TSC Now, a podcast from the TSC Alliance, features interviews with clinicians, researchers, TSC Alliance staff and others on topics like tuberous sclerosis complex (TSC) research, epilepsy surgery options, educational advocacy, TSC-associated Neuropsychiatric Disorders (TAND), seizure control and more. Look for new episodes every month.
Episode 31: The Present and Future of TSC & LAM Research
In the final episode of TSC Now in 2021, host Dan Klein recaps the 2021 Virtual International TSC & LAM Research Conference: Driving Discoveries Beyond Boundaries, presented by Greenwich Biosciences and the Rothberg Institute of Childhood Diseases and co-hosted by the TSC Alliance® and The LAM Foundation. The conference brought together 179 people from 18 countries including … Continue reading Episode 31: The Present and Future of TSC & LAM Research →
Episode 30: Infantile Spasms Awareness Week 2021
In Episode 30 of TSC Now, host Dan Klein kicks of Infantile Spams Awareness Week 2021, an initiative from the Infantile Spasms Action Network (ISAN) that runs December 1-7. ISAN is a collaboration of 32 national and international entities, including the TSC Alliance, focused on raising awareness for infantile spasms, a devastating type of seizure … Continue reading Episode 30: Infantile Spasms Awareness Week 2021 →
Episode 29: The TSC Navigator
In Episode 29 of TSC Now, host Dan Klein highlights TSC Navigator, an easy-to-use, interactive online tool to help guide individuals and families through the complexities of tuberous sclerosis complex (TSC) across the lifespan, proactively manage their care and live their fullest lives. TSC Navigator was launched in October 2021 and includes sections on “Beginning … Continue reading Episode 29: The TSC Navigator →
Episode 28: Comedy for a Cure® 2021!
In a very special episode of TSC Now, host Dan Klein provides a sneak peek of the 19.5 Annual Comedy for a Cure® on Sunday October 17 at 7:30 pm Eastern/ 4:30 pm Pacific! This will be a hybrid event, so if you live in Southern California and are fully vaccinated you can attend in-person … Continue reading Episode 28: Comedy for a Cure® 2021! →
Episode 27: Going Back to School and Caring for the Caregiver
In Episode 27 of TSC Now, host Dan Klein learns how parents can prepare for the start of a new school year despite the ongoing pandemic. Dan also talks to a licensed professional counselor to get advice on how parents and caregivers can cope with the stress, anxiety and trauma the last year and a half … Continue reading Episode 27: Going Back to School and Caring for the Caregiver →
Episode 26: The Road to Newborn Screening in TSC
In Episode 26 of TSC Now, host Dan Klein takes a deep dive into one of the newer and exciting frontiers in TSC research: Newborn Screening. Last Fall, the TSC Alliance hosted an Innovation Workshop that brought together TSC researchers, newborn screening experts and other nonprofits with experience advocating for other diseases to be included … Continue reading Episode 26: The Road to Newborn Screening in TSC →
As the father of a recently diagnosed daughter with TSC, this podcast was comforting for me. Keep up the great work.