Love Conquers Alz Susie Singer Carter and Don Priess
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- Health & Fitness
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2024 #1 ALL TIME DEMENTIA PODCAST /GOODPODS and 2020 WINNER BEST PODCAST - New Media Film Festival. Caregivers have one of the hardest jobs in the world. Having both been caregivers for a family member affected with Alzheimer’s, Susie Singer Carter and Don Priess both know this is a disease that cannot be faced alone. In fact, their Oscar Qualified film based on Susie's Mother, MY MOM AND THE GIRL starring Valerie Harper in her final performance - has and continues to touch people all over the world. Their goal was to let others know they are not on their own and to help them find the JOY in the journey. And that's just what they do in their Podcast "Love Conquers Alz".
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DR. MITCH CLIONSKY - Dementia Prevention: Using Your Head to Save Your Brain
Don and I both agree that Episode 85 (wow!), ranks as one of our favorites to date. Our amazing guest, Dr. Mitchell Clionsky is a board certified neuropsychologist with more than 30 years of clinical experience and has treated more than 20,000 patients with cognitive problems. Dr. Clionsky understands the toll of memory disorders as both a caring professional and as the son of his mother Muriel, who died in 2008 from dementia.
Dr. Clionsky holds staff privileges on four hospitals and in addition to dementia, he evaluates ADHD, concussions, and a variety of neurological conditions. From years of patient data, Dr. Clionsky and his wife/partner Emily Clionsky, MD have developed the Memory Orientation Screening Test or MOST, a highly valid measure that provides a single, numerical score that reflects cognitive status and change over time. MOST helps identify -cognitive problems- earlier in the deterioration process so health professionals can intervene and help their patients live better lives.
Now Dr. Clionsky and his wife, Emily, have taken what they do in their consulting room and have written a new book, Dementia Prevention: Using Your Head to Save Your Brain. It's an exciting, fun to read, motivating, and potentially life changing read that is the culmination of 45 years of extensive clinical evaluation and treatment. Scientifically detailed and vetted by Johns Hopkins University doctors and content experts, it is translated into terms that almost everyone will understand.
8 out of 10 people over 55 say that Alzheimer’s disease and other dementias are a major concern. Well now there is something that can be done. Dementia is not inevitable, but for 1 out of 2 people it is preventable. And we are so excited to share all about this fascinating breakthrough. Enjoy!!
Connect with Dr. Clionsky here.
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CHRISTINA KEYS: Turning a Mess into a Powerful Message
If you don't know the preeminent caregiving champion, Christina Keys, you're in for a valuable treat! Christina was living her best life, enjoying a successful career, she was financially and spiritually healthy and happy - when in 2013 her beloved mother suffered a devastating stroke and was given a 1% chance to live. In a blink of an eye Christina went from care-free career woman to full-time caregiver. With Christina’s dogged and loving support, her mother survived - but after 4 years Christina was bankrupt, financially, emotionally, mentally, and physically. And suddenly she was faced with a diagnosis of her own. Her body was shutting down from the stress and she was given 6 months to live. She knew she had to completely change her life…and she did. But she decided to not only transform her own life, but to help change the lives of other caregivers.
Christina’s mission to make sure caregivers everywhere are seen, heard valued and appreciated and are never alone through her local work with Loving Them Forward , the Non Profit she founded, and the national work she is doing as the Director of Community Growth at Caregiving.com. We can’t wait for you to hear more about her remarkable transformation and journey!
Connect with Christina: FACEBOOK INSTAGRAM
Connect with Caregiving.com: https://www.caregiving.com
Apply and Learn more about the Caregiving.com Caregiver
Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME
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DR. GEORGE ACKERMAN, Ph.D., J.D., MBA: From Tragedy to Advocacy for Parkinson's Awareness
In Episode 83, Don and I had a heartfelt and informative conversation with Dr. George Ackerman who started the movement Together for Sharon to honor his late mother Sharon Riff Ackerman, who succumbed to complications from Parkinson's Disease and Alzheimer's Disease on January 1, 2020. George is an absolutely tireless #advocate for those who suffer with PD and their families and has an unending hope for a cure. Come join us and learn about this important movement and why this is so important to George and his family.
ORDER YOUR WRIST BANDS HERE: https://www.togetherforsharon.com/con...
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Love Conquers Alz!
Susie xoxo
Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME
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PIPPA KELLY: The Creative Caregiver Connection
In Episode 82, Don and I had a fantastic conversation (no surprise) with UK’s own PIPPA KELLY. Author, podcast host, award-winning blogger, contributor to numerous national newspapers and magazines, Pippa has truly made a name for herself in the dementia and elder care universe.
It was Pippa’s own personal journey with her mother, who battled vascular dementia for 10 years, that shaped her creativity and launched her career. A prolific writer for the Huffington Post, The Guardian and many others, she also shares her thoughts and experiences on her popular, Covid-born podcast “Well I know Now…So Much More About Dementia.” And has become one of the UK’s top 10 dementia influencers.
But Pippa Kelly’s artistic proclivities know no bounds. Her debut novel “Invisible Ink” deftly draws upon her experiences with her mother to craft a fascinating, poetic fictionalized tale that captures the intricacies of her mom’s insidious disease.
In this episode, we talk about the importance of sharing stories and personal experiences. The role of humor and creativity in advocating for better care. The need for education and ongoing advocacy.. The importance of creating community and promoting human interaction. And finally, the positive impact of therapy dogs, especially golden retrievers, is acknowledged.
Pippa Kelly is a force to be reckoned with in the literary and dementia space. And let’s face it, we absolutely love her accent.
Follow Pippa Kelly here:
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Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME
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MARY LOU FALCONE: I Didn't See it Coming: Scenes of Love, Loss, and Lewy Body Dementia
My co-host , Don, and I have been blessed with so many amazing guests, but truth be told, our 81st guest, Mary Lou Falcone , ranks as one of our very favorites!! We fell in love with this EXTRAORDINARY woman and we have no doubt you will, too.
For over 50 years, Mary helped guide the careers of celebrated artists – Van Cliburn, Gustavo Dudamel, Renée Fleming, Sir Georg Solti, James Taylor – and advised many institutions including Carnegie Hall, Chicago Symphony, Los Angeles Philharmonic, Philadelphia Orchestra, New York Philharmonic, Vienna Philharmonic. Then combining communication skills with her background as a performer and educator, she now adds another layer: advocate for Lewy body dementia (LBD) awareness.
Mary became a caregiver when her father had a massive stroke. She was 10 years old. The experience prepared her for the day, many years later, when her husband, a world-renowned cartoonist, illustrator, painter, and 1950s rocker, Nicholas 'Nicky’ Zann, was diagnosed with Lewy Body Dementia (LBD). Nicky, who died from LBD in 2020, was the catalyst for Mary's first book, I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia.
"Mary Lou Falcone is an expert storyteller. After years of telling other people's stories, she now tells her own compelling story." Friend and client, James Taylor.
In her memoir of love, loss, and Lewy body dementia (LBD), Mary Lou Falcone takes readers on a cathartic journey of caregiving that is filled with hope, laughter, and tears, making stops along the way for music, romance, and surprises. Written to inspire and give hope, Mary Lou unflinchingly shares in detail her late husband’s struggle with LBD, providing informative, compassionate, and inspiring insights into dementia. As she emerges transformed and energized, so will you after reading I Didn’t See It Coming: Scenes of Love, Loss, and Lewy Body Dementia .
Learn about Lewy Body Dementia, why it is difficult to diagnose, and the special challenges faced by caregivers. Enjoy Episode 81!!
Love conquers alz,
Susie xo
Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME
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JACKLYN RYAN: Author of Bestseller "Caregivers Scaretakers" - Exposing Fraud in Senior Care
Season 8 kicks off with episode 80 - a MUST LISTEN to show featuring JACKLYN RYAN - a sought-after speaker, consultant, workshop presenter, and best-selling author of the gut-wrenching book, “CareGivers, ScareTakers - Exposing Fraud In Senior Care”. With an aging population, families are struggling with dependable, trusted care. This process is riddled
with problems. What can adult children do to protect their parents from abuse and financial theft and also protect their inheritance and peace of mind from unscrupulous caregivers?
Just like all of us, Jacklyn was instantly faced with a heart-wrenching time in life when her parents were no longer able to care for themselves are soon learned the world of home healthcare agencies is riddled with what she calls inappropriate and unscrupulous ScareTakers. Armed with her and other's powerful personal stories, plus extensive research on this undeniable problem, Jacklyn is sharing this life-changing information through her enlightening book in hopes of revising the process for those looking for appropriate and trustworthy care for their loved ones.
We covered the following topics and more:
• How to better prepare when you enter the "wormhole of healthcare"
• The Actions You Can Take to Safeguard Your Family Inheritance and Expose the Scammers.
• Don't wait for a Crisis to happen! Prepare YOUR OWN Care Ahead of Time.
• We neglect to make a plan for our own care when we can no longer care for ourselves.
• Make a Plan and Put it in Writing.
• Discover resources, how to research and reviews on agencies and caregivers.
• "My Father (or Mother) is in Love with His Caregiver! "
Connect with Jacklyn here:
EMAIL: info@caregiverscaretakers.com
WEBSITE: https://caregiverscaretakers.com
LinkedIn: Jacklyn (Jacci Perry) Ryan
X: @Jacklyn72519695
Support the showJOIN THE MOVEMENT FOR NURSING HOME REFORM BY SUPPORTING THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE or GO FUND ME
Follow us on Twitter, FB, IG, & TiK Tok 💜
Listen on your favorite platform 💜
If you like what you hear leave us some love. 💜
Customer Reviews
Passionate, knowledgable and fun!
Don and Susie have the trifecta going on. They are passionate as well as knowledgable on this important subject and so much fun to listen to. Thanks for all that you are doing to shine a light on Alzheimer’s and aging with dignity!
Love this Podcast!
Entertaining and informative, Susie and Kassi help navigate the Alzheimer’s world. I especially enjoyed the interview with Leeza Gibbons.
An inspired take on an important topic
With heart and humor, Susie and Kassi tackle one of the most important and difficult subjects of our time. For those who love someone with Alzheimer’s, or know someone who does (which is just about everyone), Love Conquers Alz is invaluable support. The hosts take a devastating illness and approach it with an empathetic and inspired perspective, not denying the heartache, but finding joy and strength in their shared experience.