HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.
Episode 6: Advocating for HAE
Linda P. provides insight to her HAE journey and tips about creating HAE awareness.
Episode 5: Road to Treatment
Michael G. shares his road to treatment and overcoming his fear of needles.
Episode 4: Life before and after an HAE diagnosis of a child.
Episode 4 - Mandy is a mother and caregiver to her son, Luke. Listen as Mandy shares a part of their journey, life before and after an HAE diagnosis of a child.
Episode 3: Ongoing Research for New HAE treatments.
Tony Castaldo, CEO of the HAE Association provides an information packed update on the new HAE treatments that are being developed by 9 companies. Tune in to this podcast for the latest exciting details about this vitally important HAE research.
Here is a list of companies and their websites listed in order as they are discussed in the podcast.
Attune Pharmaceuticals: attunepharma.com
CSL Behring: www.cslbehring.com
Intellia Therapeutics: www.intelliatx.com
Ionis Pharmaceuticals: www.ionispharma.com
Episode 2: COVID interviews
Missy interviews an HAE patient, caregiver and two Brady Club youngsters about COVID. Each of them with great ideas and tips during this time.
Episode 1: Life as a Caregiver (Missy M.)
HAE Speaks Podcast:
Missy M. shares a glimpse into her life as an HAE caregiver for her husband Mike.
For more information about HAE and the US Hereditary Angioedema Association please visit HAEA.org