children while simultaneously caring for aging parents.
Steve shares how draining caregiving can be and some of the practical ways families and friends can help. We also discuss some of the key caregiving insights and resources you can find on their podcast.
And, although neither of us can recall the name of a book we mention in the episode, the title is The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer’s Disease and Other Dementias. Now in its 7th edition, the book is full of practical advice for caregivers.

In this episode on the Living with Alzheimer's podcast, Christoph interviews Tina Sadarangani, ANP-C GNP-BC PhD RN, Assistant Professor at NYU Rory Meyers College of Nursing.
They discuss her research efforts to improve healthcare outcomes for the elderly and CareMobi, an app her team has developed to connect family caregivers, in-home caretakers, staff at adult day care programs, and medical providers so they can share health information with each other on a single platform. CareMobi is available for both iOS and Android users.
Tina describes the benefits of adult day centers for caregivers and those living with dementia, as well as how families can locate a day center near them at National Adult Day Services Association’s website.
Tina also shares warning signs for acute infections and Enlightened Caregiver, a social media feed with tips for caregivers to be effective advocates for their loved one in the doctor’s office or hospital.

In this episode on the Living with Alzheimer's podcast, Christoph interviews Nicole Brackett, Director of Care Delivery and Quality for Homewatch CareGivers. They discuss the many services Homewatch CareGivers provides to families, especially those caring for a family member with dementia. 
Nicole describes the importance of personalized care plans, as well as the culture-shift her organization is embracing by focusing on the person and not their disability. Nicole and Christoph discuss examples of a person-centered approach to care partnerships.
They go on to discuss how families can distinguish between care that can be provided in the individual’s home, and when a care community may be the better fit. And Nicole outlines the Five Rs of Caregiving (Remain calm, Respond to feelings, Reassure, Remove yourself to gain composure, and Return fully when the person you’re caring for has calmed) to help caregivers sustain quality care without burning out.
The episode wraps up with conversation about a free resource for caregivers, called Pathways To Well-Being With Dementia from Dementia Action Alliance, as well as a caregiver certification program that Homewatch CareGivers is developing with Dr. Al Power.

In this episode on the Living with Alzheimer's podcast, Christoph interviews Dr. Logan DuBose. Logan is the co-founding director of Olera, a research organization supported by the National Institute on Aging.
Christoph and Logan discuss the needs of families who are caring for an elderly relative who may also be living with dementia. And Logan describes how Olera helps match those families with caregiving tips, caregiver support groups, and funding sources for a variety of caregiving services and facilities.
They also discuss how senior care providers can utilize Olera’s service-provider login to list their organization and connect with families looking for the services they provide.
You can find more information about Olera’s Healthy Aging Community support group on Olera’s Facebook page.
And you can access Olera’s free Caregiver Relief Network at olera.care. The dashboard provided there enables families caring for an elderly relative to:
Find help at home, Find senior living communities, Find help affording care and Find help with caregiver support and wellness.

In this episode on the Living with Alzheimer's podcast, Christoph interviews Mary Moreland, author of The Gap Between: Loving and Supporting Someone with Alzheimer’s.
They discuss Mary’s experience as a full-time lawyer and single mother of two boys suddenly becoming the caregiver for her mother with Alzheimer’s. They also talk about the book, how Mary approached the grieving process as her mother succumbed to the impacts of dementia, and how caregivers can refuel.
The insights Mary gained from her mother’s journey with dementia became a book full of the things she would have found helpful as a caregiver from diagnosis to end of life.
You can find Mary’s book and other resources at www.marymoreland.com.