81 episodes

How can people with Parkinson's live a better life today? Join the Parkinson's Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson’s live a better life today, as well as the research that can bring a better tomorrow.

Substantial Matters: Life & Science of Parkinson’s Parkinson’s Foundation

    • Medicine

How can people with Parkinson's live a better life today? Join the Parkinson's Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson’s live a better life today, as well as the research that can bring a better tomorrow.

    ¡EN ESPAÑOL! Cubriendo la genética con el Dr. Mata: Su trabajo en la genética y su colaboración con la Parkinson’s Foundation

    ¡EN ESPAÑOL! Cubriendo la genética con el Dr. Mata: Su trabajo en la genética y su colaboración con la Parkinson’s Foundation

    Para entender el rol que juega la genética en la enfermedad de Parkinson, primero hay que entender de que consiste la genética y como la comunidad hispana puede participar en el avance de la investigación a través de las pruebas genéticas. 
     
    En este episodio, hablamos con el doctor Ignacio Mata, doctor en neurogenética e investigador principal en el departamento de genómica medica en la Cleveland Clinic. Este episodio es el primero en una serie de cuatro episodios con el doctor Mata, en las que cubrimos los temas de la genética, la importancia de las pruebas genéticas y la representación hispana en la comunidad de Parkinson.

    • 8 min
    An Aware in Care Success Story

    An Aware in Care Success Story

    The Aware in Care (AIC) kit is one way to ensure patient safety during a hospitalization. It provides useful tools to use before, during, and after a hospitalization, such as a list of medications that a person with Parkinson’s disease is taking, instructions to the hospital staff about dispensing medications on the person’s individual schedule, a list of drugs that should not be administered, and more. As useful as the AIC kits may be for the person with PD, another aspect for a safe and successful hospital stay involves the hospital staff being knowledgeable and the hospital systems being ready to treat a person with PD. For that, the staff needs to know about the unique needs of people with PD and be prepared to meet them. That’s where AIC Ambassadors come in. This podcast episode describes a success story of AIC Ambassador Kathy McMurray reaching out to and working with nurse administrator Sara Holman, Director of the Ortho-Neuro Service Lines at Deaconess Health System in Evansville, Indiana, both of whom were instrumental in educating hospital staff and refining the electronic medical records system to meet the unique needs to treat people with PD.

    • 18 min
    El Diagnóstico Inicial y la Vergüenza Asociada con la Enfermedad de Parkinson

    El Diagnóstico Inicial y la Vergüenza Asociada con la Enfermedad de Parkinson

    A veces es difícil diagnosticar la enfermedad de Parkinson (EP) en un inicio ya que la forma de que se presenta siempre varía. Por ejemplo, para ciertas personas, la enfermedad se puede presentar con mucho temblor, mientras que otros pueden sentir un trastorno de balance o rigidez. Por estas diferencias en cada persona con EP, es difícil hacer un diagnóstico certero inicialmente. En la primera parte de este episodio, el doctor Guillermo Moguel-Cobos, neurólogo en el centro de atención Muhammad Ali Parkinson del Instituto Neurológico Barrow, habla de los síntomas tempranos de la enfermedad y consejos que le daría a las personas recién diagnosticadas que empiezan a tener estos tipos de síntomas.
     
    En la segunda parte de este episodio, hablamos con el doctor Julio Angulo sobre un tema que se cubre con muy poca frecuencia, la vergüenza, aunque muchas personas recién diagnosticadas o con varios años viviendo con la enfermedad la sienten. A través de su investigación, el doctor Angulo analiza el aislamiento de la persona con Parkinson y como se conecta con la depresión, la ansiedad, y la vergüenza. Al vivir él mismo con la EP, el doctor Angulo nos ofrece un punto de vista único.

    • 24 min
    Practicing Hospital Safety

    Practicing Hospital Safety

    When people with Parkinson’s disease (PD) are admitted to a hospital, it is most often not for their PD but is for some other condition. Nonetheless, they have unique needs related to their PD that nurses and doctors may not be aware of. Thus, the patient or caregiver must inform the staff of those needs. A major consideration is the timing of medications. The typical hospital practice of dispensing medications every three or four hours may not work for someone with PD who has carefully worked out with their neurologist the best individual medication schedule to give them the best outcomes. One helpful resource is the Parkinson’s Foundation’s free Aware in Care kit that can specify what medications should be given to that individual and when. In this episode, Edie Simpson, a retired neurology nurse from the Muhammad Ali Parkinson Center in Phoenix, Arizona, a Parkinson’s Foundation Center of Excellence, describes how hospitals typically operate and explains why a person with PD or a care partner must educate hospital staff and be an advocate for the hospitalized person to ensure the best and safest care possible.

    • 24 min
    Pharmacy Challenges with PD

    Pharmacy Challenges with PD

    Medication is a mainstay of treatment of Parkinson’s disease (PD), and can vary for each person with PD. Each medication has its own properties, and healthcare professionals have reasons to choose certain ones at various times as conditions warrant. At those times, people with PD and their care partners need to ask questions about the reasons for starting specific medications, what they can expect, and whether they will interact well with other medications. This advice applies to all medications, not just ones for PD. All healthcare providers need to be aware that someone has PD and what medications they are taking because not only can they interact with other medications, but they may also affect what procedures can be performed and when. Emily Peron, PharmD, of Virginia Commonwealth University School of Pharmacy in Richmond discusses these issues and more, with advice about medications, their effects and adverse effects, and medication changes.

    • 21 min
    A Multidisciplinary Approach to PD

    A Multidisciplinary Approach to PD

    As for many chronic conditions, a multidisciplinary, team approach can often produce the best outcomes for people with Parkinson’s disease (PD). With many health care professionals specifically qualified in PD working together in a coordinated manner, treatment can focus on current areas of concern and those that come up as the disease progresses. But questions arise as to how often the person with PD and care givers should visit their health care professionals, how to provide care with the least burden and disruption on them, and who should coordinate the care. As the director of the Parkinson’s Foundation Center of Excellence at the Royal Derby Hospital in the United Kingdom, Dr. Rob Skelly discusses the makeup of his team and how they approach patients at different stages of the disease.

    • 15 min

Customer Reviews

Aspiehler ,

Perspective

A wonderful way to get a diverse perspective and info on the many different facets of living with PD. or loving someone with PD.

BambiLashae ,

Helpful!

Great job keeping us informed!

Annie from Cbus ,

Love the podcast!

This is a great way to spend a short amount of time and get a lot of good information! I listen when I drive to and from meetings during the week.

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