Myelofibrosis CancerCare Connect Education Workshops CancerCare

* Overview of Infection, Its Prevention, Management & Treatment in People Living with Cancer
* Understanding Drug-Resistant Infection & Cancer
* Causes & Risk Factors for Infections
* Why People Living with Cancer May Be More Prone to Infection
* Know Your Risk of Infection
* What is AMR (Antimicrobial Resistance)?
* Questions to Ask Your Health Care Team about Antimicrobial Resistance (AMR)
* Signs of Infection
* Parts of the Body Most Likely to Get Infection
* Watching For & Preventing Infection in People Living with Cancer
* The Role of Vaccinations & Flu Shots
* How Drug-Resistant Infections May be Treated at Home
* Working with Your Health Care Team to Prevent Your Risk of Infection
* The Increasing Role of Telehealth/Telemedicine Appointments
* Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & Discussion of OpenNotes
* Key Questions to Ask Your Health Care Team about Follow-Up Care
* Questions for Our Panel of Experts

* Overview of Clinical Trials and Why They Are Important, in the Context of COVID-19
* Understanding Your Treatment Options, including Clinical Trials
* Concerns about Participating in Clinical Trials
* Types of Clinical Trials
* What Happens in a Clinical Trial?
* The Meaning of Informed Consent
* Benefits and Risks of Participation, in the Context of COVID-19
* How and Where Clinical Trials are Conducted
* How to Participate in Clinical Trials
* Specific Questions to Ask Your Health Care Team about Clinical Trial Participation, in the Context of COVID-19
* The Increasing Role of Telehealth/Telemedicine Appointments
* Guidelines for Preparing for Telehealth/Telemedicine Appointments, including Technology, List of Questions & OpenNotes Discussion
* Accessing Resources for Clinical Trials
* Questions for Our Panel of Experts

* Understanding Precision Medicine: Overview & Value of Precision Medicine
* How Precision Medicine is Different from Targeted Treatments?
* Precision Medicine’s Role in Informing Treatment Decisions: Predicting Response to Treatment
* The Role of Precision Medicine in Deciding the Treatment for Lung Cancer, Lymphoma, Leukemia, Colon Cancer & Breast Cancer
* Talking with Your Health Care Team about Precision Medicine & Its Benefits
* The Role of the Pathologist
* OpenNotes - Asking Your Healthcare Team & Pathologist to Help You Understand OpenNotes
* The Increasing Role of Telehealth/Telemedicine Appointments
* How Precision Medicine Contributes to Treatment Options & Quality of Life
* Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology & Prepared List of Questions on Precision Medicine & OpenNotes
* Questions for Our Panel of Experts

* Overview & Types of Transplantation, in the Context of COVID-19
* Transplantation as a Treatment Option for Multiple Myeloma
* Leukemia
* Lymphoma
* Myeloproliferative Neoplasms (MPN)
* MDS
* Guidelines for Transplantation
* Searching for a Donor
* Follow-Up Care
* Practical Tips to Manage Post Treatment Concerns
* Graft vs. Host Disease
* Clinical Trial Updates
* Communicating with Your Health Care Team about Quality-of-Life Concerns
* The Increasing Role of Telehealth/Telemedicine Appointments
* Guidelines to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & OpenNotes
* Questions for Our Panel of Experts

* Disproportionate Burden of COVID-19 & Cancer on People of Color
* Why COVID-19 Vaccine Equity Has Never Been More Important for People Living with Cancer
* Concerns about Safety of COVID-19 Vaccines
* Taking Your COVID-19 Vaccine on Schedule - Adherence
* Benefits of COVID-19 Vaccine
* What are Social Determinants of Health
* Food & Pharmacy Deserts
* Influence of the Local & Regional Environment in Which You Live
* COVID-19’s Effect on Health Care Systems
* How Race May Impact:
* Access to Oncology Care
* Management of Treatment Side Effects & Pain
* How Housing, Cost of Treatment & Care Affect Your Health
* Food Insecurity: Practical Resources to Increase Your Access to Food
* How Telehealth May Help in Advancing Your Health Equity
* Guidelines to Communicate with Your Health Care Team
* Roadmap to Prepare for Telehealth/Telemedicine Appointments, including Technology, Prepared List of Questions & Discussion of OpenNotes
* Questions for Our Panel of Experts

* Overview & Updates on Myelofibrosis (MF), in the Context of COVID-19
* Staging & Diagnosing
* Current Standard of Care
* New & Emerging Treatment Approaches
* Understanding Common Signs & Symptoms
* Strategies to Reduce Potential Complications of MF
* Clinical Trial Updates
* How Research Contributes to Your Treatment Options
* Working with Your Health Care Team to Manage Symptoms, Treatment Side Effects, Discomfort & Pain
* The Importance of Adherence to Treatment
* Communicating with Your Health Care Team about Staging & Progression
* Talking with Your Doctor about What Symptoms Should Prompt You or Your Caregiver to Call the Office
* Quality-of-Life Concerns & Recommendations to Improve Your Quality-of-Life
* Guidelines to Prepare for Telehealth Appointments with Your Health Care Team, including Technology & Prepared List of Questions
* Questions for Our Panel of Experts