19 episodes

The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. Covering a wide variety of relevant topics, including relationships, treatments, mindset, lifestyle, and more, we raise awareness and show people in our community that they're not alone.

Generation Lyme is a community built to empower people facing Lyme disease.

We host online Meet-Ups several times a week for patients, parents, partners, and supporters.

Find us online at https://genlyme.org.

The Generation Lyme Podcast Generation Lyme

    • Health & Fitness
    • 4.3 • 10 Ratings

The Generation Lyme Podcast shares information and insights through personal stories to help people better understand and manage Lyme disease and other chronic illness experiences. Covering a wide variety of relevant topics, including relationships, treatments, mindset, lifestyle, and more, we raise awareness and show people in our community that they're not alone.

Generation Lyme is a community built to empower people facing Lyme disease.

We host online Meet-Ups several times a week for patients, parents, partners, and supporters.

Find us online at https://genlyme.org.

    Communicating About Lyme Disease - Ep 19

    Communicating About Lyme Disease - Ep 19

    There's so much to say about Lyme and other tick-borne diseases. As individuals and as a community, we fight hard to explain what we're going through, what Lyme disease is, what we need for things to get better, and a lot more.

    Combined with complex social dynamics that come up when you get sick, plus potential personal communication issues that people with Lyme often have due to neurological symptoms, the whole thing becomes a lot to unpack.

    That's why we wanted to talk about it! It's also why we (at Gen Lyme) provide the resources we do to help people communicate on an individual and community basis--to help all of this get a lot easier.

    This episode features Brooke Stoddard, Jennifer Hoffmann, Haley DiBiase, and Jesse Ruben from ⁠Generation Lyme⁠--a community for people facing Lyme disease.

    Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast!

    Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube.

    Connect with us at ⁠genlyme.org⁠.

    Join the Gen Lyme community on Instagram!

    • 58 min
    How to Set Boundaries When You Have Lyme Disease - Ep 18

    How to Set Boundaries When You Have Lyme Disease - Ep 18

    Has Lyme disease made it harder for you to set & maintain boundaries? Has it complicated your relationships with people and made it harder to communicate and feel heard by the people in your life? If so, you're not alone--and this episode is for you.

    We talk about our experiences setting, communicating, and changing boundaries through our Lyme journeys, and we share tips that may help you navigate what you’re going through.

    This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease.

    Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube.

    Connect with us at genlyme.org.

    Join the Gen Lyme community on Instagram!

    For more tips on navigating Lyme/illness and boundaries, check out our ⁠Love Languages Blog⁠.

    • 53 min
    Why Lyme Stories Matter - Ep 17

    Why Lyme Stories Matter - Ep 17

    Has another person's Lyme story helped you in your journey? Has a story of any kind (a favorite movie, tv show, book, etc.) helped you get through a hard time? If so, you're not alone.

    Join us for this incredible conversation about how stories have shaped and changed our lives. We share how sharing our own Lyme stories has helped us heal and find community—and why we're so passionate about helping others share their stories. 

    If you want to share your story with the Gen Lyme community, email us at info@genlyme.org!

    This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease.

    Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube.

    Connect with us at genlyme.org.

    Join the Gen Lyme community on Instagram!

    • 57 min
    Reflecting on Recent Lyme News, Treatment Plans, & Our Progress Together - Ep 16

    Reflecting on Recent Lyme News, Treatment Plans, & Our Progress Together - Ep 16

    Around times of illness, reflecting can bring all kinds of emotions. Some phases bring heartbreak. Others are cause for celebration. In every part of our journey, it can be helpful for us to reflect.

    Sometimes, we have to step back to see how we're moving forward. Other times, stepping back to reflect helps us see the whole picture.

    Whatever comes up for you when reflecting (or just seeing the word), it’s ok. In this episode, we talk about all of it: personal reflection, Lyme disease representation, and our commitment to the Lyme community.

    Content warning: discussion of a recent news story covering a Lyme disease death. The story: Maine hospital ordered to pay $6.5 million for wrongful Lyme death. We're thinking about Peter Smith and his family.

    Other notes: If you notice an abrupt topic switch: we had a technological glitch & took a half-hour break during recording.

    This episode features Brooke Stoddard, Jennifer Hoffmann, and Jesse Ruben from ⁠Generation Lyme⁠--a community for people facing Lyme disease.

    Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube.

    Connect with us at ⁠genlyme.org⁠.

    Join the Gen Lyme community on ⁠Instagram⁠!

    • 54 min
    Change is hard. So how do we navigate it? - Ep 15

    Change is hard. So how do we navigate it? - Ep 15

    Many things in life can make us (and our loved ones) change. Lyme disease is one of them. So what do we do, how do we feel about it, and how can we navigate it? This episode covers *many* of the changes we have gone through and how we feel about them: treatments (herbs, antibiotics, SOT), lifestyle (alcohol, school), relationships (so much info for supporters!), perspectives (mindset), and a lot more. We also answer a question from a parent. 

    Change can be necessary, welcomed, scary, and uncertain--and all at the same time. We're here to talk about all of it.

    This episode features Brooke Stoddard, Jennifer Hoffmann, Haley DiBiase, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease.

    Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube.

    Connect with us at genlyme.org.

    To find resources for Lyme supporters (including tips on how to help your loved ones & Gen Lyme Meet-Up info), visit genlyme.org/blog-for-supporters.

    Join the Gen Lyme community on Instagram!

    • 54 min
    Coping When Lyme Makes Life Feel Out Of Control: "What Are We Gonna Do Without Bagels?!" - Ep 14

    Coping When Lyme Makes Life Feel Out Of Control: "What Are We Gonna Do Without Bagels?!" - Ep 14

    Have you ever struggled with control issues (either your own or imposed on you?) If so, you're not alone.

    Control issues are extremely common in the Lyme/chronic illness/disability communities (and so many others), yet they aren't talked about nearly as much as they should be. This episode tackles a huge topic we deal with on a daily basis in a variety of ways, covering everything from Lyme rage episodes, dietary and lifestyle adjustments, relationships, chemical sensitivities, *laundry,* and advice for what to do when everything feels overwhelming.

    And, to stay on theme, there may even be a moment where this episode about "control" goes off the rails just enough to land us in a laughing fit. We hope you get something out of this one!

    Content warning: discussion of food, disordered relationships with food, and mention of eating disorders.

    This episode features Brooke Stoddard, Jennifer Hoffmann, Haley DiBiase, and Jesse Ruben from Generation Lyme--a community for people facing Lyme disease.

    Your subscriptions and reviews provide tremendous value to our growing podcast. If you like what you heard today, please like, rate, and review The Generation Lyme Podcast! Stream the audio version of The Generation Lyme Podcast on Spotify, Apple Podcasts, and your other favorite platforms, and watch on YouTube.

    Connect with us at genlyme.org.

    Join the Gen Lyme community on Instagram!

    • 56 min

Customer Reviews

4.3 out of 5
10 Ratings

10 Ratings

gggggggggggggxyz ,

Thank you

Thank you for all of your amazing support and hard work while dealing with such difficult health issues.
I’m a mother who gave both her children lyme, Babesia, Bartonella…

KaityLivi ,

Can’t wait for more podcasts!

I loved hearing about Haley’s journey back to heath and I’m so impressed with her ability to overcome. Although I need to know more about this parasites in the brain 😳

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