Patient POV Jess Hay

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

Somedays is a period pain relief company that I have absolutely fell in love with!!

For a 15% off discount code go to: https://somedays.com/JESS_AND_ELDA or use JESS_AND_ELDA at check out!

Today we chatted with Dorian (insta: summit__health) who is a functional medicine practitioner trained as a nutritionist and has autoimmune conditions himself!! He has a facebook group which he provides longer videos (see his instagram for more information) as well as works 1:1 with clients from around the world (DM him if you want to work with him)!!

Notes:


What he does! Solutions covered as a nutritionist including various facets covered like nutrition, sleep, stress management and exercise.


Nutrition tweaks and common issues 


Benefits of exercise for chronic illness - Explains how exercise can help adapt the body positively by increasing strength and improving immune system balance.


Physiological mechanisms of chronic illness - Describes how chronic stress leads to cortisol resistance and immune system deregulation as an emergency response.


Exercise for Chronic Illnesses - Discussion on the benefits of strength training over cardio for chronic conditions.


Gut Microbiome and Chronic Inflammation - Explanation of how gut microbiome and poor function can lead to immune stimulation and chronic conditions.


Improving Gut Function and Microbiome - Discussion on interventions like improving nervous system function, supplementation, and lifestyle habits to support the gut.

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

Somedays is a period pain relief company that I have absolutely fell in love with!!

For a 15% off discount code go to: https://somedays.com/JESS_AND_ELDA or use JESS_AND_ELDA at check out!

Today we hear from Stephanie (insta: spoonfulsofchronic) who shares her story with Ankylosing spondylitis, endometriosis, adenomyosis, fibromyalgia, hidradenitis Supprativa. She works as a specialist oncology and haematology physiotherapist which provide a great foundation for our conversation to pair her personal and professional experience. 

Notes:


Things that help with the pain and fatigue is heat, sitting down, animal support, support from people to help you drive when you have more pain 


Period pain that affects your daily life is not normal!!


Advocate for yourself and don’t give up! You know your body better than anyone else, so keep pushing!


Allowing at least one person in because a support system is important! 


Be kind to yourself! Whatever you need to do to get through a flare, do it (ex: cancel your plans to go out - and your true friends should understand and respect that)

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

Today we chatted with Amanda (insta: charlie.the.service.doodle) who is a fellow dog mom and chronic illness warrior. She shares her journey with,

Notes:


For college students: Print out hand out or powerpoints from professors 


Physical therapy to work on stabilization for Ehlers Danlos Syndrome (EDS)


Coping strategies for pain: ice pack, heating pads, and lidocaine patches


Service dog provides an increased independence


Body braid for EDS (brace for body)


You are not alone!


Dysautonomia International: https://www.dysautonomiainternational.org/

Vitassium (products like their salt capsules) https://www.amazon.ca/SaltStick-Vitassium-Buffered-Electrolyte-Supplement/dp/B076MXR1LV

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! Visit patientpov.ca for episodes, updates, resources, blog, and freebies!!

Today we chatted with Stephanie (insta: Chronically_stephanie_) who is a mom and chronic illness warrior. She shares her journey with post Wegener’s Granulomatosis, psoriatic arthritis, Ankylosing spondylitis, chronic migraines,

Notes:


You can “fire” your doctor if they are not taking your concerns seriously


I don’t want a diagnosis and we don’t want to be sick but we do want to be able to have the correct treatment, which can only happen with the right diagnosis


Even when you have a diagnosis, it may take a to find a treatment that works and it may work well for you now but that could change


Have things that you need close to you whether you set up a mini kitchenette or you have a bag that has your essentials you keep with you all the time, it is important to have what you need around you


Bearable - medication and symptom tracker app


Hang in there 


Keep going, don’t give up

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Erika (insta: erikajoysneath) who is an author and teacher. She shares her journey with post injury chronic pain, high functioning anxiety, fibromyalgia, and endometriosis.

Notes:


Her website: https://erikajoysneath.com/ 


Have to support mental health to support physical health and vice versa 


She wrote a book about Adalene Plays Many Ways, a children’s book about how chronic pain and how a day looks differently for two people https://www.amazon.ca/Adalene-Plays-Many-Ways-experiencing/dp/B0BTKXY349 


Accept the present and look forward rather than questioning why something happened to you (This took her years to do, this isn’t an overnight mindset switch)


Ask for help


Don’t let your anger or resentment towards your body control how far you are pushing your body


Care for your mental health


Don’t sacrifice your health for your job


Accept what you did in the past as doing the best you did with the information you had at the time


Continue to be brave and ask for help!


Find 2-3 people who will be in your corner 


Give yourself TONs of grace (extra scope of grace) 

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Olivia (insta: oliviardennis) who has a Christian based chronic illness page (insta: Yourpainhasapurpose). She shares their journey with POTS, CMT, GP, hEDS, chronic migraine, fibromyalgia, IBS, GERD, and mental health conditions. She also makes care packages for chronically ill teens called spoonie boxes!

Notes:


Slow down and give yourself compassion


Salt/electrolyte recommendations: Vitassium salt pills, Liquid IV, LMNT, pedialyte 


Ice pack https://www.releafpack.com


Coping skills



Therapy


Deep breathing


Grounding


Affirmations 


Mindfulness


Journaling



Self care activities



Spending time with pets


Watching a show or movie


Lighting a candle


Reading a book


Listening to music



Support groups



Even if (insta: @weareeven) bible study support group for women with disabilities https://linktr.ee/weareevenif


Promise: support group for people with CMT https://www.cmtausa.org/get-involved/cmta-compass/



Take it one day at a time, he present and mindful


Don’t give up - there is support and love out there for you


Continue giving yourself grace and compassion


Don’t over do yourself


Trust your gut BUT if you have stomach issues, maybe don’t