7 episodios

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

HAE Speaks US HAEA

    • Sin fines de lucro

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

    Episode 6: Advocating for HAE

    Episode 6: Advocating for HAE

    Linda P. provides insight to her HAE journey and tips about creating HAE awareness.

    • 7 min
    Episode 5: Road to Treatment

    Episode 5: Road to Treatment

    Michael G. shares his road to treatment and overcoming his fear of needles.

    • 12 min
    Episode 4: Life before and after an HAE diagnosis of a child.

    Episode 4: Life before and after an HAE diagnosis of a child.

    Episode 4 - Mandy is a mother and caregiver to her son, Luke.   Listen as Mandy shares a part of their journey,  life before and after an HAE diagnosis of a child.

    • 16 min
    Episode 3: Ongoing Research for New HAE treatments.

    Episode 3: Ongoing Research for New HAE treatments.

    Tony Castaldo, CEO of the HAE Association provides an information packed update on the new HAE treatments that are being developed by 9 companies. Tune in to this  podcast for the latest exciting details about this vitally important HAE research.

    Here is a list of companies and their websites listed in order as they are discussed in the podcast.

    BioCryst: www.biocryst.com

    Kalvista: www.kalvista.com

    Phavaris: pharvaris.com

    Attune Pharmaceuticals: attunepharma.com

    CSL Behring: www.cslbehring.com

    BioMarin: www.biomarin.com

    RegenxBio: www.regenxbio.com

    Intellia Therapeutics: www.intelliatx.com

    Ionis Pharmaceuticals: www.ionispharma.com

    • 13 min
    Episode 2: COVID interviews

    Episode 2: COVID interviews

    Missy interviews an HAE patient, caregiver and two Brady Club youngsters about COVID. Each of them with great ideas and tips during this time.

    • 27 min
    Episode 1: Life as a Caregiver (Missy M.)

    Episode 1: Life as a Caregiver (Missy M.)

    Episode 1

    HAE Speaks Podcast: 

    Missy M. shares a glimpse into her life as an HAE caregiver for her husband Mike.  

    For more information about HAE and the US Hereditary Angioedema Association please visit HAEA.org

    • 15 min

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