36 episodes

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

Lichen Sclerosus Podcas‪t‬ Kathy

    • Health & Fitness
    • 4.8 • 16 Ratings

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

    Jaclyn's Lost Labia Journey: Finding Community

    Jaclyn's Lost Labia Journey: Finding Community

    I'm excited to bring you the second part of my conversation with my LS sister, Jaclyn. In this episode, she shares what it took to go from suffering so bad she had to stop having sex with her new husband to having multi-orgasm sex multiple times a week.

    I hope this story inspires you because you can do this too! I truly believe you can. It won't be easy but you absolutely can.

    • 37 min
    Jaclyn's Lost Labia Journey: Surviving Alone

    Jaclyn's Lost Labia Journey: Surviving Alone

    Hey! Welcome to the Lichen Sclerosus Podcast. I have a very special LS Warrior with us today, Jaclyn, who is going to share the story of her journey with Lichen Sclerosus. Her progression from feeling alone and hopeless to empowered and thriving is captivating! Jaclyn is truly a beacon of light in our Lichen Sclerosus community and her story is sure to captivate you.

    • 54 min
    How to Snap Out of Appointment Anxiety

    How to Snap Out of Appointment Anxiety

    This week we talk about an awful drive I recently had to the doctor's office.

    I was overtaken by negative thoughts and emotions of what the future might bring. Eventually, I pulled myself out of those negative thoughts and emotions so I could do what I needed to do.

    I want to share with you my technique for staying in the present and changing my focus.

    • 27 min
    Carrie Bock’s LS Journey: From Pain To Love

    Carrie Bock’s LS Journey: From Pain To Love

    After the demise of her 10-year marriage, she was determined to find out what was happening to her body. It took many more years for her to get a diagnosis, find acceptance, and ultimately love. Not just romantic love but love for herself.

    I invite you to listen to this brave woman's journey because it may just inspire you to take the first step on yours.

    • 1 hr
    How are reproductive age women and steroids similar with Dr. Jill Krapf

    How are reproductive age women and steroids similar with Dr. Jill Krapf

    Welcome to season 2 of Lichen Sclerosus Podcast.
    For our first episode, the esteemed Dr. Jill Krapf and I discuss new research into women of reproductive age with LS. This under-studied group is often misdiagnosed or turned away being told ridiculous things.
    If you're between 18 and 50 and want to be part of the research head over to lichensclerosuspodcast.com/survey and fill out the questionnaire. Make your voice heard.
    We also discuss how the proper application of steroids can make a difference to our disease. She lays out exactly how to use, when to use, and how often to use the medication.
    I hope you enjoy this first episode back because I missed you and can't wait to start talking to you again.
    If you haven't signed up for the virtual meetups yet, do it now! Go to lichensclerosuspodcast.com/connect. we meet every other Saturday from 2-4 and 7-9 PM EST.
    You can follow Dr. Jill on IG @jillkrapfmd, the CVVD @the.CVVD, and myself @lichensclerosuspodcast.
    To read the full notes go to lichensclerosuspodcast.com/drjill.
    I hope you have an amazing week and I will talk to you next time.
    Bye!
     

    • 53 min
    How GRATITUDE can top FEAR and ANXIETY when you have LICHEN SCLEROSUS

    How GRATITUDE can top FEAR and ANXIETY when you have LICHEN SCLEROSUS

    I woke up this Thanksgiving with a message of gratitude on my heart.

    Please don't let the fear and anxiety of Lichen Sclerosus pull you from the joy and happiness in your life. Find and focus on the pockets of gratitude and positivity.

    Make sure you sign up for next months virtual meetup at https://www.subscribepage.com/lsconnect

    And don't forget to follow me:

    IG - https://www.instagram.com/lichensclerosuspodcast/

    • 25 min

Customer Reviews

4.8 out of 5
16 Ratings

16 Ratings

Madi Lee71 ,

Affirming, comforting, educational

Thank you so much for this podcast. I’m 24 and this diagnosis has flipped my life upside down. This podcast is so affirming & comforting - I have learned so much from your amazing advise. Thank you more than words can express. Sending healing energy your way.

charliethecharlestonchew ,

Very helpful for anyone making sense of this (for themselves or their partner)

My wife recently got diagnosed with LS and it just brings up so many questions. This podcast is really helpful in learning to be a support. I greatly appreciate Kathy’s vulnerability and all the helpful resources - it’s not just medical stuff but it talks through all kinds of questions that I hear my wife trying to make sense of - how to relate with doctors, what this means for her emotionally and for us. Thank you!

iveliz413 ,

Amazing

I’m so happy I found this podcast. Thank you for stepping up and creating this sisterhood for women that have LS. I’ll be emailing you soon. I don’t know you, but I already have a connection with you. Thank you again. 😌❤️

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