How can people with Parkinson's live a better life today? Join the Parkinson's Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson’s live a better life today, as well as the research that can bring a better tomorrow.
What to Do When the Next Medical Appointment is Months Away
Medical problems often do not follow a schedule, and it can be frustrating to get them addressed when the next doctor appointment is weeks or months away. It’s important to have a plan about what to do for support between clinic appointments. A good first step is to discuss the issue with your health care team and to arrange to have a designated person or point of contact should such a situation arise. Heather Russell, RN, Coordinator of the Parkinson’s Foundation Center of Excellence at the London Health Sciences Centre in London, Ontario, Canada, is that person for her clinic. In this episode, she describes how she helps her patients when they have a medical problem related to their Parkinson’s disease and their next scheduled clinic visit is some time away.
¡EN ESPAÑOL! Crear un plan de autocuidado y por qué es importante para los cuidadores
Ser trabajadora social en una clínica significa ser parte del equipo médico y brindar atención a las personas que viven con Parkinson y a sus familias.
En este episodio, hablamos con Adriana González, trabajadora social en el Centro para el Parkinson y Otros Trastornos del Movimiento de la University of California, San Diego. Como trabajadora social, Adriana ayuda a las familias y a los cuidadores a identificar recursos comunitarios y los apoya cuando enfrentan situaciones difíciles.
La meta de Adriana es conocer a las familias desde el inicio de la enfermedad para hablar acerca de los diferentes periodos y crear un plan antes de llegar a un momento de crisis.
Para Adriana, lo más importante es concientizar a la comunidad de habla hispana acerca de la enfermedad de Parkinson para mejorar el manejo médico de esta enfermedad y apoyar a más familias y cuidadores que están tratando de ayudar a su ser querido con Parkinson.
Como noviembre es el Mes Nacional de Cuidadores Familiares, hablamos con Adriana acerca de la importancia del autocuidado: un plan que garantiza que los cuidadores o aliados de cuidado estén atentos a su propio bienestar.
Community Care Programs for Care Partners
Caregiving can be an intensive endeavor, not to mention the physical, mental, emotional, and even financial aspects of it. Just as people with Parkinson’s disease need support services, so, too, do their care partners. In this episode, Social Worker Cara Iyengar, MSW, LISW, the coordinator of the Parkinson’s Foundation Center of Excellence at the University of Iowa in Iowa City, discusses some of the Foundation’s resources that she shares with care partners, her three-pronged approach to supporting them, some of the challenges she faces in bringing support services to people in a rural state like Iowa, and the kind of feedback that she has received from care partners.
Fall 2022 Moving Day at Home Program
Join community members from across the country for this virtual experience that allows you to move for Parkinson’s from wherever you are! This program will help you get motivated and kick off your 60 minute walk. Remember, you can walk, run, hike your favorite route, or simply just listen to the Moving Day at Home program! We encourage everyone to share photos of their experience by posting to your social media page with the hashtag #MovingDayatHome.
Join us for the entire program by accessing our Spotify playlist: https://open.spotify.com/playlist/0n6HRIvfZgoPjJfSoc57aW?si=d49f0a3fd6b54dbe\
¡EN ESPAÑOL! Cambios cognitivos
Cuando uno piensa en la enfermedad de Parkinson (EP), es fácil asociarla más con los síntomas motores, como la rigidez o el temblor; pero también existen síntomas no motores, como los cambios de estado de ánimo, la ansiedad o la depresión.
En este episodio, hablamos con la doctora Elsa Baena, neuropsicóloga clínica en el Barrow Neurological Institute, Centro de Excelencia de la Parkinson’s Foundation, acerca de estos cambios cognitivos asociados con el Parkinson.
La doctora Baena explica la conexión entre el Parkinson y la cognición y cómo pueden prepararse las personas con Parkinson para estos cambios (no sólo las maneras farmacológicas, sino también las terapéuticas).
Asimismo aprenderemos acerca de los miembros del equipo de atención médica que pueden apoyar a una persona con Parkinson y a sus familiares con estos cambios cognitivos.
Medication-Induced Parkinsonism - How is it Different?
This episode explores parkinsonism, a group of conditions with symptoms similar to those of Parkinson’s disease, itself a neurological degenerative brain disorder resulting from neurons in the brain failing to make enough dopamine. It is characterized by a loss of motor control, including stiffness, slow movements, resting tremors, and postural instability. Plus, non-motor symptoms of depression, loss of the sense of smell, gastric problems, mood and cognitive changes are common.
Parkinsonism is a general term for a group of neurological conditions involving movement problems similar to those seen in Parkinson’s disease. A variety of underlying causes may lead to parkinsonism, including medications that affect dopamine levels in the brain or the action of dopamine in the brain. Examples are antipsychotic medications used in psychiatry, calcium channel blockers for blood pressure control, and stimulants like amphetamines and cocaine. Even though stopping the medications may result in them being cleared from the body in the near term, symptoms may persist for several months.
In this episode, Cheryl Waters, MD, Professor of Neurology at Columbia University in New York City, discusses medication-induced parkinsonism and what people with Parkinson’s and doctors need to be aware of.
Getting away from Parkinson’s
I enjoyed the positivity that the panelists exuded in their recollection of daily life with PD without feeling its burden ! As a happy Mom of 2 loving adult children, wife, researcher, nutritionist, avid tennis player, my life was interrupted by YOPD 12 years ago but instead of wallowing in my sorrow, I chose to accept the affliction as I would accept letting an annoying neighbor live with me for the rest of my life! I rather adjust to my new condition than fight it as one of your panelists alluded to! No one including the physically
Grouchy PD husband
Thank you for your very informative podcast. My husband was diagnosed 5 years ago. His mother also had Parkinsons but it was a very mild case. My question is this: Are mood changes common with this disease? My sweet, loving husband has turned into a grouchy complainer. I can’t seem to do anything right in his opinion. I look forward to your answer.
A wonderful way to get a diverse perspective and info on the many different facets of living with PD. or loving someone with PD.