57 episodes

Welcome to the Patient Partner Innovation Community Podcast hosted by Dr. Knitasha Washington. This podcast was created to inform patients, families and caregivers about important health transformation topics. 

Patient Partner Innovation Community Podcast ATW Health Solutions, Inc.

    • Health & Fitness
    • 5.0 • 5 Ratings

Welcome to the Patient Partner Innovation Community Podcast hosted by Dr. Knitasha Washington. This podcast was created to inform patients, families and caregivers about important health transformation topics. 

    57. Creating an Inclusive Environment for People Living with Disabilities

    57. Creating an Inclusive Environment for People Living with Disabilities

    Michelle Whitman and MaryLiz McNamara believe that disability is an asset. They are on a mission to build sustainably inclusive practices and experiences for all. 
    In this episode……
    We discuss the topic of inclusion and access for people living with disabilities with experts Michelle Whitman and MaryLiz McNamara. Did you know that there are approximately 1 in 4 people live with a disability and more than 50% of people in the U.S. either identify as a person with a disability or are closely connected to someone who does? Michelle and MaryLiz work to disrupt the mindset around disability, resulting in authentically developed, sustainable processes that are accessible and inclusive by design.
    Here’s a glimpse of what you will learn:

    Broaden your thinking about disability inclusion and access beyond compliance with regulation.
    Identify your assumptions about people with disabilities and how they cause barriers to inclusion.
    Be planful about disability inclusion from the beginning – be proactive versus reactive.

    Michelle Witman (she/hers)
    Michelle has over 20 years of experience working with individuals with disabilities in educational and corporate settings. Michelle’s passion for helping individuals see their weaknesses as a strength has paved the way for her success. She is the co-founder of Asset Based Consulting, Inc.
    Mary Liz McNamara (she/hers)
    Mary Liz has decades of experience working on disability inclusion in education and employment. She has worked in cognitive rehabilitation for people with brain injuries, academic coaching, in career counseling for the Division of Vocational Rehabilitation, and has led an accessibility office for a major university. She designed and led an award-winning program for neurodiverse university students which resulted in significant increases in degree completion and successful employment. She is the co-founder of Asset Based Consulting, Inc.
    Contact Michelle or MaryLiz or connect with them through social media:
    MaryLiz@AssetBasedConsulting.com  
    Michelle@AssetBasedConsulting.com
    LinkedIn:
    https://www.linkedin.com/company/asset-based-consulting/
    https://www.linkedin.com/in/michelle-witman/
    https://www.linkedin.com/in/mary-liz-mcnamara-090b308/
    Facebook or Instagram: Asset Based Consulting
    www.AssetBasedConsulting.com

    • 35 min
    56. Patient Engagement Series: “The journey from patient to patient advocate” with Kevin Wake

    56. Patient Engagement Series: “The journey from patient to patient advocate” with Kevin Wake

    Kevin Wake is currently the chairman for University Health’s Patient & Family Advisory Committee.  He is also the President of the Uriel E. Owens Sickle Cell Disease Association of the Midwest in Kansas City, KS. He has a bachelor’s degree in Human Biology from the University of Kansas and worked in pharmaceutical sales and management for 23 years before taking an early retirement due to health complications from his sickle cell disease.  He also has a master’s degree in Healthcare Informatics from Walden University and a Community Health Worker certification from the SCDAA. 
    Here’s a glimpse of what you will learn:

    How a patient’s story and lived experience has the power to drive change in the healthcare ecosystem
    The different levels of patient engagement and how a patient can be empowered to partner with their healthcare environment.
    The importance and strategies to ensure health systems provide an environment for meaningful patient engagement

     
    In this episode….
    Kevin Wake shares his journey from patient to patient advocate. You will hear how he began to engage with his local Sickle Cell organization and quickly became a national champion. His story will inspire you into action. He also explains how to provide a welcoming environment where patients and providers can come together collaboratively to drive change in your healthcare ecosystem.

    • 23 min
    55. Patient Engagement and Equity, Not Just a Check the Box

    55. Patient Engagement and Equity, Not Just a Check the Box

    Ashley is an African American female who resides in Quinter, KS. She has become a national and local patient advocate and champion. She has been instrumental in her community to assist and elevate marginalized voices. She was inspired to become an advocate in her local school system from her experiences with her two sons who have autism. Through her advocacy she has become a true partner in her community to inform and advocate for persons with a disability. She has served on many national and local healthcare quality improvement projects. She is a champion for equity and hopes to inspire others to follow her lead. She believes in family centered care and shared decision making.
    Here’s a glimpse of what you will learn:

    What is meaningful engagement through the patient lens
    How to provide a culture where every voice is an equal stakeholder
    Why compensation is an important factor to achieve equitable engagement

    In this episode….
    This podcast episode features patient partner Ashley Bates-Crowley. She shares her perspective of what meaningful patient engagement and equity looks like. She has been empowered to promote engagement and mentorship in her community. You will be inspired to become a health equity champion. The true meaning of equity in healthcare quality improvement will be highlighted and how to move in the spirit of collaboration.

    • 15 min
    54. A Journey to Advocacy from the Neonatal Intensive Care Unit (NICU) with Ajshay James

    54. A Journey to Advocacy from the Neonatal Intensive Care Unit (NICU) with Ajshay James

    Ajshay James, MBA, is a Mediator, Motivator, Author, Advocate and Mother. She is originally from Washington, DC and is a champion for change---change in the way the world views philanthropy and approaches advocacy for vulnerable populations. Her years of experience of executive leadership in the philanthropic and financial sectors make her a powerhouse--that coupled with a heart the size of Texas is a recipe for a world of good. She has served on numerous committees, boards of directors, founded not-for-profits, launched initiatives and advised general corporations on goodwill strategy.
    Her most proud role is that of a mother to her former micro-preemie toddler daughter and unicorn lover, Harper. Ajshay’s NICU and premature birthing experience has made her a strong advocate for preemie and patient rights as CEO and Founder of the Harp Foundation. Committed to health equity, Ajshay is a sought-after speaker and practices servant leadership. Currently, Ajshay is pursuing the development of a patient, caregiver, and inter-agency focused software that will offer risk management and response support to responding care partners in the healthcare field. 
    Here’s a glimpse of what you’ll learn:

    Ajshay James’ experience in the Neonatal Intensive Care Unit (NICU)
    Resources that the Harp Foundation offers to parents in the NICU experience
    Ajshay’s advocacy work in partnership with Yale CORE on maternal health disparities
    The key role of community partners as drivers for measures development

    Resources Mentioned in this Episode:
    Harp Foundation
    March of Dimes
    Yale CORE

    • 19 min
    53. Uncovering Diethylstilbestrol (DES) Exposure with Karen Fernandes

    53. Uncovering Diethylstilbestrol (DES) Exposure with Karen Fernandes

    In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Karen Fernandes, president of AYR Consulting Group in Dallas, Texas, to discuss the prevalence and risks of DES exposure.
    The story of Diethylstilbestrol (DES) began in 1938 when British physician and chemist Charles Dodds and his team of scientists made the first synthetic oral form of estrogen. While DES was used widely to prevent miscarriage and related complications in pregnant women, 1970s research has since linked DES exposure to a host of health conditions that affect generations.
    Still, many are uninformed about DES, including health providers. Karen, who shares her insights as a DES daughter, nurse, and advocate, advises the DES-exposed or those concerned about DES exposure to ask providers questions and actively seek information related to DES. At the same time, providers must engage in an ongoing dialogue with patients to become familiarized with their lived experiences and address DES exposure.
    Resources Mentioned in this Episode:
    DES Info 
    NIH website 
    AYR Consulting Group
    National Quality Forum
    The Joint Commission

    • 25 min
    52. Federal Efforts to Uplift Asian American, Native Hawaiian, and Pacific Islander Communities during COVID-19 with Ignatius Bau

    52. Federal Efforts to Uplift Asian American, Native Hawaiian, and Pacific Islander Communities during COVID-19 with Ignatius Bau

    In this episode of the Patient Partner Innovation Community podcast, Desiree Bradley is joined by Ignatius Bau, Health Equity Consultant in San Fransisco, California, to discuss the Presidential Memorandum, ATW’s current work with the Office of Minority Health, and how to get involved.
    Resources Mentioned in this Episode:
    Executive Order On Advancing Racial Equity and Support for Underserved Communities Through the Federal Government
    Memorandum Condemning and Combating Racism, Xenophobia, and Intolerance Against Asian Americans and Pacific Islanders in the United States

    • 18 min

Customer Reviews

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5 Ratings

5 Ratings

Kappatvating ,

Great Podcast

What a great idea and way to help shape and share the full spectrum of operations in medicine. This is a “REAL” podcast using “REAL” patient stories and experiences to help bring the patient voice to the forefront of care.

A must subscribe for anyone in medicine and more over anyone who believes their voice matters in their medical care.

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