114 episodes

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.


Featuring Marianne Sciucco, RN


Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.


Learn more about Marianne at AlzAuthors.com.


Purchase "Blue Hydrangeas"


Featuring Christy Byrne Yates, M.S., LEP


Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.


Learn more about Christy at AlzAuthors.com.


AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

AlzAuthors: Untangling Alzheimer's & Dementia AlzAuthors Featured on The Whole Care Network

    • Health & Fitness
    • 4.9 • 16 Ratings

Welcome to the AlzAuthors podcast! We’re so glad you found us. We are the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Join us as one of our authors shares their dementia journey, revealing intimate details and painfully obtained knowledge to help others currently on this path. We hope our stories offer comfort and support as we strive to break the silence and stigma surrounding a dementia diagnosis. May one of our authors speak to your experience. For more info please visit https://alzauthors.com.


Featuring Marianne Sciucco, RN


Podcast producer and host Marianne Sciucco is a co-founder and director at AlzAuthors and a registered nurse who cared for hundreds of dementia patients over a 20-year career. She provided care to her stepfather during his dementia journey and witnessed the painful decline of four beloved aunts to the disease. Her novel, "Blue Hydrangeas, an Alzheimer’s love story," is based on a couple she met through her work and is a testament to the power of love in the face of this heart-wrenching disease.


Learn more about Marianne at AlzAuthors.com.


Purchase "Blue Hydrangeas"


Featuring Christy Byrne Yates, M.S., LEP


Christy is a Licensed Educational Psychologist (LEP), retired school psychologist, author, speaker and coach/consultant. Her book, “Building a Legacy of Love: Thriving in the Sandwich Generation” recounts her journey as a working mother of two who also managed the care of her parents, both of whom had some form of dementia. Combining her lived experience with her professional expertise in human development, wellness and a strengths based approach to finding solutions, Christy develops content, workshops and coaching to support Sandwiched families. She incorporates meditation, mindfulness and other evidence based mind/body practices into her work. She’s worked with care communities, financial professionals, estate planners and employers. Christy has a master’s degree in counseling psychology, and graduate credentials in both education and school psychology.


Learn more about Christy at AlzAuthors.com.


AlzAuthors is an Amazon Affiliate and may receive a small commission on book sales at no cost to you.

    Seize the Day: Embracing Life's Moments with Alzheimer's

    Seize the Day: Embracing Life's Moments with Alzheimer's

    Perhaps you can’t cure or even prevent Alzheimer’s, but what if you could slow the disease progression? Want to unlock the secrets to living in the moment with Alzheimer's? Get ready to embrace practical advice and actionable insights for a positive journey with Alzheimer's and dementia in this podcast with Danel Gibbs, MD. 


    He’s a retired neurologist with extensive knowledge in the anatomy of the brain and the disease process of Alzheimer's and dementia. His personal experience living with Alzheimer's provides a unique perspective, enhancing his credibility in discussing practical approaches to managing these conditions. He’s the author of "A Tattoo on My Brain" and "Dispatches from the Land of Alzheimer's," which offer a collection of essays and vignettes that provide valuable insights into the cognitive health and well-being of those living with Alzheimer's or dementia. His writing style, which simplifies complex scientific concepts, ensures that his work is accessible to a wide range of audiences, and his contributions to the understanding and management of Alzheimer's and dementia make him an essential guest on the podcast.


    Quotes: 


    “For those of us on the Alzheimer's journey, it's really important to embrace the moment and not dwell on the frustration of trying to remember the past and plan for the future. Happiness and peace come from focusing on the moment.” - Daniel Gibbs, M.D.


    “We don't have to wait for a cure. We can just do things that really make a significant difference, that are available, evidence proven, and don't cost anything. Except maybe a gym membership.” - Daniel Gibbs, M.D.


    In this episode, you will: 


    Explore real-life experiences of living with Alzheimer's and gain insights on managing the daily challenges.Discover the surprising link between sense of smell loss and Alzheimer's disease, and how it may impact early detection.Uncover the powerful impact of exercise on slowing the progression of Alzheimer's and enhancing overall well-being.Learn about dietary approaches that may help slow down the advancement of Alzheimer's disease.

    Resources mentioned:


    Trial MatchNational Institutes on Health - Clinical TrialsMind DietMediterranean Diet 

    After the Podcast


    Buy the Dispatches from the Land of Alzheimer's and A Tattoo on My Brain


    Watch the documentary A Tattoo on My Brain


    Read Daniel’s AlzAuthors Post


    Visit Daniel’s Blog


    Listen to Previous Podcasts:


    Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer’s Disease


    Writing Through the Fog


    About the Podcast 


    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.


    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.


    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


    Thanks for listening.


    We are a Whole Care Network Featured Podcast


    Proud to be on The Health Podcast Network


    Find us on The World Podcast Network and babyboomer.org


    Want to be on the podcast? Here’s what you need to kn

    • 50 min
    Laughter, Tears and Connection: Discussing a Novel Born from Alzheimer's Experience

    Laughter, Tears and Connection: Discussing a Novel Born from Alzheimer's Experience

    Delight in the surprising journey of Ruth Stevens, from crafting a stage play to penning a heartfelt novel about Alzheimer's. Delve into the unexpected twists and turns as Ruth shares her personal experiences and the emotional impact of her work. Stay tuned for eye-opening insights on turning personal stories into fiction and a sneak peek into her upcoming duology. Get ready to be captivated by Ruth's incredible journey, as she shares the highs and lows of her creative process.


    For our March installment of Books & Chit Chat, our monthly Book Club collaboration with Aging & Amazing, we talk with Ruth Stevens, a former public relations professional from New York City and LA, and the author of the debut novel "Stage Seven," inspired, in part, by her personal experience dealing with her mother's Alzheimer's disease and decline. A fiction story acquisitions editor with AlzAuthors and a member of the Dramatists Guild of America and Women's Fiction Writers Association, Ruth brings a unique perspective to her writing, infusing humor and tenderness into a difficult topic. Her storytelling abilities, honed through a career in creative writing, advertising campaigns, and numerous articles for magazines, newspapers, and journals, shine through in her work, offering a compelling and relatable portrayal of Alzheimer's and its impact on family dynamics. Like enjoying a performance of her play, you’ll laugh, you’ll cry, you’ll learn a lot. Have a listen.


    Quote: 


    “I feel like your play gave me permission to move on with my life”. - Audience member


    In this episode, you will: 


    Explore real-life Alzheimer's caregiving experiences and gain insights into navigating the challenges with compassion and understanding.Discover the art of turning personal stories into compelling fiction, finding inspiration from the heart-wrenching yet beautiful moments of caregiving.Uncover the captivating journey within the novel "Stage Seven" by Ruth Stevens, delving into the emotional landscape of Alzheimer's and its impact on families.Understand the profound impact of Alzheimer's on family dynamics, gaining new perspectives on how to navigate relationships and support systems during difficult times.

    After the Podcast


    Buy the Book Stage Seven


    Find more about Ruth Stevens at https://ruthfstevens.com/


    Listen to Ruth on on the Hilarity for Charity (HFC) and AlzAuthors Summer Book Club


    Follow Ruth on Social Media:


    Instagram 


    Facebook


    Goodreads 


    Blog 


    About the Podcast 


    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.


    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.


    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


    Thanks for listening.


    We are a Whole Care Network Featured Podcast


    Proud to be on The Health Podcast Network


    Find us on The World Podcast Network and babyboomer.org


    Want to be on the podcast? Here’s what you need to know


    We've got merch! Shop our Store

    • 59 min
    The Caregiving Podcaster: Broadcasting Resources from His Unique Vantage Point

    The Caregiving Podcaster: Broadcasting Resources from His Unique Vantage Point

    When you’re caregiving, it can often feel like you are out there on your own without direction or resources. Sometimes, it can even feel like your healthcare providers aren’t able to meet your needs. If any of this sounds familiar, this episode will be of comfort.


    Our special guest is Lance A. Slatton.


    Lance A. Slatton, the founder of a prominent home care company in southeastern Michigan, brings a wealth of personal experience and professional expertise to the table. His caregiving journey, rooted in profound connections with his grandparents and later involving the care of his grandmother during her dementia and his father's health crisis, has deeply influenced his perspective on family caregiver support. Drawing from these experiences, Lance established his own home care company, driven by a commitment to improving caregiver well-being and patient care. His unique insights, stemming from real-life situations, position him as a credible and valuable resource for individuals navigating similar caregiving challenges.


    Quotes: 


    Knowing you are not alone is crucial. Seek out others who can understand and relate to what you're going through and educate yourself. - Lance A. Slatton


    If you've seen one person with dementia, you've only seen that one person. There are so many different variables and all these situations. - Lance A. Slatton


    I wanted to put something out there that is talking to family caregivers. It's half book, half guide, going through the whole caregiving journey with a lot of great resources and information. - Lance A. Slatton


    In this episode, you will: 


    Uncover effective caregiving challenges and innovative solutions for better patient care.Learn how to utilize valuable resources for dementia care to improve your loved one's quality of life.Explore practical ways to enhance family caregiver support and well-being.Understand the impact of personal caregiving experiences on professional paths and career growth.Learn about upcoming collaborations on the All Home Care Matters PodcastHear about Lance’s forthcoming book!

    After the Podcast


    Enriched Life Home Care Services https://www.elhcs.com/


    All Home Care Matters Podcast https://allhomecarematters.com/


    Lance's Book: All Home Care Matters Official Family Caregivers' Guide


    Ethics of Social Media show: Social Media Episode


    Unboxing Show: Unboxing Episode


    About the Podcast 


    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.


    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.


    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


    Thanks for listening.


    We are a Whole Care Network Featured Podcast


    Proud to be on The Health Podcast Network


    Find us on The World Podcast Network and babyboomer.org


    Want to be on the podcast? Here’s what you need to know


    We've got merch! Shop our Store

    • 47 min
    When Duty Becomes Privilege: Reframing Caregiving as an Act of Love

    When Duty Becomes Privilege: Reframing Caregiving as an Act of Love

    This is a replay of our book club discussion with our friends at Aging & Amazing. "Books & Chit Chat" is a monthly book club featuring a title from the AlzAuthors collection. Throughout the month, readers participate in a discussion in the book club's Circle community at Aging & Amazing, then meet with the author for an in-depth discussion of the book and the caregiving journey. The online discussions are typically moderated by Andrea Couture, but she was unavailable for this episode so AlzAuthor founder, manager and author Marianne Sciucco is in her place for this episode.


    Florrie Munat, the author behind "Be Brave, a Wife's Journey through Caregiving," brings a deeply personal and touching account of her caregiving experience for her husband, Chuck, who faced a stroke and Lewy body dementia. Through her memoir, Florrie provides a candid and insightful portrayal of the challenges and triumphs she encountered, offering a beacon of hope and understanding for caregivers navigating similar paths. Her tender storytelling and unwavering strength make her a compelling and relatable guest, bringing a wealth of wisdom and empathy to our discussion on the complexities of dementia caregiving. We're honored to have Florrie's unique perspective and compassionate voice on the Podcast.


    Quote:


    When love and duty are one, then Grace is within you. - Florrie Munat


    In this episode, you will:


    Gain insights into the caregiving journey for dementia patients and discover effective support strategies.Explore the therapeutic benefits of writing as a tool for caregivers to navigate their emotions and experiences.Learn how to effectively navigate complex family dynamics in the context of providing care for individuals with dementia.Discover the powerful benefits of journaling as a coping mechanism and reflective practice during the caregiving journey.Understand the unique challenges and symptoms associated with Lewy Body Dementia to better support individuals with this condition.

    After the Podcast


    Register for Books & Chit Chat


    Purchase Be Brave: A Wife’s Journey Through


    Caregiving, which is available as a paperback, and on Audible


    Note: We are an Amazon Associate and may receive a small


    commission on book sales at no cost to you


    Connect with Aging & Amazing


    Hear Florrie speak about Lewy Body Dementia on Untangling Alzheimer's & Dementia


    Read Florrie's AlzAuthors post: Memoir, Be Brave: A Wife’s Journey Through Caregiving by Florrie Munat






    About the Podcast


    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.


    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.


    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


    Thanks for listening.


    We are a Whole Care Network Featured Podcast


    Proud to be on The Health Podcast Network


    Find us on The World Podcast Network and babyboomer.org


    Want to be on the podcast? Here’s what you need to know


    We've got merch! Shop our Store

    • 1 hr 3 min
    Grace Under Pressure: A Caregiver's Journey from Professional to Personal

    Grace Under Pressure: A Caregiver's Journey from Professional to Personal

    By Christy Byrne Yates, MS, California, US


    Podcast Description: Discover the unexpected truth about dementia care from a professional who found herself on the other side of caregiving. Get ready to uncover the surprising insights that transformed her perspective and could change yours too. Find out what left her reevaluating her own caregiving advice and how she's now championing an empowering approach for other caregivers. It's a revelation that could reshape the way you think about dementia care and caregiving.


    Mary Ann Drummond, a highly experienced nurse with a career spanning over 30 years, is a prominent figure in the realm of dementia care. Her book, Meet Me Where I Am: An Alzheimer's Care Guide, is a comprehensive resource derived from her extensive work in memory care settings. It offers practical strategies and insights tailored to the unique challenges of dementia caregiving. In collaboration with Dr. Beatrice Tauber Prior, Mary Ann co-authored Grandma and Me, a children's guide for Alzheimer's and dementia, emphasizing her commitment to addressing the broader impact of these conditions on families. With her wealth of nursing knowledge and literary skills, Mary Ann's contributions have significantly advanced the understanding and support available for individuals living with dementia and their caregivers.


    Quotes:


    “Give yourself grace. You're only human. There're going to be days where you don't always do exactly what you might know to do, but it's not wrong. It's just human.”


    “It's about capabilities. It's less about the limitations and more about the abilities.”


    In this episode, you will:


    Gain valuable insights into dementia care from real-life experiences.Discover the importance of prioritizing self-care as a caregiver.Learn to recognize and leverage individual capabilities in dementia care.Overcome challenges in decision-making as a caregiver for someone with dementia.Explore how to create a dementia-friendly caregiving environment for enhanced well-being.

    After the Podcast


    ·      Meet Me Where I Am – An Alzheimer’s Care Guide


    ·      Grandma and Me – A Kid’s Guide for Alzheimer’s and Dementia


    I Choose to Remember, a reminiscence therapy aid - available exclusively on the Angel Tree Publishing website.

    Connect with MaryAnn


    Twitter at @RNforAlz for more information and updates.


    About the Podcast


    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.


    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.


    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


    Thanks for listening.


    We are a Whole Care Network Featured Podcast


    Proud to be on The Health Podcast Network


    Find us on The World Podcast Network and babyboomer.org


    Want to be on the podcast? Here’s what you need to know


    We've got merch! Shop our Store

    • 52 min
    Sharing an Alzheimer's Diagnosis Through Speaking Tours and Writing

    Sharing an Alzheimer's Diagnosis Through Speaking Tours and Writing

    Podcast Description: Jane Dwinell, co-author of Alzheimer's Canyon, brings a heartfelt and personal touch to the podcast. As a former Unitarian Universalist minister and with a background in nursing and hospice care, Jane's journey as a caregiver for her husband, Sky Yardley, provides a unique and empathetic perspective on the impact of Alzheimer's. Through their public speaking tour and workshops, Jane and Sky shared their experiences with dementia, aiming to break the silence and stigma surrounding the disease. Jane's dedication to storytelling and her commitment to raising awareness make her a valuable voice in the conversation about Alzheimer's and dementia.


    Quotes:


    "He wanted to meet his people. He wanted to meet other people with dementia. And by doing this church stuff and the workshops, it was his people all over the place."


    “He was still writing almost up to a year before his death, when he was still at home, and he was unable to dress himself and bathe himself. He was still writing.”


    In this episode, you will:


    Uncover the emotional rollercoaster of dementia caregiving.Discover the unique challenges of dementia caregiving during COVID-Understand the fluctuations in cognitive abilities in individuals with dementia.Learn the art of writing and publishing personal dementia caregiving experiences.Explore life after caregiving, including ways to move on both physically and emotionally.

    After the Podcast


    Purchase Alzheimer’s Canyon: One Couples Reflections on Living with Dementia, which is available as a paperback, Kindle edition and on Audible


    Note: We are an Amazon Associate and may receive a small commission on book sales at no cost to you


    Read Jane's AlzAuthors post: ‘Alzheimer’s Canyon’ Honors Jane’s Husband’s Wish to Make Blog Posts a Book and Help Others with Dementia.


    Listen to Jane on the “Untangling Alzheimer’s & Dementia” virtual event Podcast episode, “Writing Through the Fog: Three Authors Share Coping Strategies.”


    Jane's Bio:


    Jane Dwinell is a retired RN, freelance writer, and Unitarian Universalist minister. She is the author (or co-author) of four books including Birth Stories: Mystery, Power, and Creation and Alzheimer’s Canyon: One Couple’s Reflections on Living with Dementia, which won the Independent Publisher's of New England's 2023 award for narrative nonfiction. She lives in northern Vermont with her two cats, Tubby and Pogo, and her garden.


    Connect with Jane


    Facebook


    Instagram


    Website


    About the Podcast


    AlzAuthors is the global community of authors writing about Alzheimer’s and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys.


    We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here.


    Ideas and opinions expressed in this podcast belong to the speakers and not AlzAuthors. Always consult your healthcare provider and legal and financial consultants for advice on any of the topics covered here.


    Thanks for listening.


    We are a Whole Care Network Featured Podcast


    Proud to be on The Health Podcast Network


    Find us on The World Podcast Network and babyboomer.org


    Want to be on the podcast? Here’s what you need to know


    We've got merch! Shop our Store






     

    • 1 hr 4 min

Customer Reviews

4.9 out of 5
16 Ratings

16 Ratings

AshCapsho ,

Great podcast!

Marianne is a great host and shares from personal experiences about Alzheimer's and dementia, offering very intimate details. The stories shared on this podcast provide comfort, support, and help break the silence and stigma surrounding dementia diagnoses. - Ash & The Capsho Team

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