Dementia Researcher Dementia Researcher

This episode of the Dementia Researcher Podcast is hosted by Dr. Annalise Rahman-Filipiak and features Diane Ty and Rajiv Ahuja, authors of a pivotal report from the Milken Institute - Guiding the Care Journey.

In this show we discuss the report, its importance an findings - addressing critical challenges and presenting innovative solutions for dementia care in the United States, with a particular focus on the role of the care navigators.

While the report primarily addresses the U.S. context, its recommendations are deemed relevant globally, and the discussion aims to shed light on findings related to improving care for people living with dementia and their families, wherever you are.
--

Download the report: https://bit.ly/3uEgvtq

Visit the Milken website: https://milkeninstitute.org/
--

About the guests:

Diane Ty is the Senior Director of the Milken Institute Future of Aging overseeing its work at the intersection of healthy longevity and financial security. She leads its Alliance to Improve Dementia Care and other multisector programmatic efforts that promote policy, practice, and systems change in a life course approach to aging.

Rajiv Ahuja is the Associate Director of the Milken Institute Future Ageing. His work focuses on aging policies and programs that support healthy longevity. Rajiv spearheads efforts to incentivize policy, business, and technology-based approaches that promote brain health, combat stigma, reduce costs, and bridge health and economic disparities.

Dr Annalise Rahman-Filipiak is an Assistant Professor, Clinical Neuropsychologist at University of Michigan. Annalise broadly studies racial-ethnic disparities in dementia diagnosis and treatment, as well as non-pharmacologic treatments for Alzheimer’s disease and related dementias. Her recent work has focused on disclosure of imaging and fluid-based biomarkers to diverse audiences, including cognitively healthy older adults and those with impairment
--

Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk
--

Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than watch, you’ll find a video version of this podcast with full captions on YouTube and our website:

https://youtu.be/rvjpPsdIyQc
--

This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.
--

Follow us on Social Media:
https://twitter.com/dem_researcher
https://www.instagram.com/dementia_researcher/
https://www.facebook.com/Dementia.Researcher/

@MilkenInstitute #dementiacare #dementiaresearch #CareNavigator #dementia #alzheimerdisease #DemetiaCare,

In this podcast Dr Anna Volkmer, convenes a panel of world-renowned experts from University College London. They discuss the discovery of amyloid and its role in Alzheimer’s Disease and take an in-depth look into the latest developments surrounding Lecanemab and Donanemab, monoclonal antibodies (mAbs) as a treatment and Gene Silencing.

This week’s guests are Professor Sir John Hardy, Geneticist and trailblazer in neurodegenerative disease research, Professor Nick Fox, Neurologist, and eminent figure in the fields of neuroimaging and clinical neuroscience, and Dr Cath Mummery, Neurologist and leading light in cognitive disorders and clinical trials.
--

Listeners can expect:
1. 🧠 - Discussion on new dementia drugs Lecanemab and Donanemab.
2. 🔬 - Insights on the science behind these treatments, the story behind the discovery of amyloid and familial Alzheimer’s.
3. ❌🤔 - Clarification of misconceptions about dementia therapies.
4. 🩺💊 - Information on the impact of these drugs on patients and clinical practice.
5. 🌟🔜 - A look at the future of dementia research, including gene-silencing therapies.
--

NIA statement on report of lecanemab reducing cognitive decline in Alzheimer’s clinical trial:
https://www.nia.nih.gov/news/nia-statement-report-lecanemab-reducing-cognitive-decline-alzheimers-clinical-trial

NIA statement on donanemab results: More Alzheimer’s research progress:
https://www.nia.nih.gov/news/nia-statement-donanemab-results-more-alzheimers-research-progress

Alzheimer's Society Information on Donanemab:
https://www.alzheimers.org.uk/blog/what-is-donanemab-alzheimers-drug

Alzheimer's Society Information on Lebanemab:
https://www.alzheimers.org.uk/blog/lecanemab-new-drug-early-stage-alzheimers-disease

Alzheimer's Association Info on Research & Risks
https://bit.ly/3QxH3Ei

--

Full biographies on all our guests and a transcript can be found on our website http://www.dementiaresearcher.nihr.ac.uk
--

Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel.
https://youtu.be/Kl8rzDSIwxM
--

This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.

Last week Adam Smith attended the 33rd Alzheimer Europe Conference in Helsinki, Finland. In this podcast Adam and his guests bring you highlights from event, sharing news and their best bits from the hundreds of posters and talks delivered.
--

This week’s guests are:

Dr Victoria Shepherd, Senior Research Fello and Nurse from Cardiff University. Victoria has a special interest in research involving under-served populations with a particular focus on people with cognitive impairment. She leads a programme of methodological research exploring the ethical, legal and practical issues around research involving adults who lack capacity consent.

Dr Monica Leverton, Postdoctoral Researcher at King’s College London. Monica is based within the NIHR policy institute in health and social care workforce. Her areas of interest include care for people living with dementia and the social care workforce who support them. She currently leads a project developing the role of dementia champions in homecare.

Dr Danielle Jones, Associate Professor in Dementia Studies at University of Bradford. Danielle is a medical sociologist with expertise in Conversation Analysis. She has applied this method to medical communication to investigate how dementia is assessed within memory clinics in the UK. Her current project explores how dementia risk is communicated in medical interaction within both primary and secondary care.

Caroline Bartle, Dementia Project Specialist at Ryman Health Care in New Zealand. Caroline has 30 years in dementia care – carer to social worker to CEO – leading workforce development in dementia care. Founder of 3 Spirit Training Consultancy who has trained over 100,000 carers and developed over 500 different health and social care programmes.
--

This year’s conference was held under the motto “New opportunities in dementia care, policy and research”. As in previous years, this conference is one of the few in the diary that has a ‘family feel; providing great networking opportunities and bringing together people living with dementia, carers, volunteers and staff of European Alzheimer associations, policy makers, health and social care professionals, researchers and academics. This year had a record turn-out of 1,000 in-person attendees, enjoying a programme covering a broad range of topics, from fundamental science to care, diagnosis, policies, interventions, treatments and more (and for the first-time sessions led and decided by their European Working Group of People with Dementia (EWGPWD) and European Dementia Carers Working Group (EDCWG)).
--

Links discussed in the show:
Conference Website - https://bit.ly/3seI5g4
Conference hashtag - https://bit.ly/45R0RYX
EU-Fingers - https://eufingers.com/
INTERDEM - https://interdem.org/
--

You can find out more about our panellists, and their work on our website. There you will also find a full transcript:
https://www.dementiaresearcher.nihr.ac.uk
--

Prefer to listen rather than watch? Check out the audio version of this podcast: https://podfollow.com/dementia-researcher
--

The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of Dementia Researcher or its supporters.

Science is all about rigorous testing, empirical evidence, and painstaking documentation, right? But even in the most state-of-the-art labs, you'll find researchers who hold on to quirky rituals, lucky charms, or, dare we say it, superstitions.

In this podcast, Dr Yvonne Couch, Associate Professor at University of Oxford hosts a discussion that romps through the lighter side of scientific research by exploring the wonderful world of lab superstitions. From lucky pipettes to forbidden phrases, we're about to uncover the unofficial 'do's and don'ts' that researchers swear by, or at least, swear make for good anecdotes.
--

This shows guests are:

Dr Kamar Ameen-Ali, Lecturer in Biomedical Science at Teeside University. In addition to teaching, Kam is interested in How neuroinflammation following traumatic brain injury contributes to the progression of neurodegenerative diseases (such as Alzheimer’s disease) that lead to dementia.

Dr Soraya Meftah, Postdoctoral Research Fellow in the UK Dementia Research Institute at The University of Edinburgh. Soraya works in the space of Neurophysiology of dementia (synaptic, neuronal, network dysfunction).

Tabitha Broadbelt just completed her PhD at The University of Edinburgh and is now a Postdoctoral Researcher at the MRC Brain Network Dynamics Unity at University of Oxford. In the Dupret Group, Tabitha uses optogenetics and large-scale single-unit recordings combined to study memory-guided behaviour.

Dr Lauren Walker is an Alzheimer’s Research UK Fellow at Newcastle University. Lauren complete her undergrad degree in Physiological Sciences, and worked in a technical role for 7 years before being inspired to return to study a PhD. Lauren now works in Neuropathology of Lewy body dementia and Alzheimer's disease.
--

Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk
--

Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel
--

This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.

It's #InternationalPodcastDay so we released this show a little early to celebrate 🎉

In this podcast we explore the intricacies of dementia research study participant recruitment.

Our host Adam Smith and his three expert guests talk about why study recruitment is hard, the challenges they have faced in their own work, and unlock the secrets they have learned to crack the problem, and recruit on-time and on-target.
--

This weeks guests are:

Dr Anna Volkmer, Senior Research Fellow, University College London. Anna is a Speech and Language Therapy clinician, researching Speech and language therapy interventions in language led dementia.

Ellice Parkinson, PhD Student and former Trial Co-ordinator, University of East Anglia. With a background in clinical psychology and working in Huntington’s disease now focussed on Hydration care of older people, and people living with dementia.

Dr Megan Rose Readman, Demm Comm Research Fellow, The University of Liverpool. Megan’s current research, working alongside Dr Clarissa Giebel, Dr Dalia Tsimpida and Professor Chris Plack, focuses on the relationship between hearing loss and atypical types of dementia, specifically Parkinson’s Disease Dementia and Lewy Body Dementia.
--

🎙️ What to Expect:
•Gain insights into why recruitment is difficult.
•Learn effective strategies to overcome communication challenges between researchers and participants.
•Uncover novel approaches to streamline the recruitment process and reduce attrition rates.
•Discover top-tips to help you find the participants you need.
--

Websites mentioned in this show:

http://www.joindementiaresearch.nihr.ac.uk
https://www.alz.org/alzheimers-dementia/research_progress/clinical-trials/trialmatch
https://www.stepupfordementiaresearch.org.au/
https://www.scie.org.uk/dementia/after-diagnosis/communication/conversation.asp
https://www.rcslt.org/wp-content/uploads/media/Project/RCSLT/rcslt-dementia-factsheet.pdf
--

Full biographies on all our guests and a transcript can be found on our website www.dementiaresearcher.nihr.ac.uk
--

Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel
--

This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.

Dr Sam Moxon is back for another show in his ‘Food for Thought’ series. In these shows Sam invites leading experts to talk about their work and the connections between diet, brain health, cognition, Alzheimer’s disease, and dementia. In this show he welcomes Dr. Helena Popovic to explore the much-debated ketogenic diet and its potential benefits for cognitive function.

Helena is a best-selling author and leading authority on neuroplasticity and improving brain function. She is also a popular media commentator and regularly appears on TV and radio and was a Sydney TEDx Fast Ideas finalist. Helena graduated from the University of Sydney, Australia and her mission is to educate rather than to medicate.
--

The ketogenic diet, traditionally known for its effectiveness in weight management and treating epilepsy, is making waves in the realm of neuroscience. Dr Popovic sheds light on her research, exploring how this high-fat, low-carbohydrate diet may offer new avenues for cognitive enhancement and brain health.

Listeners can expect to gain:

1. Insight into the mechanisms through which the ketogenic diet affects the brain.
2. A comprehensive understanding of the latest research linking keto to cognitive improvements.
3. Expert opinions on the safety and practicality of adopting a ketogenic lifestyle for long-term brain health.
--

This episode provides a deep dive into the research surrounding the ketogenic diet and brain health. Whether you're a healthcare professional, a caregiver, or someone interested in enhancing cognitive performance, this episode is a must-listen.
--

For more information on Dr Helena Popovic and her work visit:
https://drhelenapopovic.com/
--

Full biographies on all our guests and a transcript can be found on our website https://www.dementiaresearcher.nihr.ac.uk
--

Like what you hear? Please review, like, and share our podcast - and don't forget to subscribe to ensure you never miss an episode – and if you prefer to watch rather than listen, you’ll find a video version of this podcast with full captions on our YouTube Channel
--

This podcast is brought to you by University College London / UCLH NIHR Biomedical Research Centre in association with Alzheimer’s Association, Alzheimer's Research UK, Alzheimer's Society and Race Against Dementia who we thank for their ongoing support.
--

The views and opinions expressed by guests in this podcast represent those of the guests and do not necessarily reflect those of Dementia Researcher, or our funders, the show does not endorse one particular diet over another and strongly recommends you consult your healthcare professional before making any changes to your diet or lifestyle.