10 episodes
Uncommon Lungs: Perspectives From the CF Community Everyday CF by Vertex Pharmaceuticals
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- Health & Fitness
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5.0 • 8 Ratings
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Everyone’s experience with cystic fibrosis (CF) is unique. Listen along as different individuals in the community share their diverse perspectives on how CF impacts day-to-day life, and get useful information to help empower you in your own journey.
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Finding a Flow That Fits You
Get to know opera singer, yoga teacher, community leader, and entrepreneur Katie as she explains the unique experiences that led her to where she is today and shares how she incorporates mindfulness and joy into her routine on a daily basis.
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Take a Mindful Moment
Find a quiet space and follow along with this relaxing mindfulness meditation led by yoga teacher, Katie Malik.
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Embracing Your Personal Journey with CF
From leaving Guatemala with her family in search of crucial CF care to getting her masters and becoming a bilingual speech-language pathologist, Maria shares how her positive outlook and strong support system helped her stay true to herself every step of the way.
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Reflecting on Past Conversations
Reminisce on highlights from previous podcast episodes and get some hints about future episode topics with host, Julia Rae.
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Making Your Career Work For You
Finding a career you enjoy can be so fulfilling. John and Julia discuss how they’ve each cultivated a work-life balance that fits their lifestyle and HR expert, Susan, gives examples of workplace accommodations and job search tips.
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Facing Finances
Caregiver, Magen, gets real about the financial challenges she has faced as a parent of twins with CF and social worker, Amanda, gives advice about making difficult life decisions and finding financial assistance.
Customer Reviews
Grateful
I love this community & this podcast does a great job at exemplifying the fact that CF warriors, their caregivers, the researchers, and their care teams do an incredible job of rallying around living every day to the fullest while fighting hard to change the story of cystic fibrosis for the entire CF community.
Grateful!
Thank you for sharing. As an aunt of two with CF, it is often a challenge to know how to support them and truly understand how they live their lives… it makes me feel closer to them to be educated and this podcast is wonderful to help me do that. Thank you!