100 episodes

This podcast features people with chronic health conditions as they share their positive coping tools and practitioners of mind-body and/or alternative health who have helped people with a chronic health condition.

Glass Half Full with Leslie Krongold, Ed.D‪.‬ Leslie@GlassHalfFull.online (Leslie Krongold, Ed.D.)

    • Health & Fitness
    • 5.0 • 33 Ratings

This podcast features people with chronic health conditions as they share their positive coping tools and practitioners of mind-body and/or alternative health who have helped people with a chronic health condition.

    Wuzzup: Growing older with a progressive health condition

    Wuzzup: Growing older with a progressive health condition

    An episode to catch everyone up on what’s been going on in the life of someone in their early 60s with a progressive health condition. Waning energy prohibits many of us for reaching all of the goals we’d like to achieve. It takes time to acclimate to a new normal and reassess which goals are most important and how best to achieve them dealing with new limitations. Foremost for someone with myotonic dystrophy, like myself, is getting enough sleep so I have energy to maintain a regular movement practice even with shifting mobility.
    The annual May Movement Challenge I’ve produced for the last three years will change. To stay current, join the Movement Challenge Facebook group. If you live near the north coast of California, or plan to visit, check out a new local program – Leslie’s Accessible Walks.

    • 22 min
    What is AAC (Augmentative and Alternative Communication)?

    What is AAC (Augmentative and Alternative Communication)?

    My guest for this Glass Half Full podcast episode is Patrick Regan. Patrick is a young man living in Alaska with SMA (spinal muscle atrophy) who uses AAC to communicate. We've gotten to know each other through online BORP classes -- Tai Chi and Pilates. 
    Our communication previous to our Zoom podcast recording was through Zoom’s chat. Patrick is not able to speak and uses technology to communicate via text or assisted speech.
    Our podcast recording was the first time I actually saw him live since he usually has a photo of himself in the Zoom window. And he varies the photos so I’ve seen him dressed up for different themes especially in the Rumba with Tina dance class.
     Anyhow, Patrick has proven himself to be quite tech savvy and I wanted to learn more about the AAC (Augmentative and Alternative Communication) he uses.

    • 25 min
    Why is Movement my Medicine?

    Why is Movement my Medicine?

    I don’t know who coined the term movement is medicine, but it resonates for me. My early experiences with exercise were not joyful; grade school physical education was bad medicine. But once I started dancing with friends in high school – before carding and ID checks were mandatory – I experienced movement in a positive way. Shortly after college I started a yoga practice which was medicine for my body and mind.
    In this podcast episode I tell my story of what led up to the 2021 launch of the May Movement Challenge -- a month of free online movement classes that are meant to be accessible and adaptive for anyone and everyone.
    You’ll also hear from Natalie Graniela – one of the several movement instructors participating in the annual May Movement Challenge. Natalie talks about her gyrokinesis movement practice and working with senior adults as well as people with different bodies and abilities.
    For more information visit the website: https://maymovementchallenge.com,  register for this year’s month of free online movement classes: https://us02web.zoom.us/meeting/register/tZMvd-yhrDsrGNB8RbtdI8mhTYG-_BUJ90mB,  and join the Facebook group: https://www.facebook.com/groups/166227591989420

    • 42 min
    We need innovative solutions when it comes to the rare (disease) community

    We need innovative solutions when it comes to the rare (disease) community

    February 28th is Rare Disease Day. Twenty-five to 30 million Americans live with a rare disease. For more facts and figures related to rare diseases, check the NORD website.

    This podcast episode catches up with Aditi Kantipuly, a physician and advocate, immersed in the rare disease community. As a young girl Aditi learned about a child born with osteogenesis imperfecta – a rare bone condition – and has been captivated ever since. Her journey includes a masters program in public health, a Fulbright scholarship to small villages throughout India, and medical school. Currently she’s exploring the roles of health equity and social immunity.

    For earlier podcast episodes related to rare disease, It’s not that easy being rare, Rare disease and the need for research, and Rare and invisible disability + spoon theory.

    Check this webpage for a list of other podcast programs related to rare disease.

    • 30 min
    Coping with the Holidays

    Coping with the Holidays

    The holidays can be difficult for most anyone but if you live with a chronic health condition and/or physical disability, the barriers to joy and festivity may increase. Four women engage in conversation about coping with the holidays -- Leslie Krongold with myotonic muscular dystrophy, Andrea Klein with collagen 6 congenital muscular dystrophy, Janice Laurence with Charcot Marie Tooth neuromuscular disease, and Roma Leffmann who advocates for people with acquired disabilities as a stroke survivor.  Together they discuss issues related to #dysphagia #celiacdisease #incontinence #osteoporosis #singlelife #disability #myotonic #musculardystrophy #respiratoryproblems #stroke #adaptivefitness #dance #glutenfree #ableism #gifting #mobility and, of course, #coping
     

    • 54 min
    Driving Less Dazy: Responsible vs. Independent?

    Driving Less Dazy: Responsible vs. Independent?

    When to stop driving a moving vehicle? That is the question to ponder; is it a toss up between being a responsible adult or maintaining a sense of independence? For many people, this is a difficult choice. If you live in an urban or suburban location you may have many options available if you give up driving. For others, a car may be a necessity -- one needed to get to gainful employment, purchase groceries, or use to transport family members more disabled than yourself.
    In this academic paper, physicians discuss health conditions that predispose patients for difficulties with tasks required for driving a car safely. People with Alzheimer dementia, epilepsy, visual impairments, sleep apnea syndrome, cardiac dysrhythmias, substance dependency, and neurological disorders with a cognitive component are at risk.
    In this MDA Engage recorded webinar, the presenter shares this factoid -- For every mile driven there are 20 decisions that need to be made and less than ½ second to react

    This podcast episode explores the decision-making process for podcast host, Leslie Krongold, as well as for guest, Keisha Greaves. Both chose to give up driving before a doctor told them to.

    If you, or a loved one, are concerned about your current driving skills, take this online assessment to gauge whether or not you should explore driving options.

    Each U.S. state has unique laws regarding senior and/or drivers with specific disabilities; check what your state has on the books.

    If you're a caregiver in search of advice for your loved one, check out this U.S. Dept of Transportation website.

    • 17 min

Customer Reviews

5.0 out of 5
33 Ratings

33 Ratings

MomOfEighteen ,

Outstanding Show!

Such a great resource for people wondering what to do, what’s next and how to live a full life!

Rootla ,

A Must Listen ....

For policy makers and patients alike! Leslie asks thoughtful interview questions, links whole health best practices, and approaches disability care seamlessly in this podcast. This podcast should be a trendsetter not just in the health care industry, but down to how we design our infrastructure and shapes our attitudes about what health means.

Wxz1J7u ,

Great Show

So glad I found this podcast. My partner has DM1 and this show has been inspirational. Informative and compassionate.

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