96 episodes

Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone with symptomatic joint hypermobility (EDS, HSD, Marfan's). Learn to optimize your hypermobile health!

Bendy Bodies with the Hypermobility MD, Dr. Linda Bluestein Dr. Linda Bluestein

    • Health & Fitness
    • 4.9 • 112 Ratings

Connective tissue disorders, like Ehlers-Danlos Syndromes (EDS), have far-reaching consequences. Multi-systemic symptoms affect quality of life -- with pain, frequent injury, joints “giving way," fatigue, headache, gastrointestinal problems, and insomnia being common. Welcome to Bendy Bodies with the Hypermobility MD, with your host and founder, Linda Bluestein, MD. Learn from specialists with diverse areas of medical and scientific expertise. Conversations cover topics relevant to everyone with symptomatic joint hypermobility (EDS, HSD, Marfan's). Learn to optimize your hypermobile health!

    96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner

    96. Coping with Dance Injuries and Career Transitions with Chelsea Pierotti, PhD and Guest Cohost, Jennifer Milner

    In this episode, Dr. Chelsea Pierotti discusses coping with dance injuries and transitions, both from a physical and psychological perspective. She explains that the way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms. Dr. Pierotti emphasizes the importance of shifting the mindset from seeing an injury as a disaster to viewing it as a challenge that can be overcome. She also highlights the role of social support in the recovery process and the need for dancers to define success in ways that are within their control. Additionally, Dr. Pierotti addresses the challenges dancers face when transitioning between different forms of dance or when they have to give up dancing altogether. When transitioning out of dance, it is important to consider your values and what truly matters to you in life. This will help guide your future goals and decisions. It is also helpful to reflect on who you admire and what you admire about them, as this can highlight your own values. Grief and loss are common when leaving a dance career, and it is important to acknowledge and process these emotions. The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete, not just their performance. Developing mental skills and self-awareness is crucial for dancers and can be beneficial for everyone.

    Takeaways

    The way dancers appraise their injuries and their emotional response to them can greatly impact their coping mechanisms.Shifting the mindset from seeing an injury as a disaster to viewing it as a challenge can help dancers overcome the emotional and psychological challenges of injury.Social support plays a crucial role in the recovery process for dancers.Dancers should define success in ways that are within their control, rather than relying solely on external validation.Transitions between different forms of dance or giving up dancing altogether can be challenging, and it's important for dancers to have a strong sense of identity beyond being a dancer. Consider your values and what truly matters to you in life when transitioning out of dance.Reflect on who you admire and what you admire about them to identify your own values.Acknowledge and process the grief and loss that comes with leaving a dance career.The dance world can be more supportive by adopting a positive coaching approach and focusing on the whole athlete.Developing mental skills and self-awareness is crucial for dancers and beneficial for everyone.
    Chapters ➡

    00:00 Introduction
    00:54 Introducing Dr. Chelsea Pierotti
    01:13 Coping with Injuries
    03:38 Coping Mechanisms
    06:34 The Influence of Childhood Experiences
    08:29 Developing Resilience
    09:48 Transitioning from Dance
    12:11 The Role of Pain
    13:09 Challenges Faced by Hypermobile Dancers
    13:23 Supporting Dancers through Challenges
    17:49 The Importance of Social Support
    18:43 Grief and Loss of a Dance Career
    20:34 Developing Resilience and Coping Strategies
    24:57 The Importance of Values
    27:52 Shifting the Dance Culture
    29:25 Coping with Career Shifts
    33:22 Positive Coaching Approach
    35:55 Developing Mental Skills
    36:51 Applying Mental Skills to Life
    37:24 The Importance of Self-Awareness in Dance
    38:25 Mindset: Controlling the Controllables

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority! 🧬🔬🦓
    Learn about Dr. Pierotti:

    https://chelseapierotti.com

    https://instagram.com/dr.chelsea.pierotti 

    #Dancers #Dance #Injuries #Transitions #Grief #MentalSkills 
    #Hypermobility #Podcast #B

    • 42 min
    95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD

    95. Pain Care Redefined: Non-Drug Therapies for Pain Relief with Heather Tick, MD

    Dr. Heather Tick, a renowned pain expert, discusses non-drug therapies for pain relief; applying the principles of integrative medicine for comprehensive pain care. She emphasizes the need for education and understanding of pain neuroscience to empower patients. Dr. Tick also highlights the significance of nutrition in reducing chronic pain and inflammation. Additionally, she explores various modalities, such as acupuncture and manual therapies, as effective strategies for pain relief. Dr. Heather Tick discusses the impact of habits on movement and the importance of developing healthy movement practices. She also explores various modalities for pain relief, including heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi. Dr. Tick emphasizes the role of mast cells in the stress response and the importance of managing diet to reduce mast cell activation. She discusses the effectiveness of laser therapy, ozone injections, and shockwave therapy for pain management. Dr. Tick also addresses the overprescription of medications and the potential benefits of supplements. She provides insights into the appropriate use of interventional pain management and the risks associated with steroid injections. Finally, she discusses the challenges of determining the expertise of medical professionals and the need for caution when considering regenerative medicine.

    Takeaways

    Integrative medicine takes a holistic approach to health, focusing on achieving overall well-being rather than just managing symptoms.Pain management should involve a comprehensive care plan that includes movement, education, nutrition, sleep, psychosocial support, modalities, medications, and supplements.Understanding pain neuroscience can help patients reframe their perception of pain and explore non-pharmacological strategies for pain relief.Nutrition plays a crucial role in reducing chronic pain and inflammation, and a whole-food, plant-based diet is recommended.Modalities such as acupuncture and manual therapies can provide effective pain relief and should be considered as part of a comprehensive pain management plan. Developing healthy movement habits is crucial for optimal movement.Heat, cold, Epsom salt baths, and movement therapies like yoga and Tai Chi can provide pain relief.Managing diet and reducing mast cell activation can help alleviate stress response.Laser therapy, ozone injections, and shockwave therapy may be effective for pain management.Caution is needed when considering the use of medications and supplements.Interventional pain management should be approached with strict criteria and careful consideration.Regenerative medicine shows promise but requires further research and careful selection of providers.
    Chapters ➡

    00:00 Introduction to Dr. Heather Tick
    02:05 Understanding Integrative Medicine
    07:41 Redefining Pain Management
    10:31 The Importance of Education in Pain Care
    12:58 The Role of Nutrition in Pain Relief
    21:53 Exploring Different Modalities for Pain Relief
    53:56 Impact of Habits on Movement
    55:11 Benefits of Tai Chi
    56:34 Connective Tissue and Movement
    57:37 Role of Mast Cells in Stress Response
    58:10 Effectiveness of Laser Therapy
    01:00:35 Usefulness of Ozone Injections
    01:02:03 Effectiveness of Shockwave Therapy
    01:03:13 Overprescribed and Underutilized Medications
    01:03:44 Importance of Stopping Medications
    01:04:32 Impact of Proton Pump Inhibitors
    01:05:37 Role of Gut in Producing Neurotransmitters
    01:06:34 Importance of B Vitamins and Coenzyme Q10
    01:17:26 Evaluation of Interventional Pain Management
    01:19:16 Risks of Steroid Injections
    01:21:26 Appropriate Use of Regenerative Medicine
    01:25:30 Determining the Expertise of Medical Professionals
    01:31:28 Differentiating Flares from New Problems
    01:33:48 Challenges of IV Infusions and Regenerative Medicine

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
     
    Thank YOU so much for tuning in. We hope you found this

    • 1 hr 40 min
    94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson

    94. Support and Bracing for Hypermobile Joints with Susan Chalela, MPT, and Guest Cohost, Scott Borjeson

    In this Bendy Bodies with the Hypermobility MD podcast, Susan Chalela, MPT discusses support and bracing for hypermobile joints.  She shares how her personal and professional experience with joint hypermobility led her to develop the Finding Functional Foundations approach which is being taught as part of The Ehlers-Danlos Society EDS ECHO program. She emphasizes the importance of proper alignment and biomechanics in everyday activities and explains why traditional physical therapy approaches may not be effective for hypermobile patients. Susan also discusses the role of bracing and supports in providing stability and controlling motion. She explains the benefits of using different types of braces for the feet, ankles, pelvis, and neck, and emphasizes the need for proper sizing and education for both patients and physical therapists. Susan also shares her experience with durable medical equipment (DME) and provides recommendations for clinicians interested in offering bracing services. She concludes by highlighting the resources available for further education and support in the field of hypermobility.  Watching this episode on YouTube is recommended since there are some graphics used.  

    Takeaways

    Proper alignment and biomechanics are crucial for protecting joints and managing symptoms in hypermobile individuals.Traditional physical therapy approaches may not be effective for hypermobile patients and can even worsen symptoms.The Finding Functional Foundations approach focuses on teaching patients proper alignment and functional movement patterns.Bracing and supports can provide stability and control motion in hypermobile joints. Proper support and bracing can help manage symptoms and improve function in patients with hypermobility.Different types of braces are available for the feet, ankles, pelvis, and neck, and proper sizing is crucial for optimal support.Education and guidance are essential for both patients and physical therapists to ensure the correct use of braces and maximize their benefits.Clinicians interested in offering bracing services should consider the specific needs of their patients, stock commonly used sizes, and collaborate with DME suppliers.Chapters ➡

    00:00 Introduction
    01:22 Background and Interest in Hypermobility
    11:56 Neurological Interest and Stroke Recovery
    16:23 Traditional Physical Therapy Approaches
    25:24 Importance of Bracing and Supports
    39:18 Feet and Ankle Support
    40:28 Pelvis Support
    43:32 Neck Braces
    51:46 Dispensing DME and Bracing
    56:56 Carrying Products in the Clinic
    01:02:59 Final Thoughts and Resources

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.🎧

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:  

    Chalela Physical Therapy Institute for EDS and CCI/Cervical Instability

    Bendy Bodies's Amazon Page

    Eclipse Cervical Collar - Thuasne USA

    https://www.ehlers-danlos.com/echo/

    Patricia Stott, PT, DPT, ATC, CHT, CYT | MedBridge

    https://www.tamingthezebra.org/

    Hypermobility/Ehlers-Danlos Syndrome Educational Handouts

    #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast 
    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD #Bauerfeind 

    • 1 hr 5 min
    93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin

    93. Unveiling Taming the Zebra: A Discussion with Physical Therapists Patricia Stott and Heather Purdin

    This episode centers around unveiling 'Taming the Zebra', a book co-authored by physical therapists, Dr. Patty Stott and Heather Purdin.  The book aims to fill a void in understanding and provide therapists with the knowledge to effectively work with patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos Syndromes (EDS). It covers the impact of connective tissue disorders on various body systems and provides practical tips for modifying physical therapy approaches. The book emphasizes the importance of addressing primary issues and understanding the complexity of each individual's presentation. The chapters cover topics such as modifying movement for gentle exercise, addressing deconditioning and weakness, building confidence and safe strengthening programs, finding physical therapists open to working with EDS patients, expanding the toolkit for physical therapy, and more. 

    Takeaways

    The book 'Taming the Zebra' fills a void in understanding and provides physical therapists with the knowledge to effectively work with patients with HSD and EDS.The book emphasizes the importance of addressing primary issues and understanding the individualized nature of each patient's presentation.A collaborative approach between therapists and patients is essential in managing overlapping problems and setbacks. Modifying movement can allow individuals with HSD and EDS to engage in gentle exercise and maintain movement despite physical limitations.Deconditioning and weakness are common issues for individuals with HSD and EDS, and addressing these problems requires a comprehensive approach that considers the underlying causes and individual goals.Physical therapists should approach treatment with intention, focusing on building confidence and creating safe strengthening programs tailored to the individual's needs.Expanding the toolkit of physical therapy techniques, such as neural rehabilitation and manual therapies, can improve outcomes for individuals with HSD and EDS.
    Chapters ➡

    00:00 Introduction and Background
    01:58 Motivation for Writing the Book
    03:28 Challenges in Managing EDS and HSD
    06:08 Different Types of Hypermobility and Connective Tissue Disorders
    07:35 Approaching Physical Therapy for EDS and HSD
    09:21 Primary Treatment Approach and Identifying Key Issues
    21:04 Approaching Physical Therapy with Overlapping Problems
    22:48 Non-Linear Path of Physical Therapy
    31:01 Modifying Movement for Gentle Exercise
    31:21 Addressing Deconditioning and Weakness
    35:13 Neural Rehabilitation and Muscle Firing
    36:09 Steps to Successful Strengthening
    40:18 Expanding the Toolkit for Physical Therapy
    43:13 Approaching Stabilization and Alignment
    56:32 Hypermobility Hacks

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:  

    Virtual book event sign up

    https://www.tamingthezebra.org

    http://www.elevationwellness.co/

    www.goodhealthphysicaltherapy.com/clinic-staff/

    www.medbridge.com/heather-purdin-physical-therapy
    https://www.olagrimsby.com/courses-page/
    https://www.naiomt.com
    https://feldenkrais.com
    https://counterstrain.com
    https://frequencyspecific.com
    https://pt.wustl.edu/education/movement-system-impairment-syndromes-courses/where-in-the-world-is-shirley-sahrmann/

    #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #Podcast #TamingTheZebra
    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    • 59 min
    92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT

    92. Empowering Zebra Warriors: THE Guide to Effective Physical Therapy for EDS and HSD with Lilian Holm, DPT

    In this Bendy Bodies podcast episode, Dr. Lillian Holm discusses effective physical therapy for EDS and HSD and the importance of correcting function to achieve pain relief and tolerance for exercise. She explains why physical therapy may not always lead to the expected outcome, emphasizing the need for specialized therapists and individualized treatment. She addresses common misconceptions about physical therapy and highlights the importance of communication and realistic expectations. Dr. Linda Bluestein and Dr. Holm cover topics such as progress and setbacks, balancing stretching with strengthening, starting to walk again after severe limitations, physical therapy for scoliosis, and helpful resources and information. Dr. Holm also shares her favorite hypermobility hacks to help individuals stay motivated and achieve their goals.

    Takeaways

    Physical therapy can be highly beneficial for symptomatic joint hypermobility, providing pain relief and improving function.Finding a specialized physical therapist with expertise in hypermobility conditions is crucial for successful treatment.Misconceptions about physical therapy, such as the belief that it should be painful, can hinder progress.Individualized treatment plans and gradual progression are key to achieving the best outcomes in physical therapy.Open communication with the physical therapist and realistic expectations are essential for success.
    Chapters ➡

    00:00 Introduction to Dr. Lillian Holm
    01:15 What can physical therapy do for people with symptomatic joint hypermobility?
    04:19 Reasons why physical therapy may not lead to expected outcomes
    09:09 How to find the best possible physical therapist for EDS and HSD
    11:58 Misconceptions about physical therapy for joint hypermobility
    21:25 Approach for people who don't like to exercise
    25:41 Resetting the boom and bust cycle
    35:23 Metrics for measuring success in physical therapy
    50:18 Progress and Setbacks
    52:47 Balancing Stretching with Strengthening
    56:22 Starting to Walk Again
    58:12 Physical Therapy for Scoliosis
    01:01:04 Resources and Information
    01:02:23 Hypermobility Hacks

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:  

    Learn more about guest, Dr. Lilian Holm:

    https://www.lilianholm.com/
    https://www.instagram.com/hypermobilitydoctor/
    https://www.facebook.com/HypermobilityD

    Read her guest blog post for the Hypermobility MD website:

    https://www.hypermobilitymd.com/post/hypermobile-five-principles-to-make-physical-therapy-work-for-you

    #RareDiseaseDay #ZebraWarriors #ZebraStrong #HSD #PhysicalTherapy #EhlersDanlos #HypermobilityDoctor #Podcast
    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    • 1 hr 6 min
    91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach

    91. Hand Problems in EDS with Corinne McLees, OT and Hand Coach

    In this episode, Dr. Linda Bluestein and Corinne McLees discuss hand problems in EDS including pain, weakness, and injuries.  This conversation covers various topics related to hand problems, including ring splints, hand exercises, avoiding strain and hyperextension, tips for traveling, challenges of the medical system for chronic pain, hand pain with writing, hand pain and numbness in sleep, thumb pain and De Quervain's tendonitis, cubital tunnel syndrome, TFCC tear, trigger finger and so much  more. 

    Takeaways

    Hand pain, weakness, and injuries are common in individuals with joint hypermobility.Hand pain in connective tissue disorders can be caused by hypermobility, subluxations, nerve impingement, and arthritis.TheraPutty is a useful tool for strengthening hands.  Low profile hand support options include kinesio tape, silicone thumb supports, and the Push MetaGrip.Traditional therapies may not work for hand pain in hypermobility if the underlying hypermobility is not addressed.Ring splints can provide support and stability for hypermobile joints in the hands.Insurance coverage for ring splints may vary, and Silver Ring Splints is a US-based provider that offers insurance coverage options. Trigger finger occurs when the tissue surrounding a tendon becomes knotted, causing the tendon to catch and lock when the finger is flexed.Steroid injections combined with splinting can be effective in treating trigger finger, especially in acute cases.Trigger finger may be misdiagnosed in the hypermobile population, as it can be a result of subluxation rather than tissue accumulation.Hypermobility hacks include ergonomic hand movements, swimming, abdominal compression, and prioritizing daily movement.
    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Chapters

    00:00 Introduction and Overview
    01:38 Difference between Occupational and Physical Therapy
    04:44 Common Reasons for Hand Pain in Connective Tissue Disorders
    09:53 Approach to Hypermobility in Hands
    12:46 Strengthening Hands with TheraPutty
    20:55 Strengthening Hands without Overdoing It
    21:27 Reasons Traditional Therapies May Not Work for Hand Pain
    24:08 Low Profile Hand Support Options
    28:23 Ring Splints and Insurance Coverage
    38:34 Ring Splints and Plastic Splints
    40:33 Hand Exercises for Different Age Groups
    42:33 Avoiding Strain and Hyperextension
    45:21 Tips for Traveling with Hand Problems
    47:51 Challenges of the Medical System for Chronic Pain
    51:22 Hand Pain with Writing
    53:52 Hand Pain and Numbness in Sleep
    56:16 Thumb Pain and De Quervain's Tendonitis
    59:17 Cubital Tunnel Syndrome
    01:02:19 Torn Triangular Fibrocartilage Complex (TFCC)
    01:06:14 Decuervain's Tendonitis
    01:09:17 TFCC Tear
    01:13:32 Trigger Finger
    01:17:31 Differentiating Trigger Finger from Subluxation
    01:18:38 Pulley Injuries in Rock Climbers
    01:19:25 Hypermobility Misdiagnosis
    01:20:46 Hypermobility Hacks

    Connect with YOUR Bendy Specialist, Dr. Linda Bluestein, MD at https://www.hypermobilitymd.com/.  
     
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.      

    YOUR bendy body is our highest priority! 🧬🔬🦓

    Resources:  

    Learn more about guest, Corinne McLees here:

    https://www.handcoachcorinne.com/

    Check out the items mentioned in episode 91 here:

    https://amzn.to/49FkaGY

    Check out the Bendy Bodies Amazon Shop here:
    https://www.amazon.com/shop/hypermobilitymd

    Links to other products:

    https://www.silverringsplint.com/

    https://www.evabellejewelry.com/

    https://bracelab.com/metagrip.html?utm_source=Affiliate+Partnership&utm_medium=Social&utm_campaign=Corinne

    #HandPain #HandProblems #HandWeakness #WristPain
    #BendyBodiesPodcast #BendyBuddy #HypermobilityMD 

    • 1 hr 23 min

Customer Reviews

4.9 out of 5
112 Ratings

112 Ratings

ZippyPup ,

Rich source for hypermobility and Ehlers Danlos

I am so grateful for this podcast and the medical information Dr. Bluestein and her fabulous range of guests provide. Thank you!

"Oakland" ,

Bendy Bodies A

I so appreciate this podcast and its ability to bring complex subject matter in an accessible way!!!! THANK YOU, Dr. Linda Bluestein!!!! As a parent of an adult with hEDS, MCAS, POTS, and many other related conditions, I struggle on a daily basis to educate others, especially providers, and other skeptics in our lives about the multiple various medical conditions that my offspring deals with—on top of being gender non-binary, non-neuro-typical, short, and female presenting—ie, ripe for dismissal on multiple counts. I have shared your podcast and will continue to do so.

sastnns37 ,

WOW! Must listen for EDS and related conditions

This podcast is so informative and educational. It changes lives because knowledge is power, and Dr Bluestein has design this podcast so everyone has access to expert info. Thank you so much!

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