Ep. 25 - Olivia Patient POV

Hello Hello! I’m Jess (insta: jess_and_elda) and this is Patient POV! 

Today we chatted with Olivia (insta: oliviardennis) who has a Christian based chronic illness page (insta: Yourpainhasapurpose). She shares their journey with POTS, CMT, GP, hEDS, chronic migraine, fibromyalgia, IBS, GERD, and mental health conditions. She also makes care packages for chronically ill teens called spoonie boxes!

Notes:


Slow down and give yourself compassion


Salt/electrolyte recommendations: Vitassium salt pills, Liquid IV, LMNT, pedialyte 


Ice pack https://www.releafpack.com


Coping skills



Therapy


Deep breathing


Grounding


Affirmations 


Mindfulness


Journaling



Self care activities



Spending time with pets


Watching a show or movie


Lighting a candle


Reading a book


Listening to music



Support groups



Even if (insta: @weareeven) bible study support group for women with disabilities https://linktr.ee/weareevenif


Promise: support group for people with CMT https://www.cmtausa.org/get-involved/cmta-compass/



Take it one day at a time, he present and mindful


Don’t give up - there is support and love out there for you


Continue giving yourself grace and compassion


Don’t over do yourself


Trust your gut BUT if you have stomach issues, maybe don’t