46 min

3 Perspectives on Facing a Rare Disease: A Patient, a Caregiver, and an Expert Discuss Diagnosis and Treatment of Pulmonary Fibrosis Rare Genomics / RareShare Podcast Series: Ask the Expert & Patient Navigation

    • Health & Fitness

Hear about rare disease diagnosis, treatment, and quality of life from the perspective of Pulmonary Fibrosis patient Jim Carns, his wife and caregiver Karen Carns, and Dr David Lederer, an expert from the Pulmonary Fibrosis Foundation who is an Associate Professor at Columbia University. Jim tells us his diagnosis and treatment story, Karen explains life as a caregiver or “care partner,” while Dr Lederer explains the causes, treatment options, and upcoming Pulmonary Fibrosis research. Visit RareShare.o

Hear about rare disease diagnosis, treatment, and quality of life from the perspective of Pulmonary Fibrosis patient Jim Carns, his wife and caregiver Karen Carns, and Dr David Lederer, an expert from the Pulmonary Fibrosis Foundation who is an Associate Professor at Columbia University. Jim tells us his diagnosis and treatment story, Karen explains life as a caregiver or “care partner,” while Dr Lederer explains the causes, treatment options, and upcoming Pulmonary Fibrosis research. Visit RareShare.o

46 min

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