10 episodes
What about PS? A Poland Syndrome Podcast Team PIP-UK
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- Health & Fitness
What about PS? Hosted by Giselle Barbosa, PIP-UK Ambassador, Entrepreneur and Athlete. The What about PS? podcast aims to shine a light on Poland Syndrome, a rare disease, and the lived experience of the Poland Syndrome community.
Each episode, Giselle will explore inclusive and varied experiences of people living with Poland Syndrome with a variety of guests, from Paralympian Kim Daybell, Former Cricketer Lewis Hatchett, Australian Gymnast Clay Mason Stephens to medical professionals, bra companies and the most amazing members of our community. With engaging interviews, thought-provoking discussions, and the inclusive experience of the Poland Syndrome Community. The What about PS? podcast promises to be a must-listen for anyone curious about Poland Syndrome. Including the Poland Syndrome community, their friends and families, medical professionals and the rare disease community.
"We're thrilled to be launching this new podcast series and can't wait to share it with our audience," said Sam Fillingham CEO PIP-UK. "With Giselle Barbosa’ss expertise and the insights of our guests, we believe this podcast will become a valuable resource for the Poland Syndrome Community and medical professionals, providing them with the information and inspiration they need to live well with Poland Syndrome and find out more about treatment.
Listeners can tune in to the What about PS? podcast on Apple,Spotify, Amazon, TuneIn + Alexa. For more information and to listen to the latest episodes, visit pip-uk.org.
About PIP-UK. PIP-UK is a registered charity. Our activities include 121 engagements with individuals and families so we work directly with those affected. We also host community events that bring those affected together. We also run advocacy & wellbeing services and clinics with health care professionals to encourage their involvement.
There are no specialist doctors for PS, so for our community this means diagnosis & treatment is difficult. Parents are accused of mistreating a child when shoulders are hypermobile, teenagers go through years of torment, and adults live with debilitating mental health issues due to a lifetime of hiding their bodies. Our work is about supporting this marginalised community and for them to be treated equally against other disabilities, raise awareness and connect the community.
Poland Syndrome is rare limb difference you are born with, the body is affected on one side where muscles, bones or organs are absent or underdeveloped.
For media enquiries, please contact Sam Fillingham, CEO at PIP-UK. Contact on 07708 209874 and sam.pipuk@gmail.com.
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S2E3 Unveiling Confidence: Caron Mills' Runway of Resilience with Poland Syndrome
In this episode, we step into the spotlight with Caron Mills, a beacon of courage and confidence in her journey with Poland Syndrome. Join us as Caron shares her story of self-discovery, community, and the runway of resilience she's walked, just weeks before strutting her stuff in a groundbreaking fashion show dedicated to celebrating diversity.**Episode Highlights:**1. **Caron's Journey with Poland Syndrome:** - Caron unfolds her tale of triumph over adversity, recounting her pat...
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S2E2 From Unaware to Unifying: Paul's Journey with Poland Syndrome Parenthood and PS Fest
In this episode, we delve into Paul Preston's extraordinary journey, from a world of unfamiliarity to becoming a driving force in the Poland Syndrome community. Pauls world was forever changed when his son was born with Poland Syndrome. Join us as we explore his path of discovery, advocacy, and unity, ignited by the arrival of his son William in 2022.**Episode Highlights:**1. **A Father's Awakening:** - Witness Paul's awakening to Poland Syndrome when his son enters the world, pro...
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Season 2 - Ep 1 Scotland's Poland Syndrome Advocate: Jen's Inspiring Journey
Welcome to What about PS? Podcast the show where we delve into remarkable stories and journeys that inspire us all. I'm your host, Giselle, and today we have a very special episode in honor of Rare Disease Day.Join us as we shine a light on Jen's extraordinary journey to diagnosis in Scotland for her son and her unwavering commitment to educating health care professionals in Scotland about Poland Syndrome. Jen's story is not just about resilience; it's about turning challenges into opportunit...
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Ep 6 Meet Gunnar Anderson
Welcome to What about PS? Poland Syndrome Podcast, the show where we share inclusive and varied experiences of people living with Poland Syndrome. I'm your host, Giselle Barbosa and today we're diving into getting to know Gunnar Anderson. Whether you're a longtime listener or a newbie, we're so glad you're here.On today's episode, we're joined by Gunnar Anderson, who in his own words "Growing up, I was a skinny kid and I was more interested in acting than sports" and in 2014 Gunnar became a c...
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Ep 5 A Parents Perspective
Welcome to What about PS? A Poland Syndrome Podcast, the show where we share inclusive and varied experiences of people living with Poland Syndrome.I'm your host, Giselle Barbosa, and today we're diving into the Parents perspective. Whether you're a longtime listener or a newbie, we're so glad you're here.On today's episode, we're joined by Michelle Ridley, mum to Everleigh and Ailsa who will be talking us through their families experience with diagnosis of Poland Syndrome, reaching out for s...
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Ep 4 Meet Brian Ferguson
Welcome to What about PS? A Poland Syndrome Podcast, the show where we share inclusive and varied experiences of people living with Poland Syndrome. I'm your host, Giselle Barbosa, and today we're diving into getting to know Brian Ferguson and his journey with Poland Syndrome, music and life. Whether you're a longtime listener or a newbie, we're so glad you're here.On today's episode, we're joined by our volunteer Brian Ferguson. , who talks his earliest memories of surgery in childhood,...