Appearance Matters: The Podcast‪!‬ The Centre for Appearance Research

In this episode, we are joined by some of the members of the CARE project team. CARE stands for Craniofacial Microsomia: Accelerating Research and Education and is aimed at investigating the psychosocial impact and healthcare burden of Craniofacial Microsomia.

CAR's own Dr Nicola Stock (Associate Professor), Dr Alessia Johns (Paediatric Psychologist, Children's Hospital Los Angeles), Lazer Schefer (Patient advocate), and Amy Schefer (Parent advocate) join Maia to discuss this exciting project and the importance of conducting impactful research into rare conditions.

To find out more about the CARE project or to take part in the research, click here: https://linktr.ee/careforcfm

To keep up to date with the Centre for Appearance Research, follow us on
• X: twitter.com/CAR_UWE
• Instagram: www.instagram.com/car_uwe/
• Facebook: www.facebook.com/AppearanceResearch

Episode developed and produced by Maia Thornton.

April is Autism Acceptance Month so Nadia speaks with Phaedra Longhurst - an autistic PhD student at Angelia Ruskin University.

The Links to Phaedra's Papers:
Scoping Review: https://doi.org/10.1016/j.rasd.2023.102170
Positive body image in autistic adults interview study: https://doi.org/10.1016/j.bodyim.2023.101655
BAS-2A: https://doi.org/10.1016/j.bodyim.2024.101706

To keep up to date with the Centre for Appearance Research, follow us on
• X: twitter.com/CAR_UWE
• Instagram: www.instagram.com/car_uwe/
• Facebook: www.facebook.com/AppearanceResearch


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Thank you! x

Episode developed and produced by Nadia Craddock.

Find out more about Body Confident Sport - two new body image programmes designed to support girls in sport settings.

Nadia speaks with Dr Emily Matheson, Dr Kat Schneider, Dr Courtney Boucher, and Dr Nicole LeVoi to hear more have this 3-year project from conception to dissemination.

Body Confident Sport Website: https://www.bodyconfidentsport.com

Centre for Appearance Research Website: www.uwe.ac.uk/car
Tucker Center Website: https://www.cehd.umn.edu/tuckercenter/

Papers:
https://doi.org/10.1016/j.bodyim.2023.06.012
https://doi.org/10.1016/j.bodyim.2023.06.013
https://doi.org/10.1016/j.bodyim.2023.05.002
https://doi.org/10.1080/10413200.2023.2212023
https://doi.org/10.1080/1750984X.2023.2258379
https://doi.org/10.1123/iscj.2023-0035

Episode developed and produced by Nadia Craddock.

For our February episode, Abbi finds out all about Alopecia. Alopecia means hair loss and it can affect any or all areas of the body, and can be temporary or permanent.

We are joined by three guests. Firstly, from CAR, we have Research Fellow Dr Kerry Montgomery and Senior Lecturer – formerly Senior Research Fellow at CAR - Dr Fabio Zucchelli. We are also joined by Sue Schilling, CEO of Alopecia UK, a national charity aiming to improve the lives of those affected by alopecia.

Alopecia UK: https://www.alopecia.org.uk/
Men's Chat Short Film: https://www.alopecia.org.uk/mens-chat-a-short-film

Papers discussed:

Men’s experiences of alopecia areata: A qualitative study https://journals.sagepub.com/doi/full/10.1177/20551029221121524

Patients' experiences of primary healthcare and dermatology provision for alopecia
https://onlinelibrary.wiley.com/doi/full/10.1002/ski2.324

Establishing the financial burden of alopecia areata and its predictors
https://onlinelibrary.wiley.com/doi/full/10.1002/ski2.301

Please share, subscribe, rate and review. It really does mean a lot.

Thank you! x

Music by Sian Evans & John Landau: toplinefilm.com
Cover photo by Alopecia UK
Episode developed & produced by Abbi Mathews

This month, we are joined by Christia Huntington, a third year PhD student at the Centre for Appearance Research, who tells us all about her PhD looking into online support for people affected by burn injuries.

HealthTalk Burn Injuries module – www.Healthtalk.org/Burn-Injuries
Dans Fund for Burns - https://dansfundforburns.org/
Take part in Christia's research - https://uwe.eu.qualtrics.com/jfe/form/SV_2u81WX44Tu4Msp8

Please share, subscribe, rate and review. It really does mean a lot.

Thank you! x

Music by Sian Evans & John Landau: toplinefilm.com
Cover photo by Olena Yakobchuk from Shutterstock
Episode developed & produced by Abbi Mathews

Professor Phillippa Diedrichs chats to Nadia about some career defining moments and gives some teasers for her Appearance Matters 10 Conference Keynote address.

More about Phillippa: https://www.phillippadiedrichs.com

Link to info on the 10th Appearance Matters Conference: www.uwe.ac.uk/research/centres-a…ents/am-conference

Prof Nichola Rumsey episode link: https://soundcloud.com/appearance-matters/bonus-episode-professor-nichola-rumsey-obe

Body Confident Sport: https://www.bodyconfidentsport.com/