376 episodes

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent diabetes advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.

Diabetes Connections with Stacey Simms Type 1 Diabetes Stacey Simms

    • Health & Fitness
    • 4.7 • 149 Ratings

The T1D news show you've been waiting for! Long-time broadcaster, blogger and diabetes mom Stacey Simms interviews prominent diabetes advocates, authors and speakers. Stacey asks hard questions of healthcare companies and tech developers and brings on "everyday' people living with type 1. Great for parents of T1D kids, adults with type 1 and anyone who loves a person with diabetes.

    In the News: Your New Weekly Diabetes News Digest

    In the News: Your New Weekly Diabetes News Digest

    New information about kids with type 1 and COVID, a possible link between pollution and type 2, a look at Dexcom's latest earnings call and a lot more.
    We're trying something new for the next few weeks! Join Stacey live every Wednesday on Facebook for the top diabetes news and headlines or listen back via the podcast or on other social outlets.
    Full transcription and links/sources below.
    Watch the replay on our Facebook page or YouTube Channel
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
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    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
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    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
     
    Podcast intro: Hi all! This episode is very different. Instead of a classic episode, I wanted to try something new. What you’re about to hear first aired live on our FB page. Join me every Wednesday this month at 4:30pm eastern for DC the news!
    --
    Hi, I’m Stacey Simms, the host of what’s usually a weekly podcast providing info & inspiration for people with diabetes with a focus on people who use insulin. I’m trying something new. A short newscast full of the top diabetes news of the past week. And that’s all types of diabetes. We’ll debut here on FB Live and then share on other outlets, including the podcast.
    The goal here is to get you up to speed – quickly – with good info.
    And let’s not forget.. Diabetes Connections The News is brought to you by Inside the Breakthrough. A new history of science podcast full of “Did You Know Stuff”
    Now..  let’s start!
    In The News…
    XX
    The majority of children with type 1 who tested positive for COVID.. did just fine. According to the very first report about this, from Barbara Davis Center, 77% of children with type 1 who had COVID were cared for at home, without complications.
    The children who were hospitalized were all diagnosed with diabetic ketoacidosis and the greatest risk for adverse outcomes was an A1C over 9. Fewer than 2% of all these cases required any respiratory support, and no deaths were recorded.
    Kids with T1D and covid fared well: https://www.medscape.com/viewarticle/950277
    XX
    Another study about kids and covid.. The incidence of severe diabetic ketoacidosis among children presenting with new-onset type 1 diabetes doubled during the pandemic period compared with 2019, according to data published in Pediatric Diabetes.
    This research comes clinics in Canada from March to August 2020 and compared to the same period in 2019. The number of children diagnosed with T1D was similar but the frequency of DKA went from 45% to 68%.
    What they called severe DKA went from 13% to 27%.
    Speculation here is that fear of COVID kept people out of the doctor’s office until it was absolutely necessary, but these researchers say more education is needed around DKA even after the COVID pandemic ends.
    More severe DKA in kids during covid: https://www.healio.com/news/endocrinology/20210422/severe-dka-at-type-1-diabetes-diagnosis-doubles-during-pandemic
    XX
    Hat tip to chris Wilson for this..
    Dexcom had it’s first quarter earnings call last week. Still expecting G7 to launch in Europe ahead of the US, with US launch towards the end of the year. We’ll find out more details about the G7 at ATTD conference this summer. That’s the advanced technologies and treatments for diabetes conference.
    Chief Operating Officer Quentin Blackford also reports that quote, “we rolled out an update to the G6 algorithm in the first quarter. We believe this update will drive further reductions to times in which data is temporarily unavailable And I've seen excellent results from the initial launch of this updated algorithm in Canada in 2020.

    • 8 min
    "The Whole Thing Seems Like a Blur" - Having a Child Diagnosed with T1D During COVID

    "The Whole Thing Seems Like a Blur" - Having a Child Diagnosed with T1D During COVID

    It's hard to imagine having a child diagnosed with type 1 diabetes during the COVID pandemic. Most of us rely on community support and in-person meet ups and events to help support and guide us during that first year. But when you're diagnosed during a time of isolation and social distancing, what do you do?
    Andrew & Emily Hollis join Stacey this week to share their story. Their toddler, Addison, was diagnosed a year ago, a time when only one parent could enter the hospital with her, due to COVID restrictions. The Hollis family connected with others online and even created a line of 3D printed items to help diabetes technology stick better on the body.
    Deck my Diabetes website
    Andrew testing Deck My Diabetes gear (video mentioned in the episode)
    In Tell Me Something Good we're looking ahead to in person events
    Chris Ruden's new book "The Upper Hand"
    Stacey will speak at Camp Nejeda's Thrive & Survive event 
    looking ahead to in person events and a new book to give you the upper hand.
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Episode Transcription below 
    Click here for iPhone      Click here for Android
    Stacey Simms  0:00
    Diabetes Connections is brought to you by Dario health. Manage your blood glucose levels increase your possibilities by Gvoke Hypopen the first premixed auto injector for very low blood sugar and by Dexcom help make knowledge your superpower with the Dexcom G6  continuous glucose monitoring system.
     
    Announcer  0:24
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:29
    This week, having a child diagnosed with type one during the pandemic happened to the Hollis family. Addy was just three years old. But her parents couldn't bring her to the hospital together because of COVID restrictions.
     
    Andrew Hollis  0:43
    We both walk into the ER, and there's the guard at the door and he's like only one adult. And I'm like, this is my kid. I need to be here. This is my daughter. But I also knew that my daughter needed her mom, and I want it to be there for my wife as well. And I know I've tried to put up a little bit of a fight and he's like no one adult,
     
    Stacey Simms  0:59
    Andrew and Emily Hollis join me to talk about their daughter's diagnosis, finding their way with diabetes during the last year in isolation and their product deck my diabetes. Oh, and chickens in Tell me something good. Looking ahead to in person events and a new book that'll help give you the upper hand. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
     
    Welcome to another week of the show. I am always so glad to have you here. We aim to educate and inspire about diabetes with a focus on people who use insulin. I'm host Stacey Simms, and my son Benny  was diagnosed more than 14 years ago, right before he turned two my husband lives with type two diabetes. I don't have diabetes, I have a background in broadcasting. And that's how you get this podcast. If you're a longtime listener, you know, I tell a lot of stories about how lucky we were when Benny was first diagnosed, we had a lot of positive experiences that can help set the tone. And you know, we already knew some families touched by type one. And we met a lot more in that first year in at person events. It's really hard for me to imagine having to do those first months that first year on social media alone. There was no social media at all back in 20

    • 37 min
    "You can take it to another level" - Sugar Surfing with Dr. Stephen Ponder (Classic Episode)

    "You can take it to another level" - Sugar Surfing with Dr. Stephen Ponder (Classic Episode)

    Dr. Stephen Ponder coined the term "Sugar Surfing" in 2013 to describe a real-time, dynamic system of managing diabetes. In this "Classic" episode we take a deep dive into what Sugar Surfing is all about and get Dr. Ponder's perspective on everything from parenting teens with diabetes to how he feels after 50+ years of living with T1D himself.
    Dr. Ponder is the medical director at Texas Lions Diabetes camp where he’s volunteered for almost 40 years and in 2018 he was named Diabetes Educator of the Year
    It’s hard to believe now with CGMs and closed loop systems, but the thinking you’ll hear Dr. Ponder talk about was pretty revolutionary in the early 2000s. This interview is less than a year after he published his book.
    Sugar Surfing info (including how to get a free book if newly diagnosed)
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode transcription below 
     
    Stacey Simms  0:00
    Diabetes Connections is brought to you by Inside the breakthrough a new history of science podcast full of did you know stuff.
     
    Announcer  0:11
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:17
    Welcome to a classic episode of the show. I will be so happy to have you along we aim to educate and inspire about diabetes with a focus on people who use insulin. I'm your host, Stacey Simms, and this time around, I'm revisiting my first interview with Sugar Surfing Dr. Steven Ponder. Dr. Ponder has lived with type one for more than 50 years. He is a pediatric endocrinologist and a certified diabetes educator. Sugar Surfing is about real time management of diabetes. Dr. Ponder coined the term in 2013. But it was a long time coming, a lot of research, a lot of work.
    It's hard to believe now with continuous glucose monitors and closed loop systems. But the thinking that you're going to hear Dr. Ponder talk about was pretty revolutionary in the early and mid 2000s. This interview comes less than a year after he published his book sugar surfing and by the way that is still free for newly diagnosed people, newly diagnosed families. And I will link up more information about how you can get that in the show notes over at Diabetes connections.com.
    So what is Dr. Ponder up to these days? Well, he has become a frequent and welcome guest on this show. I last spoke to him for our New Year's Day episode when health care providers were getting the COVID vaccine that was such a joyful show. I loved being able to talk to them some of the first people in the country to get the COVID vaccines and he was one of them. Dr. Ponder is the medical director at Texas lions diabetes camp, where he has volunteered for almost 40 years. And in 2018 he was named the National Diabetes Educator of the Year he also founded a free medical clinic for children all children, not just those with diabetes, our original sugar surfing interview in just a moment.
    But first, this episode of Diabetes Connections is supported by inside the breakthrough surprising stories from the history of science. Dan Riskin, digs deep and entertains as he connects those old stories to what modern day medical researchers are facing. As you know, 2021 is the 100 year anniversary of the discovery of insulin that is arguably the biggest scientific discovery in Canadian history. This series examines that moment and many others through the lens of Canadian researchers trying to find what's next for the fight against diabetes. I love this podcast I have listened to every episode I highly recommended search for insight the breakthrough an

    • 53 min
    Ben West: Using Diabetes Tech to Relieve the

    Ben West: Using Diabetes Tech to Relieve the

    Ben West was a key organizer and architect of Nightscout and OpenAPS software. Even after all of the DIY and commercial development of the last ten years, he says we've barely scratched the surface of removing the mental and physical burdens from people with diabetes. Among those burdens, he says, is what he calls the onus to bolus - the responsibilities of diabetes that even the most advanced current software can't totally relieve.
    Ben is now the CEO at Medical Data Networks which has launched its first venture: T1 Pal. 
    Read the Nightscout email Stacey mentioned (click here) 
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Episode Transcription (rough draft) below
    Click here for iPhone      Click here for Android
     
     
    Stacey Simms  0:00
    Diabetes Connections is brought to you by Dario health manage your blood glucose levels increase your possibilities Gvoke Hypopen the first premixed auto injector for very low blood sugar, and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:21
    This is Diabetes Connections with Stacey Simms
     
    Stacey Simms  0:26
    this week talking to someone who is deeply technical, but also deeply thoughtful, who has been an incredible part of the Do It Yourself movement over the last 10 or more years. But who says we've barely scratched the surface of removing the burdens mental and physical from people with diabetes. So welcome to another week of the show. We aim to educate and inspire about diabetes with a focus on people who use insulin. I am Stacey Simms. And yes, this show is already a little different sounding here at the top no big intro or tease. And that's because my interview with Ben West is massive. It is very long. It is the longest one I have done so far on this show. But it is well worth your time.
    I am so excited to bring you this interview with Ben Ben West was a key organizer and architect of the Nightscout and open APS software. He is now the CEO at medical data networks which has launched its first venture T1Pal, I think Ben influenced or work with or sometimes both just about every person I've talked to under the we are not waiting umbrella. And if you're not familiar with that, if this is your first episode, welcome, but we are not waiting is kind of the rallying cry that became a hashtag back in 2013. And if you are new, I use it as a keyword you can search for it all one word, we are not waiting over at Diabetes connections.com and see every episode that has featured those incredible do it yourself, people the community that really rallied together and push the technology side of diabetes forward, I believe many many years ahead where it would have been otherwise, as I said, it is a very long interview. But you know, it's a podcast, listen in chunks. Stop, start, you know, however you want to do it. But please, I really hope you'll listen to Ben because he has so much story to tell and a lot of thoughts on how diabetes care really needs to improve.
    In the short time since I spoke to Ben, there has been a bit of a discussion within the Nightscout group about his business. It is part of an ongoing debate about the future of Nightscout and the future of open source in type one, Ben has the full support of the night scout foundation. In fact, they sent out an email on that and some other issues. And I will link to that in the show notes. I think it's a very good read. In addition to touching on this issue, it is a great way to catch up on what's going on in that space. So we'll get to Ben West in just a moment.
    But first Diabetes Con

    • 1 hr 11 min
    "It wasn't something I was going to wait for"

    "It wasn't something I was going to wait for"

    Eight years ago, you could use a CGM but you couldn't share the data. Dexcom transmitters didn't connect to phones and parents and caregivers couldn't Follow anyone. That started to change - and change quickly - in 2013. That's when John Costik posted a photo on Twitter. That photo showed John's laptop, at home, monitoring his son Evan's blood sugar while Evan was miles away, at daycare.
    John soon linked up with others who were also working on improving existing diabetes tech. That was the start of Nightscout and a host of other "We are not waiting" improvements, many of which are now integrated into commercial offerings.
    This interview with John is from October of 2015. He has since left his job as a supermarket software engineer and is currently the director of digital product development at Beta Bionics. That's the company founded by Ed Damiano that's developing the iLet insulin pump.
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
     
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode Transcription Below
     
    Stacey Simms  0:00
    This episode of Diabetes Connections is brought to you by inside the breakthrough, a new history of science podcast full of did you know stuff.
     
    Announcer  0:13
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:19
    Welcome to a classic episode of Diabetes Connections. As always, though, we aim to educate and inspire about diabetes with a focus on people who use insulin. These classic episodes are something new this year, we are bringing back some interviews that are from the very first year of year and a half of the show. We started in 2015, coming up on six years. So there's a lot of episodes that newer listeners haven't heard. And it's kind of fun to go back and give some perspective. I like revisiting. I'm emailing everybody that was featured. If they're getting a classic episode, I'm sending them a text message or a DM or email or you know, I'm just getting in touch with them to say anything you want to share, you know, any new stuff. And it's been really fun to reconnect with some of those previous guests.
    I’ll be honest with you, I have really hesitated about bringing by older tech type episodes into this run of classics. We did a lot of interviews, like we do now with the pump companies and technology and things like that. And I think it could just be kind of confusing if you're a newer listener, or if you know, you put a classic episode on and you're thinking it's new. But I mean, let's say I run an episode from 2015, when Dexcom, for example, is talking about an upcoming piece of technology that now in 2021, is outdated or never happened. So I'm purposefully avoiding most of those interviews. If you're interested, though, there's a great search box. I'm really proud of the website. It's very robust, you can go and search the 372 episodes that we have put index calm, see how its evolved over time, put in animists and find out what happened, you know, that kind of stuff. Some of those types of interviews, though, especially from the Do It Yourself community are, in my opinion, very valuable and very much worth revisiting. So that is the topic for this week.
    All right, come with me now let us go back to the olden days of diabetes back before 2013. Now I know most of you that's not the olden days for real. But you think about what has changed since then. Before 2013. It was a time where continuous glucose monitors were used. They were around we were at the time using I want to say the g4 Platinum pediatric. But you know, you could use it, you had a nifty little receiv

    • 40 min
    "If You Can Dream It, You Can Do It" - Don Muchow Ran From Disneyland to Disney World with T1D

    "If You Can Dream It, You Can Do It" - Don Muchow Ran From Disneyland to Disney World with T1D

    This month, Don Muchow became the first person to run from Disneyland in California all the way to Disney World in Florida. It's a pretty amazing story when you consider that when Don was diagnosed with type 1 back in 1972 they told him that exercise was too dangerous. He wasn't even allowed to take part in his school's gym class!
    Don shares how he made the turn to ultramarathons and beyond and what led him to make this incredible coast to coast journey. He had to contend with COVID delays along the way and got a terrific surprise when he arrived in Orlando. Plus.. what's next? He's already thinking about another incredible goal.
    Learn more about Don here
    In our Innovations segment, a seven day pump inset? And
    some of our favorites have a little fun with a donut demonstration.
    Stacey mentioned a new link for Dexcom and Medicare this week. Find that here. 
    This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Check out Stacey's book: The World's Worst Diabetes Mom!
    Join the Diabetes Connections Facebook Group!
    Sign up for our newsletter here
    -----
    Use this link to get one free download and one free month of Audible, available to Diabetes Connections listeners!
    -----
    Get the App and listen to Diabetes Connections wherever you go!
    Click here for iPhone      Click here for Android
    Episode Transcription below
     
     
    Stacey Simms  0:00
    Diabetes Connections is brought to you by Dario Health. Manage your blood glucose levels increase your possibilities by Gvoke Hypopen the first premixed auto injector for very low blood sugar and by Dexcom take control of your diabetes and live life to the fullest with Dexcom.
     
    Announcer  0:22
    This is Diabetes Connections with Stacey Simms.
     
    Stacey Simms  0:27
    This week Don Muchow just finished an incredible run from California's Disneyland all the way across the country to Disney World in Florida. diagnosed with type one as a child, Don wasn’t an athlete in his early 40s. He decided to try working out but then he got some bad news. His eyes were in trouble.
     
    Don Muchow  0:47
    It was like a punch in the gut to get that laser retinopathy treatment after I had made the decision to be healthy. And I made myself a promise that if I could just have a do over, I will do it over and I just kind of not looked back since then.
     
    Stacey Simms  1:06
    He’s definitely not done. He’s 59 and he has yet another big goal. I'm so excited to share his story
    in our innovations segment, a seven day pump inset and some of our favorites. have a little fun with a doughnut demonstration. This podcast is not intended as medical advice. If you have those kinds of questions, please contact your health care provider.
    Welcome to another week of the show. You know we aim to educate and inspire about diabetes with a focus on people who use insulin. If you are new welcome. My son was diagnosed with type one back in 2006. Right before he turned to my husband lives with type two diabetes. I don't have any type of diabetes. I spent my career in broadcasting and that is how you get the podcast.
    My guest this week. Oh my goodness is Don Muchow. He made national news last week when he finished a coast-to-coast run. He calls himself a type one diabetic extreme ultra runner and Iron Man boy is he ever I wanted to read you a couple of highlights from Don's website. So here's what he did before the accomplishment we're going to talk about today in 2019, who ran across Texas he holds the fastest known time record for doing that. 2018 he completed relay Iowa which is 339 miles in 2018. Sioux City to Dubuque first ever solo finisher of the longest us relay first ever T one D finisher 2017 capital to coast race 223 miles, Austin, Texas to the Gulf of Mexico first ever to Indy solo finisher, and on and on and on, I will l

    • 39 min

Customer Reviews

4.7 out of 5
149 Ratings

149 Ratings

Mojodoc ,

Much more important that it’s targeted niche

Since finding Diabetes Connections I’ve learned more about the greater T1D community than I ever imagined. Being an older patient and provider Stacey has helped me empathize with other PWD and grow my knowledge personally and professionally, especially related to technology. 5 stars, two thumbs up!

Me123479 ,

Great Information for Diabetes Community

This podcast is a must for anyone who is living with diabetes or knows someone living with diabetes. Real life stories from people who are living with the disease help me connect with them!

Shellforce ,

Making a splash

Love this podcast. I have learned so much from listening—especially enjoy the tech episodes with Dexcom, Tandem, etc. As a mom of a newly diagnosed 4 year-old T1D, I have found much needed encouragement and tips for helping my son thrive with diabetes.
Also, Cannon was excited to hear you mention him swimming in the lake 😂

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