The Exhale Podcast Mark Russell

Karen Frankland, Lead Nurse for Education and Support, FeNO by NIOX
NIOX has been at the forefront of FeNO testing for 25 years, and this year, Vitalograph is marking 60 years in respiratory diagnostics expertise.
During these 60 years, Vitalograph has become synonymous with spirometry; and as an organization, it is continually looking at how it can enable better patient outcomes, with accurate, reliable data, through a range of diagnostic solutions.
On today’s conversation, we are exploring Spirometry and FeNO testing. Specifically, how these tests provide physicians with a variety of data to inform asthma care pathways for patients.
Karen Frankland is a primary care respiratory nurse specialist and qualified teacher with a wide range of experience within the N.H.S., occupational health, research, the pharmaceutical industry, and education. I have been involved in education, which is my passion! for approximately 20 years.
Her current role is as Lead Nurse for Education and Clinical Support for The NIOX Group where I am responsible for the design and delivery of masterclass educational events on the topic of asthma and Fractional Exhaled Nitric Oxide Testing (FeNO).
She also works with several other organizations and training providers, delivering training for a range of health care professionals. Topics include asthma, COPD, spirometry and FeNO. Organizations include M&K Update, Primary Care Respiratory Training Centre plus a few pharmaceutical companies.

Kathy Przywara
Vice President of Community at Asthma and Allergy Foundation of America
Today we had a conversation with Kathy Przywara, Vice President of Community at Asthma and Allergy Foundation of America about Chronic Cough and her own experiences with chronic cough.
Kathy Przywara is the Vice President of Community at Asthma and Allergy Foundation of America (AAFA). She has worked in community management since 2005, managing and engaging groups of constituents. Her career has focused on community/patient engagement and support. She has extensive experience in community-building, digital content marketing, and social media.
Ms. Przywara served as the Assistant Community Manager of the Kids with Food Allergies Foundation (KFA) when that organization merged with AAFA in 2013. She brought her community building expertise to AAFA and helped launch AAFA’s award-winning asthma and allergy patient support community in 2016. Under her guidance, AAFA’s two online communities have grown to be the largest patient support communities available for these conditions.
Asthma and Allergy Foundation of America
https://aafa.org/

Toshiaki Kawakami, M.D., Ph.D.
Professor, La Jolla Institute for Immunology Center for Autoimmunity and Inflammation
We spoke with Professor Toshiaki Kawakami or Toshi as his colleagues and students call him. He is one of the leaders of La Jolla Institute for Immunology was established in 1988 by a coalition of leaders from academia and industry. These leaders envisioned a unique and dynamic partnership between basic science and applied research, one that would lead to breakthroughs in the understanding of the immune system and improve human health through the development of treatments and cures for immune system disorders. Dr. Toshia’s lab studies inflammatory diseases such as allergic asthma, food allergies and Crohn’s disease, which have been rising in prevalence for the last several decades. He is particularly interested in histamine-releasing factor (HRF) and its role in promoting inflammation in the lung and gut.
La Jolla Institute for Immunology Center for Autoimmunity and Inflammation Website:
https://www.lji.org/research/research-centers/center-for-autoimmunity-and-inflammation/
 

Teresa Barnes, Chief Executive Warrior
She first became involved with the PF community after losing five family members to IPF. Teresa began her career in journalism and has used those skills as she has navigated the worldwide PF community, seeking out-of-the-box solutions for treating PF. Teresa was a founder of the first IPF patient organization, the Coalition for Pulmonary Fibrosis back in 2001. She has served on multiple boards, including ATS, where she spearheaded multiple advocacy efforts. A member of PF Warriors for five years, Teresa will help us to open doors around the world.
PF Warriors Website
https://pfwarriors.com/

Paula Blonski, President ARDS Alliance
Rick Bressler, ARDS Survivor
Today we had an interesting conversation with Paula Blonski, President-ARDS Alliance and Rick Bressler a patient who had Covid double lung pneumonia, Covid induced ARDS, but he ultimately needed a double lung transplant to survive.  Acute respiratory distress syndrome (ARDS) is an acute, diffuse, inflammatory form of lung injury and life-threatening condition in seriously ill patients, characterized by poor oxygenation, pulmonary infiltration, and acute onset.
ARDS Alliance Website
https://ardsalliance.org/

Annaka Haynes is a nursing student who has had Cystic Fibrosis since she was 6 weeks old. Trikafta developed by Vertex Pharmaceuticals was first approved by the FDA on October 21, 2019. This treatment is a triple combination regimen for cystic fibrosis patients starting at ages 2 years and older who have at least one F508del mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene or a mutation in the CFTR gene that is responsive to Trikafta based on in vitro data.