Dear NICU Mama

Dear NICU Mama

The DNM Podcast is a weekly podcast hosted by NICU mamas and team members of Dear NICU Mama, Ashley + Aisha! By hosting interviews with trauma-informed medical and maternal mental health experts and sharing vulnerable interviews with NICU mamas around the world, our hope is that you feel like you’re sitting across the table from another NICU sister and feel seen and validated in your experience. No matter where you are on your healing journey, this podcast is here to remind you that you are not alone. Welcome to the sisterhood! Hosted on Acast. See acast.com/privacy for more information.

  1. 1 APR

    Brent & Suzette: Holding Grief and Joy in Medical Parenthood

    In this week’s episode, we sit down with Brent and Suzette to share the story of their daughter Chloe and her journey with a rare mitochondrial disorder. What began as a typical pregnancy quickly shifted into a complex medical journey marked by uncertainty, advocacy, and deep resilience. Brent and Suzette vulnerably reflect on receiving Chloe’s diagnosis of Leigh Syndrome, navigating hospitalizations and developmental changes, and learning how to care for and advocate for their daughter while holding both grief and joy at the same time. Now 17 years into their journey, they offer powerful wisdom on partnership, perseverance, and choosing hope in the face of the unknown. You’ll also hear how Chloe’s life and children like her, continue to inspire a greater mission through Morgan’s–creating inclusive spaces where individuals of all abilities are seen, valued, and celebrated. As you listen, we hope you feel seen, supported, and reminded that even in the hardest moments, you are not alone! The Mission of Morgan’s: To improve the quality of life for individuals of all ages and all abilities through initiatives that produce fully-inclusive, Ultra-Accessible™ experiences. To get connected with Morgan’s: Website | Instagram | Facebook About Brent: Brent is the Chief Executive Officer of Morgan’s, a family of ultra-accessible, fully inclusive spaces designed with individuals with disabilities in mind and built for everyone to enjoy. With over 30 years of executive leadership experience across education, healthcare, research, and social services, Brent brings both strategic vision and heart to his work. Under his leadership, Morgan’s has grown to include a theme park, sports complex, camp, multi-assistance center, and inclusion institute, impacting communities on a local, national, and global level. To get connected with DNM: Website | Private Facebook Group | Instagram Support the show

    1hr 8min
  2. 18 MAR

    Cerebral Palsy Is a Spectrum: A NICU Mom Roundtable

    In this week’s episode, in honor of Cerebral Palsy Awareness Month, we’re hosting a powerful roundtable conversation sharing real, honest stories from NICU moms navigating this diagnosis with their NICU miracles. Melissa, Vilma, Andrea, and Aisha together share about what it’s like to hear the words Cerebral Palsy for the first time, why it can feel so heavy, and how that understanding shifts over time. We unpack the reality that CP is a spectrum and that no two children and no two journeys look the same. In this episode, you’ll hear: How each of them processed the diagnosis and learned to hold both grief and joy at the same timeThe importance of early intervention, advocacy, and letting your child lead the wayWhat it looks like to navigate therapies, school systems, and support servicesThe emotional realities of motherhood, relationships, and life after the NICUMore than anything, this conversation highlights the power of community and how reaching out, finding support, and walking alongside other moms can be essential on our healing journeys. As we recognize Cerebral Palsy Awareness Month, we hope this episode brings greater understanding, compassion, and hope. Your child’s unique story is still unfolding, and you are not alone! To get connected with DNM: Website | Private Facebook Group | Instagram This podcast episode is not an attempt to practice medicine or provide medical advice. All information, content, and material on this website is for informational purposes only and is not intended to be a substitute for professional medical or mental health advice, diagnosis or treatment. To get connected with NICU Alumni: Website Support the show

    55 min
  3. 4 MAR

    A Full-Circle Diagnosis: Oakley’s NICU Story | Part 1

    In this week’s podcast episode, Emilee shares Part 1 of her son Oakley’s unexpected NICU journey, a story marked by emergency decisions, a rare genetic diagnosis, and a powerful full-circle moment within her own family. After a healthy pregnancy, Emilee delivered Oakley six weeks early via emergency C-section when she noticed decreased movement in the middle of the night. What began as low blood sugar and a short NICU stay in their small Colorado town quickly turned into a transfer to Children’s Hospital, where Oakley was diagnosed with a rare genetic deletion on his X chromosome called UBE2A. In an emotional twist, Emilee's family soon discovered that her older brother, who had been diagnosed with cerebral palsy his entire life, shares the exact same genetic deletion. In this conversation, Emilee's shares the moment she knew something wasn’t right, the whirlwind of those early NICU days, and what it was like to receive an uncertain diagnosis. She also reflects on growing up alongside a medically complex sibling and how the strength her parents modeled now shapes the way she and her husband parent Oakley. Emilee's story is one of resilience and unexpected hope in the middle of the unknown. We hope it reminds you that even in moments of uncertainty, you are capable, you are supported, and you are never walking this road alone. To get connected with DNM: Website | Private Facebook Group | Instagram Support the show

    40 min

About

The DNM Podcast is a weekly podcast hosted by NICU mamas and team members of Dear NICU Mama, Ashley + Aisha! By hosting interviews with trauma-informed medical and maternal mental health experts and sharing vulnerable interviews with NICU mamas around the world, our hope is that you feel like you’re sitting across the table from another NICU sister and feel seen and validated in your experience. No matter where you are on your healing journey, this podcast is here to remind you that you are not alone. Welcome to the sisterhood! Hosted on Acast. See acast.com/privacy for more information.

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