Living Chronic: Ability At Work

Brandy Schantz

Welcome to Living Chronic: Ability at Work, the podcast where disability meets the future of work. Hosted by Brandy Schantz—a disabled veteran, workplace accommodation expert, workforce development leader, and author—this podcast challenges the way we think about disability in the workplace. Through honest conversations, expert insights, and lived experience, we explore what it really takes to build workplaces where everyone has the opportunity to thrive. Each episode tackles the issues shaping today's workforce: disability inclusion, reasonable accommodations, AI and the future of work, chronic illness, veterans in the workplace, mental health, leadership, public policy, and the systems that help, or hinder, people with disabilities from reaching their full potential. You'll hear from HR leaders, policymakers, researchers, medical experts, business executives, advocates, and people living with disabilities who are redefining what work can look like. Whether you're an employer trying to create a more inclusive organization, an HR professional navigating complex accommodation decisions, a policymaker shaping the future of work, or someone living with a disability or chronic illness, this podcast offers practical strategies, thoughtful conversations, and a fresh perspective on one of the largest untapped talent pools in today's workforce. Because disability isn't a barrier to talent, barriers are built into the systems around it. Together, we can dismantle those barriers, build belonging, and create workplaces where ability is recognized, supported, and valued. Living Chronic: Ability at Work—changing the conversation about disability, one workplace at a time.

  1. Episode 5

    The Long Middle with Mary Monoky

    Send us Fan Mail Living Chronic: Embracing the Long Middle of Chronic IllnessIn this episode of Living Chronic, Brandy Schantz and guest Mary Monoky explore the profound journey of living with chronic illness, focusing on the often-overlooked "long middle" — the lengthy, uncertain phase between onset and resolution. They share personal stories, insights on trauma, and the importance of resilience, connection, and understanding in navigating this complex experience.   The motivation behind sharing chronic illness stories later in life, including the freedom to be open about personal struggles  The significance of Maslow's hierarchy of needs in managing chronic illness survival and growth  The cycle of giving up and picking oneself up again, illustrating resilience in the face of repeated health crises  How animals and nature serve as anchors for mental well-being and motivation during long-term health struggles  The concept of the "long middle" — the enduring, often invisible phase of chronic illness lasting decades  The challenges of navigating complex healthcare systems, diagnosis delays, and unrecognized symptoms  The impact of chronic illness on loved ones, including trauma, invisibility, and changing family dynamics  The importance of listening to and trusting your body, using tools like wearable data for self-monitoring  The critical need for greater understanding and treatment options for dysautonomia and related conditions  A call to honor the trauma experienced by both patients and loved ones, recognizing the interconnected ripple effects Note: This episode is a deep dive into the emotional, physical, and social nuances of long-term chronic illness. If you're living through the "long middle," you're not alone and your experience is valid and shared by many. Support the show

About

Welcome to Living Chronic: Ability at Work, the podcast where disability meets the future of work. Hosted by Brandy Schantz—a disabled veteran, workplace accommodation expert, workforce development leader, and author—this podcast challenges the way we think about disability in the workplace. Through honest conversations, expert insights, and lived experience, we explore what it really takes to build workplaces where everyone has the opportunity to thrive. Each episode tackles the issues shaping today's workforce: disability inclusion, reasonable accommodations, AI and the future of work, chronic illness, veterans in the workplace, mental health, leadership, public policy, and the systems that help, or hinder, people with disabilities from reaching their full potential. You'll hear from HR leaders, policymakers, researchers, medical experts, business executives, advocates, and people living with disabilities who are redefining what work can look like. Whether you're an employer trying to create a more inclusive organization, an HR professional navigating complex accommodation decisions, a policymaker shaping the future of work, or someone living with a disability or chronic illness, this podcast offers practical strategies, thoughtful conversations, and a fresh perspective on one of the largest untapped talent pools in today's workforce. Because disability isn't a barrier to talent, barriers are built into the systems around it. Together, we can dismantle those barriers, build belonging, and create workplaces where ability is recognized, supported, and valued. Living Chronic: Ability at Work—changing the conversation about disability, one workplace at a time.