214 episodes

Parents share their journeys and experiences related to having a child with an illness or medical condition. These powerful, and sometimes emotional, stories offer connection in what can typically feel like an isolating world. Visit www.childlifepodcast.com or email info@childlifepodcast.com to share your story.

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist Katie Taylor, Certified Child Life Specialist

    • Health & Fitness
    • 4.9 • 132 Ratings

Parents share their journeys and experiences related to having a child with an illness or medical condition. These powerful, and sometimes emotional, stories offer connection in what can typically feel like an isolating world. Visit www.childlifepodcast.com or email info@childlifepodcast.com to share your story.

    Healing Without Surgery: Umbilical Hernia Solutions from a Physical Therapist

    Healing Without Surgery: Umbilical Hernia Solutions from a Physical Therapist

    What if we could prevent more kids from having to have invasive surgery? During this episode, we are joined by Katie Corrado, who invented a product that works as an alternative to surgery for babies and children. Tune in to hear how her first-hand experience of watching her child struggle with an umbilical hernia led her to an innovative solution that she now offers to other families facing the same challenge. You’ll also learn why Katie is an advocate for proactive rather than reactive medical solutions and how her passion for connecting with kids led her to work as a Physical Therapist rather than a Paediatrician. Join us today to hear all this and more. 
    Watch the episode on YouTube
    Key Highlights:
     
    The Penn State Dance-Off Fundraiser and all the connections it facilitates.
    Katie’s journey to becoming a Doctor of Physical Therapy with a Board Certification in Pediatrics.
    The story of an out-of-the-box solution that Katie developed to resolve her son’s umbilical hernia, now known and sold as The Navel Cradle. 
    Differentiating between reactive and proactive medical care and testing non-invasive solutions.
     
    Quotes:
     
    “The resiliency of children is just unmatched and it is amazing to be a part of that.” — Katie Corrado [0:11:50]
     
    “The idea that the best advice to me was to do nothing [about my son’s hernia] was awful. I felt so helpless.” — Katie Corrado [0:24:46]
     
    “Just because there isn’t a treatment for something yet doesn’t mean that there’s never going to be one.” — Katie Corrado [0:27:41]
     
    Resources Mentioned:
     
    Kate Corrado’s LinkedIn: https://www.linkedin.com/in/cathlyn-corrado-pt-dpt-pcs-00305326/
    The Navel Cradle: https://www.navelcradle.com/
    Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you.
    Learn 6 Positions to Help Kids Feel Comfortable and Safe
    Here are some of our favorite affiliates that help promote positive coping for kids:
    10% off Coping Kits and other select merchandise at Present Over Perfect
    Meet the host: 
    Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
    Instagram.com/childlifeoncall
    Facebook.com/childlifeoncall
    linkedin.com/in/kfdonovan
     

    • 33 min
    206: Founder's Vision: Katie's Journey, Child Life Tech, Future Insights

    206: Founder's Vision: Katie's Journey, Child Life Tech, Future Insights

    In this special episode of Child Life On Call, we flip the script as Emily Martinec interviews our very own founder, Katie Taylor. Dive into Katie's journey from child life specialist to tech entrepreneur, exploring the roots of Child Life On Call, the challenges and triumphs of building a company, and how her upbringing shaped her mission to support families and healthcare professionals alike.
    "Child Life On Call is not a technology replacement for child life specialists... It's a tool to enhance and expand what Child Life Services is." — Katie Taylor
    Episode Highlights:
    Katie's personal story and the pivotal moments that led to her career as a child life specialist and entrepreneur. The evolution of Child Life On Call, including its challenges, successes, and the impact it aims to have on healthcare experiences for families. Insights into the future of the child life profession and how technology can play a role in enhancing family-centered care. Resources Mentioned:
    Child Life On Call app and website: A hub for resources, support, and community for families navigating healthcare experiences. ACLP (Association of Child Life Professionals): Mentioned in the context of the child life profession's growth and challenges. Katie emphasizes the importance of support, both within families and the healthcare community, to navigate the complexities of medical experiences. She highlights the role of Child Life On Call in empowering families and professionals with resources and support.
    Explore Child Life On Call's resources, join the Child Life Circle for professional support, and share their stories to strengthen the community. Visit Child Life On Call to learn more and get involved.
    This episode is a testament to the power of resilience, innovation, and community in transforming healthcare experiences for children and families.
    Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you.
    Learn 6 Positions to Help Kids Feel Comfortable and Safe
    Here are some of our favorite affiliates that help promote positive coping for kids:
    10% off Coping Kits and other select merchandise at Present Over Perfect
    Meet the host: 
    Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
    Instagram.com/childlifeoncall
    Facebook.com/childlifeoncall
    linkedin.com/in/kfdonovan
     



     

    • 40 min
    205: How to Support Kids who are Grieving, Bittersweet Relationships & Personal Loss

    205: How to Support Kids who are Grieving, Bittersweet Relationships & Personal Loss

    In this episode, we're honored to have Jessica Correnti, a certified child life specialist and a bereaved mother, share her profound insights on grief. Jessica's dual perspective offers a rich understanding of the multifaceted nature of grief beyond the loss of a loved one. She discusses her personal journey, the importance of recognizing and naming grief in children, and how this awareness can empower kids to navigate their emotions.
    Key Highlights:
    Jessica's background as a child life specialist and how her personal loss has shaped her professional and personal life.
    The concept of "grief bombs" and the physical manifestations of grief.
    How grief evolves with children as they grow, and the importance of reprocessing their emotions at different stages of development.
    The significance of creating space for children to express and process grief through activities and conversations.
    Jessica's contributions to the field through her books and private practice, aim to enhance grief literacy among children and adults.
    Take a look at Katie’s favorite books to help kids grow, thrive and learn!
    Resources Mentioned:
    Jessica Correnti's Instagram: @KidsGriefSupport
    Download 38 Activities to Help Grieving Kids Here!
    Website: kidsgriefsupport.com
    ABCs of Grief series by Jessica Correnti.
    For anyone looking to deepen their understanding of child grief support and the power of connection through shared experiences, this episode is a must-listen. Join us in exploring the complexities of grief with empathy, knowledge, and hope.
    Other recommended episodes on this topic:
    Episode 197 | James’ Story - 5 Years with a Remarkable Son (tw: death) 
    Episode 173 | Dr. Korie Leigh – What Does Grief Feel Like?
    Episode 152 | Kelly’s Story - A daughter with epilepsy (tw: death) 
    And more here.

    _____
    About Katie Taylor, CCLS and Child Life On Call:
    Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she’s served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys.
    Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures
    Instagram | LinkedIn | Amazon 
     

    • 35 min
    204: Caregiver Isolation, Transitioning to Adult Special Needs, and Becoming CapeAble - Marna's Story

    204: Caregiver Isolation, Transitioning to Adult Special Needs, and Becoming CapeAble - Marna's Story

    “Millie's journey has taken me to the end of myself, but it's been the most beautiful beginning of understanding humanness and how to be compassionate and how to really be kind to other people and take notice that the story that is their life may not be what you see.” How does trauma affect the whole family, and how can we show compassion to adults with special needs?
    One thing I have learned about throughout my career as a child life specialist and have heard from many families on this podcast is the impact that having a child with disabilities and the societal stigma can have on a family.
    Today we get to chat with Marna Pacheco, a mother and inventor who understands this impact all too well. She and her husband have two children, one of whom, Millie, has special needs.  Marna shares with us the challenges of adopting a child with trauma and special needs, such as the way trauma affects a family, finding therapies, and navigating the medical system. 
    She shares how parenting a special needs child has both challenged her and shifted her perspective over the years. Marna has continued to empower communities to support individuals with special needs. Being a 24/7 caregiver is not an easy job, Marna describes it as “predictably unpredictable”. Now at almost 18, Millie is transitioning into adulthood which has presented the Pacheco family with a whole new set of challenges. 
    “It is a huge gap that is missing for the adult special needs community of how the caregivers are being supported in this to help our children navigate the world and thrive. I mean, she should be given every opportunity to thrive as an adult.” Aside from being a committed and resilient parent, Marna is also a businesswoman who created CapeAble Weighted Products made with smart weight technology. Her invention was inspired by Millie after weighted products were recommended by an occupational therapist to help regulate her nervous system and feel safe. After searching through weighted products and trying many out, Marna saw a lack of dignified, fashionable, and practical options. 
    The resources mentioned in this episode are:
    CapeAble Weighted Products,
    Diagnosis resources 
    Robyn Gobbel's podcast Big Baffling Behaviors Books on trauma and brain development by Dr. Bruce Perry, Dr. Stephen Porges, Dr. Dan Siegel About Katie Taylor, CCLS and Child Life On Call:
    Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she’s served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys.
    Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures
    Instagram | LinkedIn | Amazon

    • 39 min
    203: 12 Years to Diagnosis, Understanding Four Key Emotional Reactions, and Channeling Her Story into Positive Action - Jessica's Story

    203: 12 Years to Diagnosis, Understanding Four Key Emotional Reactions, and Channeling Her Story into Positive Action - Jessica's Story

    “If you have a question, ask it. You are the parent, you need to know” -  Jessica Siddi-Sewart 
    How can medical parents use their experiences to promote action and advocacy?
    As a child life specialist, I know that there is not one "normal" or "best" reaction for a parent when their child receives a medical diagnosis.
    Today's guest, Jessica Siddi-Sewart and she helps us reflect on the different stages parents go through when facing a medical diagnosis for their child. She is also a mother of three, a paralegal, and a business owner.
    I had the pleasure of meeting Jessica during our time at the American Academy of Pediatrics Conference this past October and was instantly drawn to her products and knew I wanted her to join me on the Child Life On Call podcast. Her company Puffaluffs Inc. was inspired by a personal experience with one of her sons.  After giving birth at 28 weeks, a NICU stay, and a long and emotional journey to receiving a diagnosis, Jessica still found a way to make meaning and give back.
    For Jessica's son, it took 12 years and hundreds of doctor appointments to receive a concrete diagnosis: DiGeorge Syndrome. She shares her journey and learned the importance of finding support and resources from families walking through similar challenges. 
    “It teaches you to pivot. It teaches you, you know, to learn different things and be okay. It is what it is and you will be okay”
    The resources mentioned in this episode are:
    Puffaluffs Inc.
    Diagnosis resources for families with DiGeorge include:

    https://www.nationwidechildrens.org/conditions/22q-deletion-syndrome
    https://22q.org/
    https://www.maxappeal.org.uk/
    About Katie Taylor, CCLS and Child Life On Call:
    Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she’s served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys.
    Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures
    Instagram | LinkedIn | Amazon 
     

    • 42 min
    202: Infantile Spasms, Healing from Trauma and Emotional Resilience

    202: Infantile Spasms, Healing from Trauma and Emotional Resilience

    In this episode about parenting a child with infantile spasms, Katie Taylor, a certified child life specialist, has a profound conversation with Hailey, a resilient mother navigating the complexities of raising a child with a disability. Join us as we delve into Hailey's journey, exploring the challenges and triumphs of parenting under extraordinary circumstances.
    "It's not always about thriving in the traditional sense; sometimes it's about finding small victories in our daily struggles and embracing them." - Hailey Adkisson
    About the Episode:
    This episode offers an intimate glimpse into the life of Hailey, a mother from the Pacific Northwest, and her blended family. Hailey shares her experiences managing her professional life while being a dedicated caregiver to her youngest child, diagnosed with infantile spasms. The discussion also touches on the significance of mindfulness and the power of being present, especially during challenging times.
    From the episode with Hailey and Katie, here are three key takeaways:
    The Importance of Advocacy and Community: Hailey emphasizes how advocacy and connecting with a community have been vital for her. She discusses the therapeutic aspect of advocating for her child and how it has helped her connect with other families in similar situations.
    Challenges and Adaptations in Parenting: The conversation highlights the difficulties of parenting a child with medical complexities. Hailey shares her experiences of managing work-life balance and the adjustments she and her family have had to make to accommodate their child's needs.
    Mindfulness and Presence in Caregiving: Both Hailey and Katie touch upon the theme of mindfulness in caregiving. They discuss the challenges of staying present and mindful while dealing with recurring medical crises and the importance of finding ways to disconnect momentarily without losing focus on the child's needs.
    "I've learned so much from my daughter. Even though the journey is tough, it has opened my eyes to a different kind of love and strength." - Hailey Adkisson
    In our enlightening talk with Hailey, we discover the often-overlooked realities of caregiving and the resilience it fosters. Her parenting journey is a testament to the strength found in adversity and the importance of mindfulness in the face of life's challenges. We hope this episode inspires and provides valuable insights to caregivers and families facing similar journeys.
    You can buy Hailey's book, What is Epilepsy?, on Amazon.
    About Katie Taylor, CCLS and Child Life On Call:
    Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she’s served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys.
    Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures
    Instagram | LinkedIn | Amazon

    • 47 min

Customer Reviews

4.9 out of 5
132 Ratings

132 Ratings

AmyGrabein ,

One of my fave podcasts

This podcast is a winner, I love everything about it. Katie is an incredible host and the guests have amazing and important stories/insights to share. Highly recommend.

Candice Lave ,

INSPIRED

I have been a Child Life Specialist for over seven years. I’ve been in the same hospital in the same unit, and it is easy to fall into a pattern of mundane routine. Katie’s podcast reminds me, again and again, of the endless WHY I chose child life as a career. The stories, the perspectives, the lessons we all can learn! Every episode leaves me inspired to try just a little harder, work just a little smarter, and, of course, make the world a little kinder!

Catia H Holm ,

Must listen - so valuable!

Katie being such amazing perspective and stories to the podcast. This podcast is such a valuable resource for all parents who want to feel supported and informed. Parenting through challenges is hard, but we don’t have to do it alone.

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