83 episodios

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

Celiac Straight Talk Beyond Celiac

    • Salud y forma física
    • 5,0 • 1 valoración

Let's get real about living with celiac disease. The ups, the downs and the temptations. Hear real stories from real people with the autoimmune disease.

    83: Talking About Celiac with Liz Purvis from @yeet.that.wheat

    83: Talking About Celiac with Liz Purvis from @yeet.that.wheat

    Liz (@yeet.that.wheat) has been living with celiac disease for 4 years and creates content focusing on health equity, advocacy, and living a fulfilling gluten free life. She uses her experience as a Black woman with celiac to talk about being gluten free through an intersectional lens. Through social media, she aims to create a supportive community for folks who are navigating living gluten free through educational posts, recipes, product recommendations, restaurant reviews, travel, tips and tricks, and of course, memes. 
    In this casual conversation, Liz chats about her jump to social media upon her celiac disease diagnosis, and how she hopes her page can help others find community while experiencing a chronic condition. Liz also shares an exciting, nationwide project she is working on. You can follow Liz on Instagram, Tiktok, and Facebook, and soon to be Youtube!
    Thanks so much to Takeda for sponsoring this episode of Celiac Straight Talk.
    To hear more episodes of Celiac Straight Talk, head to https://www.beyondceliac.org/news-events/podcast-series/

    • 56 min
    82: Minisode with Alice Bast and Casey Walters

    82: Minisode with Alice Bast and Casey Walters

    In this minisode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast speaks with Casey Walters about the challenges of having a young child with celiac disease.
    Alice’s personal journey as a celiac disease survivor and champion for research in this field, coupled with her prior experience of more than two decades in healthcare business development and marketing, taught her that patients need to be educated and empowered with solid information in order to make decisions about their desired health outcomes.

    Casey is a PR professional with experience working in the consumer technology space handling media relations, message and platform development, event management and trade show execution, product launches, content creation and development of traditional and social media relations campaigns. Her experience spans a wide variety of consumer and technology brands.
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 
     

    • 15 min
    81: A 90s Retrospective with Amy Ratner

    81: A 90s Retrospective with Amy Ratner

    Amy Ratner joined Beyond Celiac in 2016 as the medical and science news analyst to provide coverage of celiac disease research news. She has extensive experience reporting on and writing about celiac disease. She was editor-in-chief, associate editor and contributing editor for 23 years at Gluten-Free Living magazine, where her work touched on all topics related to celiac disease, including lifestyle, diet, nutrition, and medical and research developments.
    When Amy’s daughter was diagnosed with celiac disease as a toddler 31 years ago, she was set on a path that combined her commitment to improving life for those with celiac disease with her journalism training. Tune in today to hear Amy and Social Media Coordinator Lauren Wallach discuss how far celiac disease research and access to gluten-free food has come in the last two decades!
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 

    • 42 min
    80: Town Hall with Dr. Debra Silberg and Dr. Jordan Dubow

    80: Town Hall with Dr. Debra Silberg and Dr. Jordan Dubow

    In winter of 2023, Beyond Celiac welcomed Debra Silberg, MD, PhD, FACG as our new Chief Scientific Officer and Jordan Dubow, MD, as our new Chief Medical Officer. In this Town Hall, Dr. Silberg and Dr. Dubow unpack their backgrounds and what’s in store for Beyond Celiac research in 2024, as well as a Q&A segment about celiac disease.
    Discussions include topics such as the neurological impact of celiac disease, explanations of grant funding, and clinical trials for treatments.
    This event was possible thanks to our sponsor, Takeda, and the ILLUMINATE trial. Learn more at the Illuminate Study website.
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 

    • 59 min
    79: New Insights into How Gluten Causes Damage with Dr. Arnold Han

    79: New Insights into How Gluten Causes Damage with Dr. Arnold Han

    Arnold Han, MD PhD, of Columbia University, was awarded the 2022 Beyond Celiac and SSCD Early Career Investigator Grant to investigate the role of CD8 T-cells in celiac disease. Thus far, Dr. Han’s innovative research has found more precise ways that gluten sets off damage to the intestine in those who have celiac disease, which he believes could help in the development of innovative approaches to finding a treatment. In our discussion, Han reveals what he’s discovered so far through this research and where he hopes it leads in the future.
    Special thanks to our friends at Crunchmaster Crackers for sponsoring this event!
    To hear more episodes of Celiac Straight Talk, visit https://www.beyondceliac.org/news-events/podcast-series/. 

    • 59 min
    78: Interview with Jackson Dunckel

    78: Interview with Jackson Dunckel

    In this episode of Celiac Straight Talk, Beyond Celiac CEO Alice Bast interviews Jackson Dunckel, CFO of AMG, an eco-friendly manufacturing company. Jackson shares his celiac story in a candid conversation, from his delayed diagnosis in 2002 to managing his health today. In particular, Jackson shares his perspective as a long-time diagnosed man managing this serious genetic autoimmune disease.

    • 26 min

Reseñas de clientes

5,0 de 5
1 valoración

1 valoración

tash grocutt ,

Clarifying my Thoughts

Fantastic and easy to follow.

Sad as I think my father was a celiac but died at 52 undiagnosed.
Listen to this podcast has given me a clearer picture to help newly diagnosed celiacs on their journey

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