64 episodes
From The Heart: The HeartKids Podcast HeartKids
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- Health & Fitness
Join us as we explore stories of Australians impacted by childhood-onset heart disease (CoHD) - including congenital heart disease. We'll tackle the big issues - what it's like receiving a new diagnosis, preparing for open-heart surgery, looking after your mental health, and much more. The show features cardiologists and experts sharing their knowledge about the topics you want to know more about. This show is for anyone impacted by CoHD - parents, carers, family members, friends, and those of us living with CoHD. Your hosts are Rachael Knowles, a young adult with CoHD, and Sami Glastonbury, a mother of two children with CoHD.From The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for all people impacted by CoHD.
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Better Care for RHD: Insights from Erin Ferguson at Happy Heart Clinic
In this episode of From the Heart, Tahnee Jash is joined by Erin Ferguson, a dedicated paediatric Rheumatic Heart Disease (RHD) clinical nurse consultant from the Happy Heart Clinic in Far North Queensland. Erin discusses her team's efforts to improve healthcare experiences for young patients with RHD, focusing on their practical and supportive approaches. Learn about the strategies that are making a difference in providing consistent and equitable care to both RHD and CoHD patients across Au...
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Resilience & Discovery: Sarah's heart journey
In this episode, Rachael chats to Sarah Purdom, a wonderful heart adult who is not only navigating life with a heart condition (Transposition of the Great Arteries (DTGA) and pulmonary stenosis) but is also excelling in her academic and personal pursuits. Sarah is currently in her Honours year in Geology at the University of Tasmania, where she has been exploring the origins of gold within granite formations (wow)!Beyond her academic achievements, Sarah manages part-time work while exploring ...
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Creativity, optimism, and community: CJ's journey with bicuspid aortic valve
In this episode, meet CJ , a 17-year-old from Melbourne, Victoria, who shares his experiences of growing up with bicuspid aortic valve. Tune in to hear CJ's story, how he managed his surgeries, and finds positivity through art and support through friends and community.CREDITSHost: Rachael KnowlesGuest: CJ GagliardiProducer: Becky OakleyHEARTKIDSFrom The Heart is brought to you by HeartKids, the only national not-for-profit solely focused on supporting and advocating for people affected ...
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Amber Adamson - Ask a nurse anything!
Welcome to a very special episode of the HeartKids From The Heart. n this episode Rachael chats with Amber Adamson, a dedicated Clinical Nurse Consultant at Prince Charles Hospital, who specialises in Adult Congenital Heart Disease. Before the episode was recorded, we put out a call on social media for young people and adults to submit questions to be answered on air, and you responded with thoughtful topics and queries about navigating life and healthcare with a heart condition. So, in this ...
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My heart kid dad journey: From childhood to adulthood - Matt's Story
In this episode of "From the Heart," join our host, Sami, for a conversation with Matt Tognini. Matt is the father of a heart kid, Alessandra, who was born with a complex congenital heart condition.Sami and Matt chat about the impacts of flying across the country for heart surgery, the parent perspective of the process of transition from paediatric care to adult care, and supporting his heart kid adult as she prepares for upcoming surgery.HEARTKIDSFrom The Heart is brought to you by HeartKids...
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Missing School, and the impact of critical health on education, and social experiences - Megan Gilmour
In this episode of "From the Heart," join our host, Sami, for a conversation with Missing School CEO Megan Gilmour.Sami and Megan chat about the impact of periods of absence from school, for those with critical health concerns. Megan takes us through initiatives that Missing School can put in place, or connections to additional supports, that assist kids who are experiencing loneliness, and gaps in learning while away from the classroom.HEARTKIDSFrom The Heart is brought to you by HeartKids, ...