The Project Sleep Podcast

Project Sleep
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The Project Sleep Podcast

Project Sleep is a 501(c)(3) non-profit organization dedicated to raising awareness and advocating for sleep health, sleep equity, and sleep disorders. The Project Sleep Podcast is hosted by our President.& CEO, Julie Flygare. We’re glad you’re here as we work together toward making sleep cool! https://project-sleep.com/podcast/

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  1. Narcolepsy + Art - Narcolepsy Nerd Alert Ep. 17

    EPISODE 17

    Narcolepsy + Art - Narcolepsy Nerd Alert Ep. 17

    What’s your creative outlet? In this Narcolepsy Nerd Alert, an incredible panel of artists from around the world share their work and discuss the relationship between creative expression and living with narcolepsy.   About Our Guests:   Ulrike Nordquist is a mother of two, photographer, painter, and Rising Voices speaker living in Sweden. She developed type 1 narcolepsy with cataplexy at the age of 38 after receiving the Pandemrix H1N1 vaccine. During the years coping with her new situation, she made her passion for painting and photography into a business that fit her schedule. Ulrike conceptualizes her way of thinking: “I use self-luminous colors to lighten up dark parts in my paintings!” Silence Hands is a mother of two and a multidisciplinary artist from Tennessee. She was diagnosed with type 1 narcolepsy with cataplexy at age 35 and wishes to motivate others to listen closely to what their bodies are telling them. As a speaker with Project Sleep’s Rising Voices program, Silence shares her experiences with others to improve awareness of narcolepsy and hopes to undo misconceptions of this neurological condition. Shu Horiike is a freelance designer, web engineer, and digital art director living in Japan. His artwork expresses the specific feelings of narcolepsy and hypersomnia, with the fear of memories being sliced out, anxiety of shaking vision, distorted sounds, and feeling uncomfortable under the gaze of others. Shu is a member of  the Japan Narcolepsy Association, and hopes to use his art to raise awareness of narcolepsy in Japan. Jonathan Correa is a photography hobbyist and outdoor enthusiast. He was diagnosed with narcolepsy in 2014, more than 10 years after initial symptoms. Jonathan is a lifelong resident of the Shenandoah Valley in Virginia. Dana Harel lives in Israel with her husband and two children. She is a developmental psychologist and an artist. She was diagnosed with type 1 narcolepsy with cataplexy at age 34, after living with symptoms since she was 18. Her artwork primarily involves paper craft, scrapbooking and mixed media.  Jayden Rowland is an art major at Oklahoma Community College. They were diagnosed with type 1 narcolepsy with cataplexy at age 15 and have been raising awareness ever since. As an artist and speaker with Project Sleep’s Rising Voices program, Jayden conveys the struggles of not being taken seriously, achieving a diagnosis, and their ongoing battle with depression and self-acceptance.   Download the Narcolepsy + Art Toolkit Toolkit for more resources: https://project-sleep.com/narcolepsy-nerd-alert-narcolepsy-and-art/    The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy.

    43 min
  2. Could I Have Narcolepsy - Narcolepsy Nerd Alert Ep. 18

    EPISODE 18

    Could I Have Narcolepsy - Narcolepsy Nerd Alert Ep. 18

    Wondering if you or a loved one could have narcolepsy? Sleep medicine specialist Dr. Lindsay McCullough, MD joined us to discuss symptoms, diagnosis, and treatment and share her own journey to being diagnosed with narcolepsy.   About Our Guest:  Dr. Lindsay McCullough, MD is a sleep medicine specialist, assistant professor of sleep medicine, and associate program director of the sleep medicine fellowship at Rush University Medical Center in Chicago, IL. After struggling with unexplained daytime sleepiness and misunderstanding from those around her for ten years, she was diagnosed with type 2 narcolepsy without cataplexy as a fourth-year medical student. Dr. McCullough shared her story as a sleep physician living with narcolepsy in the Fall 2022 issue of the American Academy of Sleep Medicine’s member magazine, Montage. Download the Could I Have NArcolepsy? Toolkit Toolkit for more resources: https://project-sleep.com/narcolepsy-nerd-alert-could-i-have-narcolepsy/ The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

    57 min
  3. Coping with Cataplexy - Narcolepsy Nerd Alert Ap. 19

    EPISODE 19

    Coping with Cataplexy - Narcolepsy Nerd Alert Ap. 19

    Cataplexy is a unique form of muscle weakness experienced by some people with narcolepsy, but how can you recognize this symptom? What are the emotional triggers? And how do you cope with cataplexy? During Narcolepsy Nerd Alert: Coping With Cataplexy, sleep medicine physician Dr. Katie Sharkey and Rising Voices speaker Katie Mehin shared their insights.   About our Guests:  Dr. Katie Sharkey, MD, PhD is a sleep medicine physician and associate professor of Medicine and of Psychiatry & Human Behavior at the Alpert Medical School of Brown University. She earned her MD-PhD and completed a combined internal medicine and psychiatry residency at Rush University in Chicago, IL. Dr. Sharkey is a recognized expert on sleep and circadian rhythms, particularly as they relate to mood regulation and women’s health. She is an Associate Editor of Behavioral Sleep Medicine and Frontiers in Sleep, and serves on the editorial board of Sleep Health.   Katie Mehin is a project analyst for an educational tech company specializing in empowering adult learners to thrive in higher education. Outside of work, she enjoys spending time with her husband and two elementary-age sons. She was diagnosed with narcolepsy with cataplexy as a college sophomore, almost five years after the initial onset of her symptoms. As a trained speaker with Project Sleep’s Rising Voices program, Katie hopes to spread awareness of this neurological sleep disorder to help others in obtaining more timely diagnoses.   Coping With Cataplexy Toolkit coming soon!   The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

    52 min
  4. Narcolepsy + Relationships - Narcolepsy Nerd Alert Ep. 20

    EPISODE 20

    Narcolepsy + Relationships - Narcolepsy Nerd Alert Ep. 20

    In this Narcolepsy Nerd Alert we discuss everything from dating and early stages to long-term partnerships and marriage, with people living with narcolepsy and a supporter.   About our Guests:  Taylor Dillon is a Filipina-American NERD who loves hiking and dancing in Los Angeles. She was diagnosed with narcolepsy at age 18, and now creates educational resources, the Narcolepsy Nerd Alert toolkits with Project Sleep. As a speaker with Project Sleep’s Rising Voices program, Taylor shares her story to increase public understanding of narcolepsy and decrease stigma around sleep disorders. Lindsay Scola is an entertainment impact strategist and outdoor enthusiast living in Los Angeles. She was diagnosed with narcolepsy at 35 and is now a speaker with Project Sleep’s Rising Voices program. Lindsay shares her story of experiencing mysterious symptoms and advocating for her diagnosis to help others with sleep related issues get answers and seek the treatment they need. Bob Cloud is a retired lawyer living in Northern Vermont. He grew up in Ohio and married an Indiana girl, Margaret, with whom he has two children. His excessive sleepiness, cataplexy, and related symptoms appeared at age 33, during his first year of night law school. Bob practiced family, criminal, and general law for 30 years, during which time he learned to live with narcolepsy. As a Rising Voices speaker, Bob shares how supportive family, creative doctors and pharmaceutical providers, and understanding friends stood by him as a husband, father, lawyer, patient, and occasional fisherman with narcolepsy. Margaret Cloud has been married to Bob for 52 years. Following a career of 30 years in clinical laboratory leadership for major medical centers and national labs, she moved with Bob to northern Vermont. Margaret’s insights into supporting a spouse with narcolepsy raise issues not often discussed by individuals, families, and professionals. Jeff Discount is a father of three who enjoys a career as a sales engineer and business development consultant, and has a passion for building both his physique and meaningful relationships. He was diagnosed with narcolepsy at age 40, which provided considerable challenges in maintaining high levels of fitness and balancing important facets of his life. Jeff encourages other people with narcolepsy to connect and learn from each other, and is thrilled to share some of the ways he has overcome his own challenges with this neurological condition.   Narcolepsy + Relationships Toolkit Coming Soon!   The Narcolepsy Nerd Alert series invites listeners to dive deeper into specific topics relevant to living with narcolepsy. project-sleep.com/narcolepsy-nerd-alert/

    54 min
See All Season 4 (4)

5
out of 5
28 Ratings

About

Project Sleep is a 501(c)(3) non-profit organization dedicated to raising awareness and advocating for sleep health, sleep equity, and sleep disorders. The Project Sleep Podcast is hosted by our President.& CEO, Julie Flygare. We’re glad you’re here as we work together toward making sleep cool! https://project-sleep.com/podcast/

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