34 episodes
My Lupus Living Room Lupus Foundation of America Greater Ohio Chapter
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- Health & Fitness
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5.0 • 7 Ratings
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The Lupus Foundation of America, Greater Ohio Chapter welcomes you to My Lupus Living Room, a space where we get real about what it’s like to live with lupus. Join our host, chapter President and CEO, Suzanne Tierney, for candid conversations about topics that so often get overlooked. You’ll hear from our Ohio lupus community— including patients, caregivers, and medical experts— about the highs, lows, insights, and advice. Thanks for stopping by My Lupus Living Room. We hope you stay for a while.
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Dr Van Warren- Patient Panel
For this month's episode we wanted to share Dr. Van Warren's presentation from our Passport to Better Health event in April. Dr. Warren provides a broad overview of lupus and answers patient questions.
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Episode 33 - Ashley Houston - Honoring Dontasia Nevins
On this episode Suzanne sits down with Ashley Houston. Ashley's sister, Dontasia Nevins, passed away in January of 2023 from complications of lupus. Ashley discusses her sisters battle with lupus, keeping her memory alive, and what she does to raise awareness for lupus warriors!
Visit https://www.facebook.com/OhioSkateForLife to learn more about the incredible work they do.
If you would like to share your story with lupus and help inspire others please email Alex@lupusgreaterohio.org -
Episode 32 - Samantha - Patient Navigator
Suzanne sits down with our newest Patient Navigator Samantha to discuss her lupus journey, role at the chapter, and so much more. If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer Alex.
Alex@lupusgreaterohio.org -
Episode 31 - Dr. Hermine Brunner, MD, MSc, MBA
On this episode of My Lupus Living Room Suzanne connects with Dr. Hermine Brunner, Director of Rheumatology, at Cincinnati Children's Hospital. Dr. Brunner discuss pediatric lupus nephritis, and her exciting project known as the PLUMM Study!
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Episode 30 - Patti Esparza
Suzanne sits down with Patti Esparza to discuss Patti's remarkable journey with lupus nephritis. Patti opens up about the the challenges she faced including a having a kidney transplant as well as the importance of having a strong support system to lean on along the way.
If you would like to empower fellow lupians by sharing your journey please email alex@lupusgreaterohio.org -
Episode 29 - Lisa's Lucky Lupus Journey
Alex sits down with Lisa Brieding on this episode of the podcast. Lisa shares her story of getting diagnosed with lupus, becoming a facilitator & patient navigator with our chapter, and why she feels lucky when it comes to her journey!
Customer Reviews
Great Podcast!
The topics and guest on this show are very informative and inspiring. I highly recommend this podcast to anyone dealing with Lupus or who have friends and family who are.