Parkinson's Disease Podcast, by Health Unmuted Health UNMUTED

The World Health Organization reports that the number of people with Parkinson's disease has doubled over the past 25 years, estimating over 8.5 million individuals living with Parkinson's globally. (1)

Parkinson’s is a degenerative condition which is often associated with tremors, imbalance and rigidity, but it affects every person differently. 

In this first episode of the Parkinson’s Disease Podcast, we’ll start with the basics: 

What is Parkinson’s Disease? 

Who is at risk of developing Parkinson’s?

What are some early signs of the condition? 


We’ll also hear what it’s like to live with Parkinson’s disease from those diagnosed.

For more links and resources, visit our website at HealthUnmuted.com

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Resources

What is Parkinson’s?


Webinar on recognising the early signs of Parkinson’s - Parkinson’s Foundation


Other parkinsonion conditions - Parkinson’s Foundation


Genetic causes of Parkinson’s - Michael J Fox Foundation


Webinar on sleep disorders and acting out dreams - Michael J Fox Foundation 


Terms Mentioned


Dopamine - WebMD


Tremor and Resting Tremor - Parkinson's Foundation


Rapid eye movement (REM) sleep behavior disorder - Mayo Clinic 

Olfactory nerve - nerve relating to the sense of smell


Hoehn & Yahr staging - Parkinson's Foundation

Axial symptoms - these include symptoms such as walking disorders, posture disorders, and speech and swallowing disorders



Helpline
Parkinson’s Foundation Helpline - 1-800-4PD-INFO (473-4636)

Podcast
Substantial Matters: Life and Science of Parkinson’s Podcast

Community Group
PD Avengers

Guests’ Books 

Ending Parkinson’s Disease: a Prescription for Action by Ray Dorsey MD, Todd Sherer PhD, Michael S. Okun MD and Bastiaan R. Bloem MD PhD 

References
(1) https://www.who.int/news/item/14-06-2022-launch-of-who-s-parkinson-disease-technical-brief


Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

Parkinson’s disease can’t be diagnosed through a simple blood test or scan. After a referral from a primary care doctor, it often takes visits to a neurologist or movement disorder specialist before receiving a clinical diagnosis. 

In this episode, we speak to healthcare providers and those living with the disease about the diagnostic process. We also explain how to build a Parkinson’s care team - a group of healthcare providers that provide support after diagnosis.

For more links and resources, visit our website at HealthUnmuted.com

Resources

Building a care team


Movement disorder specialist directory - International Parkinson’s and Movement Disorder Society


Find a PD expert care center - Parkinson’s Foundation


Building a care team - Michael J Fox Foundation


Support after diagnosis


Early signs of PD- Brain and Life Magazine (AAN)


Guide to the early years after diagnosis - Michael J Fox Foundation


Terms Mentioned

DaTscan - test to help in the diagnosis of Parkinson’s, read more on APDA

Podcast
The Michael J Fox Foundation Parkinson’s Podcast

Community Group

PD Avengers 

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Does Parkinson’s only affect older people?  

A common misconception is that Parkinson’s disease only affects people in the later stages of life, but that isn’t always the case. 

Young-Onset Parkinson’s disease refers to people who are diagnosed much earlier, sometimes in their 20’s or 30’s.  

In this episode, we hear from three people who are living with Young-Onset Parkinon’s disease about their experiences, and the impact on and adjustments to their careers, health decisions and family life after diagnosis. 

For more links and resources, visit our website at HealthUnmuted.com

Resources

Talking about Parkinson's


Talking to your Children about Parkinson’s - Michael J Fox Foundation


My parent has parkinson’s fact sheet - Parkinson’s Foundation 


Talking to your employer about PD - Parkinson’s Foundation 


Terms from this Episode

Hand Dystonia : "excessive, involuntary muscle contractions in the fingers, hand, forearm, and sometimes shoulder" - Dystonia Foundation


Podcasts

Learning About Parkinson's Podcast


Young Onset 101 podcast episode - Parkinson’s Foundation 

Parkinson's Life Podcast


Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

There's no cure for Parkinson's disease, but there are ways to manage it and treat symptoms.

In this episode, we explore how different types of medications can help, and the importance of clinical trials in progressing treatment options. 

We hear from people who are living with Parkinson’s disease about their medication journeys.  

We also discuss an alternative surgical treatment that is available: deep brain stimulation.
 
For more links and resources, visit our website at HealthUnmuted.com

Resources

Medication


Medication explained - Mayo Clinic


Webinar about on/off time - Michael J Fox foundation 

Parkinson’s Drugs- Parkinson’s UK Resource


FDA Approved Medications-  APDA


Terms Mentioned


Carbidopa-levodopa - Mayo Clinic


Sinemet, Parcopa, Duopa and other brand names for Sinemet - on Medscape


Dopamine agonists (pramipexole, ropinirole) - Mayo Clinic


Dyskinesia- Parkinson Foundation


Deep Brain Stimulation - Mayo Clinic


Alternative Surgical Treatment Option

Deep Brain Stimulation - Parkinson's Org

Clinical Trials


Clinical Trials- Parkinson’s Foundation


Clinical Trials Recruiting- Cure Parkinsons


Podcasts
Parkinson's Foundation Podcast

Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.
 
This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

When it comes to slowing down the progression of Parkinson’s disease, exercise is critical. But you don't need to be a lifelong athlete to benefit. 

In this episode, we hear why exercise is so important, and some easy ways people living with Parkinson’s can get started today. 

We also cover the importance of physical and occupational therapy, and hear tips on how home adaptations can help manage symptoms.

For more links and resources, visit our website at HealthUnmuted.com

Resources

The benefits of exercise

Study to show exercise improves depression in Parkinson’s patients 


Benefits of exercise for slowing parkinson’s disease - Parkinson's Foundation 


Downloadable resources on benefits of exercise for PD - Stanford Medicine


Why you should exercise - Parkinson’s Foundation


Terms Mentioned:

GERD, Gastroesophageal reflux disease - Mayo Clinic

Exercise guides


Skills and Wellness channel - Youtube - Mobility videos


Parkinson’s foundation - Youtube - Fitness Friday videos


Step by Step Physio Movements - Parkinson’s Wellness Recovery

MENTOR Program 


Exercise videos - Brian Grant Foundation


Home Adaptations 


Easy changes to make around the house - Davis Phinney Foundation Video


Bathroom and grooming aids - Parkinson’s Foundation


Webinar on creating a safe home environment - Parkinson’s Foundation


Podcast
Parkinson's Podcast by the Davis Phinney Foundation

Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Food is an important part of everyone’s life. Adjusting your diet while managing a chronic illness can be a challenge.

 In this episode, we speak to a dietician about the foods and diets that are often recommended for people with Parkinson's. 

We also hear about tips and tools to make cooking and eating a little easier, especially while experiencing motor and non-motor symptoms.

For more links and resources, visit our website at HealthUnmuted.com

Resources

Diet and nutrition


Guide to eating a Mediterranean diet - Michael J Fox Foundation


Meal time booklet - Parkinson’s Foundation


Information of pro and prebiotics  - Parkinson's Foundation


Common symptoms

Studies to show constipation as common symptom of Parkinson’s disease - Study 1 and Study 2  


Webinar on gut related issues in Parkinson’s Disease - Michael J Fox Foundation


Adaptive Tools


Swivel Spoons - Various types available on Amazon.com


Lift steady table ware - Product website


Wrist weights  - Various types available on Amazon.com


Weighted bracelet - Product website


Podcast

When Life Gives You Parkinson’s Podcast

Acid reflux podcast 


Community Group
PD Avengers

Get all the links and the episode transcript by visiting the website here.

This episode is made possible with support from Altoida and LSVT Global.

What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know!

Note: Links and resources provided are for informational purposes only. There is no commercial relationship between the organizations referenced and the publisher of this podcast