Ten-minute podcasts to help families and friends navigate the unknown in caring for people with dementia. Each episode features firsthand stories from people with personal experience caring for their loved ones, and experts in specialized fields. Topics organized by four categories: planning, living well, community, and challenges. Transcripts and other resources on www.bobsmarathon.com.
Lorri Bernstein, MSW, Founder of Senior Living Specialists of Philadelphia and Chicago, tells us about steps to consider in moving our loved ones from home to a care community.
Katie Brandt, Director of Caregiver Support Services and Public Relations for the Massachusetts General Hospital Frontotemporal Disorders Unit, shares the emotional challenges of navigating care for both her father and her husband.
Clinical Trials: An Inside Story
Judith Johanson, MADRC Longitudinal Cohort Coordinator at Massachusetts General Hospital, describes her experience with her husband Steve, who was diagnosed with early-onset Alzheimer's, in two types of clinical trials. She talked about how Steve wanted to contribute to research far beyond his time on earth.
The Triadic Model: Shedding Light on Challenging Behaviors
Rachel Wiley, Occupational Therapist, explains how dementia-related behaviors can be better understood by considering the person with dementia, the caregiver, and the environment in a given situation, and how this analysis can point to mitigation strategies.
Sheltering Walls: Palliative and Hospice Care
Jennifer Fargo Lathrop, Spiritual Care Provider from the outpatient palliative care program of the Palo Alto Medical Foundation, describes palliative and hospice care, and her role as a spiritual care provider for people with dementia.
Alexandra Morris, gerontologist and Geriatric Care Manager, offers practical and compassionate strategies for coping with a common issue challenging Alzheimer’s caregivers: repetitive behavior.
Bob’s last marathon
This was very helpful and informative for all family members of an Alzheimer’s patient.
Lena’ s tone was warm and the examples of what she did in Bob’s daily schedule were helpful. Also the order in how to add or change activities was helpful. Bob was scheduled and participating till the end.