8 episodes
PV Pod: Stories from the Marrow BloodStream Media
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- Health & Fitness
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5.0 • 13 Ratings
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The PV Pod: Stories from the Marrow is a podcast about Polycythemia Vera (PV) and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PV. Each episode, The PV Pod: Stories from the Marrow strives to provide listeners with critical education, the latest scientific updates, and voices from the community.
Transparency Statement:
The PV Pod: Stories from the Marrow is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
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What to Know about Progression in Polycythemia Vera
On this episode, Dr. Douglas Tremblay from Mount Sinai School of Medicine in New York City discusses progression in polycythemia vera (PV). He elaborates on the transformation of PV into other diseases such as myelofibrosis and acute myeloid leukemia (AML), different ways progression can be defined, and the factors that contribute to the risk of progression. Dr. Tremblay also addresses the significant concern patients have regarding disease progression and the challenges in predicting and preventing it. Furthermore, he explores the role of the JAK2 mutation, inflammation in the bone marrow, and various treatment strategies aimed at controlling the disease and preventing its progression.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions. -
What We’ve Learned So Far About Polycythemia Vera
On this episode, we travel back to our previous episodes to deliver some highlights of what we’ve learned so far. Dr. Prithviraj Bose gives us an overview of polycythemia vera, patient Nick Napolitano discusses his diagnosis, husband and wife team Joe and Patty Monteleone discuss the caregiver/patient relationship, David Wallace talks about his inspiration to create the PV Reporter and Dr. Aaron Gerds talks treatment.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions. -
Polycythemia Vera: Treatment Considerations with Dr. Aaron Gerds
On this episode, we hear from Aaron Gerds, MD of the Cleveland Clinic about what to expect when starting treatment for polycythemia vera. He talks about setting treatment goals, monitoring treatment progress, how to have an open conversation with your doctor, and more on this episode of the PV Pod.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions. -
Self Advocacy & Patient Education
Our guest on this episode is David Wallace, founder of The PV Reporter. Diagnosed with polycythemia vera in 2009, David created this website as an MPN (myeloproliferative neoplasm) resource hub and a way to give back to the community.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions. -
Polycythemia Vera: A Caregiver Experience
On this episode, we’re in conversation with a husband and wife team of Joe and Patty Monteleone. Patty has PV and Joe is her supportive caregiver. We’ll hear about diagnosis both from a patient and supportive caregiver perspective as well as the unique challenges they have experienced.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions. -
Polycythemia vera: A Patient Experience
On this episode, we talk with Nick Napolitano who has polycythemia vera. He talks about his diagnosis, the emotional impact of being diagnosed with PV and some tips on how to deal with this disease.
Transparency Statement:
The PV Cancer Podcast is produced by Believe Limited and made possible by PharmaEssentia. Visit PharmaEssentia.com to learn more.
The following PharmaEssentia-supported program is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any medical decisions.
Customer Reviews
Lovely
This show is a good reminder of how important it is to find your support when faced with a difficult diagnosis, and really helpful to hear about resources and how to advocate for yourself. Just a lovely look into what can be a quite scary and overwhelming journey for people with PV
A great listen to learn from
Educational nuggets with great voice talent!
So creative and informative!
Terrific storytelling for an advocacy podcast. Love the hosts, love the guests!