17 episodes

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.

Thal Pals: The Alpha Beta Revolution BloodStream Media

    • Health & Fitness
    • 5.0 • 12 Ratings

Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia. Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.

    Introducing a New Thal Pal

    Introducing a New Thal Pal

    On this episode, we reintroduce you to NinaMaria Badalamenti as our new co-host of Thal Pals. NinaMaria is a patient advocate who has previously appeared on the show. Alongside Dr. Kevin Kuo, the two discuss what’s new in thalassemia.
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts featured in this episode have been compensated for their time.
     

    • 30 min
    Replay: Cooley’s Anemia Foundation Family Conference: A Teen Conversation

    Replay: Cooley’s Anemia Foundation Family Conference: A Teen Conversation

    On this episode we’re live in Los Angeles, California from the Cooley’s Anemia Foundation family conference. Co-hosts Laurice Levine and Ralph Colasanti host a panel of teenagers in conversation about their unique experiences with thalassemia. 
     
    To learn more about Cooley’s Anemia Foundation, click this link.
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.
     

    • 45 min
    Replay: Dr. Nica Cappellini - Mother of Thalassemia

    Replay: Dr. Nica Cappellini - Mother of Thalassemia

    Dr. Kevin Kuo and Laurice Levine talk to the “mother of Thalassemia” Dr. Nica Cappellini on today’s show. 
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.
     

    • 40 min
    Thalassaemia International Federation Guidelines

    Thalassaemia International Federation Guidelines

    On this episode, we speak with Dr. Androulla Eleftheriou, the Executive Director of the Thalassaemia International Federation as well as Dr. Khaled Musallam, Chief Research Officer at the Burjeel Hospital at Burjeel Medical City in Abu Dhabi, UAE. We discuss the Thalassaemia International Foundation guidelines on non-transfusion dependent thalassemia.
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.
     

    • 41 min
    Cooley’s Anemia Foundation Family Conference: A Teen Conversation

    Cooley’s Anemia Foundation Family Conference: A Teen Conversation

    On this episode we’re live in Los Angeles, California from the Cooley’s Anemia Foundation family conference. Co-hosts Laurice Levine and Ralph Colasanti host a panel of teenagers in conversation about their unique experiences with thalassemia. 
     
    To learn more about Cooley’s Anemia Foundation, click this link.
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guests featured in this episode have been compensated for their time.
     

    • 45 min
    Thalassemia: Perspectives from Thailand with Dr. Vip Viprakasit

    Thalassemia: Perspectives from Thailand with Dr. Vip Viprakasit

    SHOW NOTES FOR PODCAST PLAYERS:
    On this episode, Dr. Kevin Kuo sits down with Suwit Sumponpan, a medical science liaison working with Agios Pharmaceuticals and professor Vip Viprakasit, M.D. to discuss treating thalassemia internationally. Note: a portion of this interview is conducted in Thai. For the English portion, please see the time in the show notes.
     
    SHOW DESCRIPTION
    Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by Thalassemia.  Each episode, Thal Pals strives to provide listeners with critical education, the latest scientific updates, and voices from the Thalassemia community.  
     
    TRANSPARENCY STATEMENT 
    Thal Pals: The Alpha Beta Revolution Podcast is made possible by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. The following Agios-supported programs are intended for informational and educational purposes only and are not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Hosts and guest featured in this episode have been compensated for their time.

    • 36 min

Customer Reviews

5.0 out of 5
12 Ratings

12 Ratings

aony21 ,

Fully Relatable

Episodes are mostly relatable with a beta thalassemia patient. I like the way how doctors discuss about disease burden. For me yes it burden in some cases but same time it motivate me to give more than 100% in life.

Hopscotch03 ,

Great mix of science and patient insights.

Listening to the first episode and really impressed with the dialogue! Open discussion about the state of thalassemia and the importance of partnering and connecting to make a difference. Great stuff!

Top Podcasts In Health & Fitness

On Purpose with Jay Shetty
iHeartPodcasts
Huberman Lab
Scicomm Media
The School of Greatness
Lewis Howes
Uncared For
Lemonada Media
Passion Struck with John R. Miles
John R. Miles
Pursuit of Wellness
Mari Llewellyn