100 episodes

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We're here to provide information and education so people can make informed choices about end of life care.

The Heart of Hospice Podcast Hosted by Helen Bauer, BSN RN CHPN

    • Health & Fitness
    • 4.7 • 45 Ratings

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We're here to provide information and education so people can make informed choices about end of life care.

    Talking About National Anchor Your Heart Day with Opus Peace Founder Deborah Grassman , Special Episode

    Talking About National Anchor Your Heart Day with Opus Peace Founder Deborah Grassman , Special Episode

    Join thousands of people around the globe opening their hearts to allow pain and peace to sit side-by-side together without fear on National Anchor Your Heart Day, at 3:00 pm ET on Thursday, Feb. 2.  Sponsored by Opus Peace, National Anchor Your Heart Day includes a free webinar on self-compassioning with a post-webinar discussion guide. The webinar includes a free CE for nurses and mental health professionals.  
    10,000 dying veterans taught NP Deborah Grassman of Opus Peace the value of dying peacefully and dealing with soul injury. After working with terminally ill veterans for 30 years, Deborah and a team of hospice nurses identified the unique needs of veterans at end of life.  According to Deborah’s bio, “the nurses discovered a phenomenon that has become identified as “Soul Injury®.” Led by Deborah Grassman, the five nurses left the VA to start Opus Peace, a non-profit organization with a mission of taking the Soul Injury® message to people who are not veterans and to people who are not dying. These pioneering nurses now provide educational materials and self-help tools to help people learn how to self-compassionately connect with the part of self-holding their pain and shame, allowing people to reconnect with their soul – with who they really are. A Nurse Practitioner, Deborah Grassman is the author of two books, Peace at Last and The Hero Within. She is a contributing author for four textbooks, has 25 published articles, and there are five documentary films featuring her work. Deborah directs the Opus Peace Institute where leaders are trained in how to provide programs that respond to Soul Injuries because, she contends, that 10,000 dying veterans have lessons the rest of us need to learn!”
    Click on the link below to register for National Anchor Your Heart Day on February 2nd:
    https://us02web.zoom.us/webinar/register/WN_i6YDmbPSQ--tEQ4wsAQGOg
    Register for the webinar by clicking here. 
    Here’s the link to the Opus Peace website:  https://opuspeace.org/
    Learn more about Soul Injury here. 
    Connect with podcast host Helen Bauer at helen@theheartofhospice.com.
    Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.  
    Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com. 
    Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

    • 39 min
    Tips for Navigating Hospice Care at Home with Barbara Karnes, Episode 142

    Tips for Navigating Hospice Care at Home with Barbara Karnes, Episode 142

    End-of-life educator Barbara Karnes is back to talk about death in the home, what it looks like, and how caregivers can manage a dying loved one at home.  The reality of a death at home is that it's a challenge for caregivers, and can put a heavy burden on the caregiver.  Before death became a medical event, it was a psychosocial event that was managed at home, and caregivers were supported by the community.  These days people frequently die in the hospital or in a nursing facility.  Family often is not present when a death happens.  A good death can happen at home; however, with family present.  Hospice support can be an important part of that care.  End-of-life workers can provide education, support, and encouragement that help caregivers manage the death experience.  Barbara describes the dying process as labor, very similar to labor for the birth of a baby.  Advance care planning (ACP) can help define how a person wants to die at home, identifying a medical decision-maker (MPOA or healthcare proxy).  Seriously ill adults who are living alone need a caregiving system.  Hospice social workers and chaplains can help solo agers identify an MPOA and build a support system for their caregiving.  
    Visit the BK Books website at bkbooks.com.
    Purchase your copy of Gone From My Sight by Barbara Karnes here.
    Connect with Barbara Karnes on Facebook.
    Connect with podcast host Helen Bauer at helen@theheartofhospice.com.
    Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.  
    Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com. 
    Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
     
        
     
     
     

    • 44 min
    Learning How to Reimagine Grief with Lisa Keefauver, Episode 141

    Learning How to Reimagine Grief with Lisa Keefauver, Episode 141

    Grief activist and founder of Reimagining Grief Lisa Keefauver is talking about her work to transform and expand our understanding of grief and change the lives of individuals, communities, and organizations along the way. 
    According to lisakeefauver.com, Lisa is “using my personal and professional experiences with grief and loss over the past 20 years to create a grief-smart culture.” She’s the founder of Reimagining Grief, Host of the top-rated podcast, Grief is a Sneaky Bitch, and Adjunct Professor of Loss and Grief at Steve Hicks School of Social Work at University of Texas at Austin. She brings her “whole self to the work, which includes warmth, vulnerability, humor and therapeutic skills”.  Lisa experienced the loss of her husband, leaving her a 40-year-old widow with a seven-year-old daughter.  She’s spent almost 2 decades as a clinical social worker and narrative therapist and realized grieving individuals weren’t receiving the support they needed from family, community, and cultures. 
    Connect with Lisa Keefauver at lisakeefauver.com.
    Listen to the Grief is a Sneaky Bitch podcast here.  
    Learn more about supporting grieving employees here.
    Find support with Reimagining Grief here.  
    Connect with podcast host Helen Bauer at helen@theheartofhospice.com.
    Find more information about hospice philosophy, end of life care, and self-care for both personal and professional caregivers here.  
    Book podcast host Helen Bauer to speak for your podcast, event, or conference by sending an email to helen@theheartofhospice.com. 
    Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
     

    • 59 min
    Medical Aid in Dying From a Hospice Social Worker Perspective, Episode 140

    Medical Aid in Dying From a Hospice Social Worker Perspective, Episode 140

    Medical Aid in Dying is a controversial topic. Hospice Social Worker Lisa Pahl shares what it’s like to support someone who’s utilizing Medical Aid in Dying. Hospice team members are often present when a patient chooses Medical Aid in Dying, or MAID.  Lisa’s experience has shown her how intense and intimate it can be to companion a patient and family during a MAID event.  Often the conversations about the death, and the details of how the patient wants it to happen, are enriched and deep.  Lisa shares that as a social worker, she finds her energy for supporting patients to be refilled rather than depleted.  Medical Aid in Dying is not legal in every state in the U.S.  It’s important that hospice and end of life workers are aware of what the laws are in the state where they work. Whether or not hospice professionals support a MAID law, they should be able to accurately inform patients and families, and provide education. 
    Connect with hospice social worker and Death Deck co-creator Lisa Pahl at thedeathdeck.com.
    Get your set of Death Deck cards here!
    Find more information on Medical Aid in Dying at Compassion and Choices.
    Find out if Medical Aid in Dying is legal in your state here. 
    Listen to the interview with Anita Hannig, author of How I Die: The Untold Story of Assisted Dying in America Epi. 114 by clicking here. 
    Connect with podcast host Helen Bauer at helen@theheartofhospice.com.
    Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.  
    Book podcast host Helen Bauer to speak for your podcast, event, or conference by sending an email to helen@theheartofhospice.com. 
    Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)
     
     

    • 37 min
    How to Provide Quality Hospice Care for LGBTQ+ Families, Episode 139

    How to Provide Quality Hospice Care for LGBTQ+ Families, Episode 139

    Hospice social worker and grief counselor Jill Johnson-Young is sharing wisdom and her perspective on end of life care for the LGBTQ+ community.  Just like every other patient and caregiver, members of the LGBTQ+ community and their caregivers want to feel safe and be treated with respect during their end of life experience.  Although it’s difficult to do, end of life workers need to be aware of their own biases.  Members of the LGBTQ+ community might be hesitant to choose hospice care, withhold necessary information from their end of life team, or even go back in the closet during hospice care. While each of us have opinions, hospice interdisciplinary team members should never voice those opinions about patients’ and caregivers’ lives.  Quality of care suffers when healthcare professionals show prejudice and judgmental attitudes.  The care of people in the LGBTQ+ community should be no different than the care that’s provided to any other patients.  Everyone deserves respect, compassion, tolerance, and empathy.
    You can connect with Jill Johnson-Young at jilljohnsonyoung.com.
    Read Jill’s blog here.
    Buy your copy of The Rebellious Widow and Your Own Path Through Grief  here.  
    Want to encourage a caregiver or say thank you to a friend? Order a customized care package from BeyondWordsCo.com.
    Find care packages and workplace gift programs for corporate gifting, employees, co-workers and clients here. 
    Read more about how Catherine Hinz founded BeyondWords here. 
    Connect with podcast host Helen Bauer at helen@theheartofhospice.com.
    Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.  
    Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com. 
    Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

    • 42 min
    How to Communicate to Get the Best Care Possible, Episode 138

    How to Communicate to Get the Best Care Possible, Episode 138

    Communication is crucial to creating the best end of life experience possible. We’re talking about what to say, how to say it, and when to say it.  Knowing how to communicate with their end of life workers helps patients and their caregivers to get better care. Patients and caregivers should feel comfortable talking about symptoms to their hospice team and asking questions. The professionals providing care can’t fix problems they don’t know about.  It’s also important to know what concerns need to be reported immediately and what information can wait.  The same holds true for the team members providing the care.  Patients and caregivers can be confused by medical jargon or terms.  Education should be provided in ways that are easy to understand.  Providing information quickly can also be very important.  Any instructions should be clear and concise.  It can be really helpful to leave a set of written instructions in the house for caregivers to reference when they’re providing care on their own.  And don’t forget compliments - saying something positive about the care someone is providing can make their day.  Good communication will influence the quality of care you provide - and the patient’s quality of life.
    Want to encourage a caregiver or say thank you to a friend? Order a customized care package from BeyondWordsCo.com.
    Find care packages and workplace gift programs for corporate gifting, employees, co-workers and clients here. 
    Read more about how Catherine Hinz founded BeyondWords here. 
    Connect with podcast host Helen Bauer at helen@theheartofhospice.com.
    Find more information about hospice philosophy, end of life care, and self care for both personal and professional caregivers here.  
    Book podcast host Helen Bauer to speak for your podcast, event or conference by sending an email to helen@theheartofhospice.com. 
    Find more podcast episodes from The Heart of Hospice at The Heart of Hospice Podcast (theheartofhospice.com)

    • 59 min

Customer Reviews

4.7 out of 5
45 Ratings

45 Ratings

KCurless ,

A must listen, and a must recommend!

I cannot say enough about this podcast! Whether you’re a patient, caregiver, volunteer, or hospice professional, this podcast is for you. Helen and Jerry do a remarkable job at compassionately and knowledgeably delivering insightful perspectives and education on end-of-life care.

Kimberly Curless
Hospice of Southern Maine

Kim B 8 ,

The Heart in Hospice

Wow! What a wonderful podcast. There is so much information and encouragement for people struggling with possibly one of the most difficult times in life - death. Helen and Jerry are brave and kind and bold and most importantly, their hearts are so in their hospice work. We all need support. We all need someone who can understand, encourage, and provide new ideas. This podcast is for everyone.

Tina Ketchie ,

Podcast on hospice education and advance care planning

I just had the honor of being interviewed by Helen and Jerry and they were not only professional, but obviously passionate about hospice and their mission of educating as many people as possible about the various aspects of hospice and advanced care planning. It was a true honor to be interviewed by them. I know their listeners will benefit greatly from their work. Tina Ketchie Stearns

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