56 episodes

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

Lichen Sclerosus Podcast Kathy

    • Health & Fitness
    • 4.9 • 37 Ratings

Our journal of learning about and living with Lichen Sclerosus from a patient's point of view. Bringing community and awareness to a disorder that hardly anyone knows about. Join me as I research Lichen Sclerosus from every angle and share my struggles living with it. My hope is to build a community of survivors so we can affect change in our lives and the research.

    Struggling with Stress and LS? You need to hear this!

    Struggling with Stress and LS? You need to hear this!

    Hey! Welcome! I'm on a bit of a hiatus with Podcast as I build out Lichen Sclerosus Support Network, but, when my girl Jaclyn from The Lost Labia Chronicles told me about her latest project, I was like, "girl, we need to make a podcast episode and let our community know". So here we are! If you experience a lot of stress from living with lichen sclerosus, you definitely want to listen to this amazing opportunity that I just know you will want in on. Vagus Nerve and Lichen Scleorsus Workshop June 21 and 23 6-8 PM EDT - Get all the information and signup at lostlabia.com/stressworkshop.
    If you are in the Philadelphia or Fl area I will be in your area soon for an in-person meetup! Signup for our newsletter at lssupport.net to get notified about dates and times.
    As always feel free to email me at kathy@lssupport.net.

    • 27 min
    Is Somatic Sex Education for YOU?

    Is Somatic Sex Education for YOU?

    Today we talk to Shauna Farabaugh, a somatic sex educator about how it can help us have a sexual rebirth.
    Shauna is one of our Holistic Healing Summit speakers. We hope you can join us. With over 30 sessions dedicated to approaching LS from a whole-body approach, there's something for every LS Warrior.
    Find out more at holistichealingsummit.live
    We're excited to announce the Get Your Sexy Back program! If LS has taken your mojo and you're ready to take it back this is the class for you!
    Find out more at lswarrior.com/rebirth
    Want to reach out to Shauna? Awesome!
    Email her at farabaugh.shauna@gmail.com.
    And check out her website at
    sexualityintransition.com
     
    As always email me at kathy@lssupport.net and follow me on IG @lichensclerosuspodcast!



     





     





     

    • 25 min
    How Angie Alt Went From Lichen Sclerosus Agony to AIP Joy

    How Angie Alt Went From Lichen Sclerosus Agony to AIP Joy

    I am so excited to bring you Angie Alt! Angie is a Certified Health Coach with the Institute of Integrative Nutrition as well as a Functional Nutritional Therapy Consultant with the Nutritional Therapy Association. She's one of the originators of the Autoimmune Protocol, also known as AIP. Listen as she walks us through her LS story and discovers diet and lifestyle changes that keep her in remission for 19 years.
    If you want to work with Angie or become an AIP certified trainer check out the links below.
    www.autoimmunewellness.com
    sadtoaip.com for AIP coaching program
    www.aipcertified.com
    Shout out to Lichen Sclerosus Support Network. We're currently working on our annual Holistic Healing Summit. We need volunteers. If you can donate some of your time please fill out our volunteer form at lssupport.net/volunteers.
    If you're in need of support, join us in the next LS Support Virtual Meetup. Signup at lssupport.net/connect for more details.
     
     

    • 53 min
    How to apply your LS steroid treatment correctly with Dr. Jill Krapf

    How to apply your LS steroid treatment correctly with Dr. Jill Krapf

    Were you given a steroid treatment for your LS but not told when or how to use it? Or were the directions unclear, but you're not sure where to turn to for information?
    Don't worry because we get answers to those questions in this episode and more with Dr. Jill Krapf, leading LS researcher and specialist.
    To contact and work with Dr. Krapf, go to www.cvvd.org and fill out their contact form or call them. You can also follow Dr. Krapf on Instagram and Facebook @jillkrapfmd.
    Thanks to, Lichen Sclerosus Support Network (LSSN). LSSN is helping get people diagnosed earlier and get the treatment and care they deserve. Follow them on IG and FB @lichensclerosussupportnetwork and visit their new website lssupportnetwork.org.
    Also, be sure to check out our membership at lssupport.net/joinwarriors.
    Or join us every other Saturday in the free virtual meetups. Find out more information and signup at lssupport.net/connect.

    • 43 min
    Why are health goals important?

    Why are health goals important?

    It's a new year and a perfect time to set goals. I'm not just talking about life goals, either. I'm talking about health goals!
    We set at least one life and one LS goal we want to work on inside our private membership. Every week we set mini-goals to get us to our big goals.
    And let me tell you, this process WORKS. We've had so many amazing transformations working through this process.
    In this episode, I walk you through why it's important to set health goals and how to start doing it.
    If you're interested in working towards your goals with a group of like-minded women, join the LS Warriors today! We're just getting started. We have our first live meeting on 1/14/22. We'll be working together towards acceptance and resilience for the next five months.
    Jump on the train and start making headway on your health journey. Let us support you along the way.
    Go to lssupport.net/joinwarriors to get your first month free.
    I can't wait to see you in the membership.
    If you have any questions feel free to email me at kathy@lssupport.net.
     

    • 23 min
    Top 5 Episodes of 2021

    Top 5 Episodes of 2021

    Welcome. If you’ve been listening to the podcast for a while, I want to give you a shout-out and thank you for sticking with me this year. This was the year of transition, and because of that, there weren’t very many episodes published, but you kept coming back. I appreciate you so much!
    If you’ve just found me, I want to thank you for listening, and I hope you get value out of it. At the very least, know that you are not alone.
    Since this is the last episode of 2021, I thought it would be fun to look back at the top five episodes of the year. These are fan favorites, and I totally get why. So if you’re looking for something to keep you busy while I’m away for the next two weeks, get ready to mark these down so you can listen to them later.
    In no particular order, the first episode is my interview with Dr. Jill Krapf, titled “How are reproductive age women and steroids similar, with Dr. Jill Krapf.” This episode discusses research into younger women with Lichen Sclerosus and the proper way to use ultra-potent steroids as a treatment. You can access the episode at lssupport.net/drjill.
    The next episode is all about appointment anxiety. It’s titled “How to Snap Out of Appointment Anxiety.” I share a recent experience of appointment anxiety and the techniques I used to snap out of it. Go to lssupport.net/appointmentanxiety to listen to this episode and for complete show notes.
    The next episode is “The Lost Labia Journey: Finding Community.” If you’re looking for inspiration and hope to get you through the tough times, this is the episode for you. Jaclyn is an LS Warrior, as well as an LS advocate. This is the second episode of a two-part series detailing her more than decade-long battle with LS. We find out how she not only learned to manage her disease but used it to better the lives of others living with LS.
    She is now the author of The Lost Labia Chronicles blog, which you can find at Lostlabia.com, and has recently released her first eBook, titled “Three Key Things To Have In Place When You Have Vulvar Lichen Sclerosus,” which you can get for free at lostlabia.com/ebook.
    Listen to her episode at lssupport.net/findingcommunity.
    Have you listened to Ashley Stump PFPT’s episode “Pelvic Floor Physical Therapy Can Help You Feel Better”? It’s the next top five episode of 2021.
    If you’ve ever wondered or thought about PFPT, this is the episode for you! Ashley shared so much amazing information on how PFPT can help those of us with LS. Check it out at lssupport.net/pfpt.
    “Lichen Sclerosus And Diet? Does The Research Look Good?” rounds out the top five. Dietitian Erica Eberl did a deep dive into LS research, looking for any connection between diet and LS. You can listen to what she found and more at lssupport.net/diet.
    I couldn’t leave you without mentioning an honorable mention: “How to keep your quality of life with Lichen Sclerosus.” Have you stopped doing things you loved, using your favorite products, or eating your favorite foods because you heard it wasn’t good for your LS? I’m here to ask you, “How do you know?” Before you go letting LS dictate how and what you do in your life, listen to this episode, lssupport.net/lscontrol.
    I hope you have a happy new year, and I look forward to talking to you in 2022.

    • 30 min

Customer Reviews

4.9 out of 5
37 Ratings

37 Ratings

Lilllb2020 ,

Thank you!!!!

I am so grateful I found your podcast, the work you were doing is amazing and so very helpful! I was just diagnosed with LS three days ago & never hearing of this before, your podcast and information has helped me tremendously. I am only 6 to 7 episodes into your podcast yet every single one has addressed a concern, a feeling & a worry that I am feeling. The fact that you r so real with your emotions & experience has kept me from falling apart. I also luv the humor u throw in to lighten the overwhelming diagnosis. Thank u so much!!!! I hope u know what a difference u r making to all of us who r being blindsided by this issue.

Jenna albany ny ,

I feel so lucky to have found this podcast

This podcast is relatable and informative and connects you with really great resources to help you come to terms and live better with your LS diagnosis. Thank you Kathy and all the experts she has had on!

Nicole Ayers ,

Supportive Community

Valuable content and community care is built into every episode. This podcast is a go-to resource for women who have lichen sclerosus and the people who support them.

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