Podcast Cary

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Kanal • 47 Sendungen

Karriere

Karriere

30.12.2020
Geldanlage

Geldanlage

Täglich
Wirtschaft

Wirtschaft

24.11.2020
Gesellschaft und Kultur

Gesellschaft und Kultur

29.01.2025
Alternative Therapien

Alternative Therapien

Wöchentlich
Technologie

Technologie

Monatlich
Geldanlage

Geldanlage

14.06.2022

06.10.2020

How To Use Unconventional (But Effective) Strategies To Land a Job With Guest Austin Belcak

After first approaching his job search using more traditional methods like applying online to job postings, Austin Belcak discovered this simply isn’t effective. Now he coaches job seekers through his company Cultivated Culture on leveraging unconventional strategies to get a job even if you don’t have connections or traditional experience. Hint: It does not involve applying online! Find out what a “Value Validation Project” is and why it will truly distinguish you as a candidate who can add value to an organization. Also, learn why Austin’s strategy works beautifully during COVID times when we’re not meeting people face-to-face. Be sure to check out Austin’s website and the amazing free tools he provides for job-seekers at https://cultivatedculture.com/ And Follow Austin Belcak on LinkedIn here: https://www.linkedin.com/in/abelcak/ Tip: Austin posts daily on LinkedIn and his posts are always incredibly insightful and helpful.

06.10.2020

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47 Min.
22.09.2020

How to Find Job Opportunities with guest Amanda Augustine

Amanda shares some creative ideas developed through her experience as a Certified Professional Career Coach and a Certified Professional Resume Writer. Amanda is also the resident career expert for TopResume and previously served as the media spokesperson at Ladders where she provided guidance for professionals looking to improve their careers. Amanda believes that job seeking is a sales and marketing exercise. You are the product, so being able to articulate what your brand stands for is critical. We also talk about some of the crowdsourced spreadsheets that have been created and circulated as people generously help each other out in this difficult job market. In this episode, we dig into the importance of building online rapport as you expand your network of personal and professional connections. Also, use your social media to spread the word about what you’re great at and focus on the value you have to offer. Don’t miss Amanda’s advice on the “Power of 3” - using job boards, recruiters and your personal network to uncover job leads - because relying on just one of these is not enough to bring you success in your job search. Here are links to the resources mentioned in this episode (with thanks to Amanda Augustine for cultivating this list!): This article provides a list of crowdsourced resources, as well as job boards and apps that focus on remote jobs: https://www.topresume.com/career-advice/find-work-during-coronavirus Some of my favorites are: Torch Capital spreadsheet (they actually recently moved it to a website)Upstream app-based community platform designed to help professionals give and receive help. You can download the app from the App Store.Ryan Robinson's Remote Job Websites Collection - 60 job boards in totalLevels.fyi, which verifies the open positions with the company hiring Receive a free resume review from TopResume here. To find professional associations: Director of Associations: https://www.directoryofassociations.com/ To find a recruiter (without a Google search or without going through a job board/social media): i-Recruit: https://www.i-recruit.com/recruiters-directory.php To find networking events and job fairs: 10times: https://10times.com/ (also available as an app)Eventbrite: https://www.eventbrite.com/d/online/events/Meetup: https://www.meetup.com/Also, don’t forget to check with your alma mater’s alumni or career services teams. Many are hosting virtual events for alumni, including job-search specific events.

22.09.2020

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45 Min.
24.05.2022

Continuously Evolving

On this episode: Today's guest, Lisa Todd is the current chair of the National MPS Society.Lisa is a CPA, focusing on work with non-profits.Lisa heard about the National MPS Society in an email from a friend after receiving her son's diagnosis with the subject line H.O.P.E.Her son was diagnosed at 8.5 years old, which is a pretty late diagnosis. She recalls the story of diagnosis and the moment she believes was fate or intervention that led to the diagnosis and kept them from a longer diagnostic odyssey.Lisa shares the story of attending her first conference and sits down next to a world renowned doctor who was able to offer her insight and hope.Lisa was approached at that same conference to consider joining the board, and she saw it as an opportunity to give back. She has now served on the board for more than 10 years.We discuss the importance of diversity on the board of the National MPS Society. Diversity in syndrome, skillset, gender, ethnic, and sexual orientation.We unpack the changes happening at the National MPS Society to address how many are living longer with their syndromes and how addressing the Society evolves past just emotional support.The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you really like the podcast we'd appreciate you telling a friend (maybe even two).

24.05.2022

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33 Min.
26.04.2022

Expanding Our Mission

On this episode: Steve Holland has an extraordinary history with the National MPS Society. He was one of the early leaders who helped guide the society from being focused primarily on family support to now its larger issues of advocacy, research, and finding a cure. Steve shares some of his family's journey, and early diagnosis before treatments were available. The society's humble beginnings in 1974 started with 10-12 MPS and ML parents who started meeting and formally showing support to one another and new diagnoses. Barbara Wedehase was the first paid staff member and Director of the National MPS Society in 1999.Barbara shares about collaboration development with other rare disease organizations and pharmaceutical companies. When Barabara started her work with the society, there were three companies with approved therapies, at the end of her tenure there were 25. The expansion has been stupendous. Steve shares what it felt like the first time he realized that treatment would be available for his family and the hope he would bring to the rest of the community.We discuss the transition and metamorphosis from an organization primarily focused on family support for an incurable disease to an organization expanding their focus to help fund research, advocate for policy change, with the end goal of finding a cure.Quotes: "Back in 1994, at our first MPS conference, there were rumors of a pharmaceutical company that might be interested (in developing treatments), but it was like finding a unicorn. You heard about them, but you never really found them." - Steve Holland "In many ways, we were able to turn from a kitchen table organization into a corporate table organization; and we were able to do that by relying on the skillset of the new board members and what they can bring to the organization." - Steve Holland"If you don't have hope, what do you have?" - Barbara Wedenhase The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you really like the podcast we'd appreciate you telling a friend (maybe even two).

26.04.2022

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34 Min.
26.07.2022

Inclusion with Kendra Gottsleben

In this episode: Kendra was born and raised in a small town in South Dakota, where her community nurtured her with inclusion and support.She has always been fascinated with psychology and sociology, leading her to pursue a degree from Augustana University. When Kendra moved to a larger community and now advocating for herself. She has a deepened desire to pursue a career that serves people with disabilities. She has a passion for disability inclusion that is evident in her work, philanthropy, and creativity.She is the author of three published books and the founder of the nonprofit Rare by Design. In today's episode, we discuss the importance of disability inclusion and how we can promote it in our own communities. Kendra talks about what her experience was growing up being mainstreamed in school with 504 assistance and the role her mom played in leveling the playing field for her during school.For the past 11 years, Kendra has worked at the South Dakota Medical School Center for Disabilities.We talk about Kendra's perspective on disability inclusion in the workplace.There are so many ways to identify, describe, and honor the human experience. As we focus on and broaden our perspectives on those, who are marginalized, specifically those with disabilities, there are many terms and concepts to describe the disability and rare disease experience, and the language always changes. Kendra tells the story of how she was a runway model in 2016 for Tommy Hilfiger in New York for the Runway of Dreams Foundation.We discuss her first book, Live Laugh Lemonade: A Journey of Choosing to Beat the Odds, and what was happening in her life when she wrote it. Her next book is a children's book called Kendra's Lemondate which she wrote to help kids and others understand disabilities. Her most recent book is Kendra's Perfect Dance Routine, about her dance experience as a child.The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you really like the podcast, we'd appreciate you telling a friend (maybe even two).

26.07.2022

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32 Min.
30.08.2022

Newborn Screening Advocacy with Dr. Mike Hu

In this episode: Two of Mike's sons have been diagnosed with MPS II Hunter Syndrome.Mike paraphrases Steve Jobs, "The dots you cannot connect them looking forward, you can only connect them looking backward," when describing his journey with how his education, research, and career ultimately collide with his family life.Mike was born and raised in China before moving to the US for a post graduate program at the University of Austin, where he studied Molecular Genetics.His first job was as a product developer for a genetic testing company developing products to diagnose genetic diseases.Mike shares the basics of the newborn screening process and how results can be interpreted.Mike describes his sons' diagnostic odysseys, and how newborn screening could have impacted that part of their journey with MPS.Newborn screening is essential to early diagnosis and treatment. Awareness and education is important to public health. Each state decides what is screened for on their panels, currently about half of the states screen for MPS I (some currently screen for MPS II, as well). Mike stresses the importance of advocacy and encourages involvement with the National MPS Society Advocacy Committee. The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you like the podcast, we'd appreciate you telling a friend (maybe even two).

30.08.2022

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40 Min.
28.02.2022

Isabel's Calling: A Triumph for Advocacy

On this episode: Jason interviews Isabel Bueso (born Maria Isabel Bueso Barrera), a Guatemalan activist with MPS, living in the United States under deferred action.After receiving an unexpected threat of deportation which meant no longer receiving her life-saving treatment and having to leave the only life she knew, this young woman recognized something had to be done. Over a span of a few weeks her call to action was received with outpouring community support.She went from relative obscurity at the mercy of circumstances to speaking in front of an emergency subcommittee hearing in Congress. She not only advocated for herself, but for the entire rare disease community. Her brave testimony has contributed to life-saving policy changes.Isabel shares her story of diagnosis and early treatment as a young child in the United States. Isabel and her family relocated to California to continue her life-saving treatment. Since they are not citizens, their status had to be renewed every three years to continue receive treatment in the US.One day, after an infusion, she received news that would change Isabel and her family's lives drastically. Their immigration status was denied and they were given 33 days to leave the country.Isabel describes how her journey felt from receiving the news about her immigration status to walking into Congress to tell her story. An audience from both sides of the aisle she had only seen previously on television. After her testimony to Congress, the 33-day deadline continue to approach. Representatives put a hold on the deadline while they discussed it, and finally with much anticipation, decided to reverse the policy. Isabel and those she advocated on their behalf were now able to stay and get the life-saving treatments they desperately needed. Mentioned on this episode: Isabel BuesoThe Ryan Dant Story on 60 MinutesThe Documentary Crip Camp | A Disability RevolutionQuotes: "I had to go public. I made the decision to use my voice and advocate for myself and my family, but all the other people weren't going in the same thing." ~ Isabel "I think that's such an incredible story. It's you know, hopefully, it inspires other people to know that their voices can be heard. They don't need to be scared and our system although flawed as it is, and as frustrating as it can be, does work at times." ~ Jason The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you really like the podcast we'd appreciate you telling a friend (maybe even two).

28.02.2022

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28 Min.
28.06.2022

Radical Acceptance with Morgan Motsinger

On this episode: Annie, Morgan's daughter, was diagnosed about 10 years ago with MPS IIIA, also known as Sanfilippo IIIA. Children with MPS lack an enzyme that breaks down complex sugar molecules, which leads to progressive disease manifestations.Morgan shares her perspective on her daughter's initial diagnosis, including the initial encounter with an astute ENT doctor that had concern for an underlying genetic condition that would explain certain physical characteristics and developmental delays. Morgan discusses some of the ways that her daughters MPS IIIA manifested itself before and after her diagnosis at 3 1/2 years old.We ask Morgan how she was able to get to a place of radical acceptance and live a joy filled life despite her daughter's Sanfilippo diagnosis.Morgan started an interior design company in an effort to find something outside the home for herself, while balancing the need to be home to care for her children. The experience empowered her to help other women find their way in the world of entrepreneurship."I think if I was going to put a label on my life of what the biggest lesson has been through all of this, it has been how to be resilient in the face of extraordinary circumstances." ~ Morgan MotsingerMorgan wanted to share her experience and coping skills she learned with others and started a life coaching business.Both of Morgan's businesses provide support for special needs families.Caregivers seem to put themselves last, but Morgan gives practical advice on how to prioritize self-care and understand it is both important and worth the effort.Morgan highlights the importance of finding perspective and embracing personal responsibility and what that has looked like in her life.Find out more about our guest and her businesses at https://sweetbeecoaching.com/ and https://annikainteriors.com/. The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you really like the podcast we'd appreciate you telling a friend (maybe even two).

28.06.2022

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36 Min.
27.09.2022

The Future of Newborn Screening with Dr. Mike Hu

In this episode: We are back talking with Mike Hu about Project GUARDIAN.Project GUARDIAN advocates for and supports sequencing based newborn screening to identify pre-symptomatic patients who can either benefit from early intervention using existing treatments or eligible for clinical trials of novel treatments, at a disease stage when treatment could be maximally efficacious.We discuss what genome sequencing is and the role it can play in diagnosis of rare diseases in the future.We also discussed epigenetic modifications that are specific to an individual.How is genomic sequencing different than mass spectrometry and how could it transform newborn screening? Mike unpacks his vision.When we talk about expansion of the newborn screening system, it is necessary to introduce new platforms that go beyond mass spectrometry, and genomic sequencing is a suitable one.We discuss the challenges introducing large scale sequence based newborn screening studies in the US. The National MPS Society exists to cure, support, and advocate for MPS and ML. If you like Our Voices, visit our website and follow us on social media on Facebook, Instagram, Twitter, and LinkedIn. And if you like the podcast, we'd appreciate you telling a friend (maybe even two).

27.09.2022

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20 Min.
09.12.2025

Wisdom Series: The Life and Career of Marty Hartwell

Join Jim Baker & Bill LuMayeas they sit down with his Jim's former neighbor and successful entrepreneur, Marty Hartwell, the owner of a thriving floor covering business. In this episode of the Wisdom Series, Marty shares his life experiences, beginning with his childhood in Cleveland and Detroit, his family's influence, his journey through various jobs, and the roots of his work ethic. Discover Marty's time in the Army, his eventual success in sales, and the founding of his own business in Raleigh. Listen in as Marty reflects on valuable life lessons, the importance of family, faith, and hard work, and offers insightful advice for the next generation. 00:00 Introduction and Holiday Greetings 01:22 Introducing Marty Hartwell 02:45 Marty's Early Life and Family Influence 06:11 Career Beginnings and Military Service 09:42 Transition to Sales and Business Ventures 14:13 Challenges and Success in Business 17:41 Family Life and Parenting Philosophy 28:17 Reflections on Faith and Marriage 29:48 Meeting and Marrying Maureen 35:41 Navigating Early Relationship Challenges 36:37 Health Benefits of English Breakfast Tea 37:16 Overcoming Life's Struggles Together 37:55 Secrets to a Successful Marriage 38:11 Balancing Business and Family 40:17 Keys to Success in Sales 43:15 Current Trends in Flooring 44:05 Staying Active and Healthy 49:08 Reflections on Family and Legacy 52:33 Thoughts on Society and Patriotism 56:43 Concluding Thoughts and Life Advice

09.12.2025

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1 Std. 1 Min.

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