GAG | eating life with head & neck cancer Ep 60 - 120

Yvonne McClaren

A podcast empowering global communities affected by head and neck cancer & dedicated to reducing social isolation through curated resources. Inspire and educate fellow patients, clinicians, and caregivers alike, paving the way to embrace an optimal food life journey during and after treatment. Lived practical advice on achieving better patient care with food, eating & PEG transitioning. Ideas & online resources to create best food life outcomes for head & neck cancer patients. Providing patient insight for interprofessional collaboration regarding commensality, food and communication. yvonnemcclaren.substack.com

  1. GULP- Chapter 1: A Table Lost (Free)

    10 APR

    GULP- Chapter 1: A Table Lost (Free)

    Show Notes — Chapter 1 Episode Title:GULP — Chapter 1: A Table Lost (Free) Subtitle:When eating is no longer simple - understanding the lived reality of dysphagia. Episode Description Chapter One introduces the reality of what happens when eating is no longer simple. This chapter explores the early impact of treatment, the physical and emotional challenges that follow, and the unexpected loss of confidence around food and social eating. It reflects on the gap between clinical care and practical, everyday food preparation, and the responsibility many patients face when navigating swallowing challenges without clear guidance. This chapter also introduces the concept of commensality - the importance of eating together - and why restoring social eating is not simply a lifestyle issue, but a critical part of recovery, identity, and connection. Drawing from lived experience, this chapter sets the foundation for understanding dysphagia not just as a medical condition, but as a life-altering shift that affects independence, confidence, relationships, and quality of life. This is Chapter One of the GULP audio series and is available as a free introduction to the full series. In this chapter: - The early physical and emotional realities following treatment The impact of medication, fatigue, and recovery The gap between clinical advice and practical food preparation Navigating PEG tube feeding and the transition toward oral eating The importance of creating a roadmap when familiar routines disappear Understanding commensality and the role of shared meals in recovery The social and emotional consequences of losing confidence around eating Why dysphagia affects far more than nutrition alone Listener Note This chapter contains discussion of cancer treatment, PEG feeding, and the lived experience of dysphagia recovery. Access Note (for Chapter 1 only) Chapter One is available to all listeners.The remaining chapters in the GULP audio series are released weekly and are available to paid subscribers. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe

    39 min
  2. 13/10/2025

    Excerpt Chapter 2: GULP.

    An excerpt from my upcoming book GULP. Taking A Seat Back At The Table After Head And Neck Cancer. I will be presenting at the IDDSI Conference - Monday 20th October 2025. Details here Chapter 2 The Rosetta Stone: IDDSI We Need to Talk About IDDSI: International Dysphagia Diet Standardisation Initiative Transitioning from a PEG tube back to oral eating is confusing, scary, and fraught with stress and uncertainty. It’s not just about swallowing safely; it’s about rebuilding your entire relationship with food. For many patients, eating more by mouth while maintaining weight and hitting nutritional targets is anything but straightforward. I discovered it involves your mind, your food, and your body - three elements that intertwine and rely on one another for success. I came to realise this firsthand as I stumbled my way through the chaos, trying to make sense of what was happening to me. The Missing Conversation in Dysphagia Care Caring for your thoughts, understanding your options for medical and allied health support, and getting your kitchen, shopping lists, and recipes aligned all matter. Add in the methods required to chew and swallow safely, and you’ve got a full-time job before you even sit down to eat. I documented exactly how I transitioned from 15 months of no oral food - relying solely on my PEG tube - to eventually eating orally again (despite ongoing dysphagia) and completing an 800km hike across Spain, eating whatever I could find on the road. That journey revealed something critical: Dysphagia is one thing, transitioning from PEG to oral food is another beast entirely, and for patients without a love of food, nutrition, or cooking, the hill is even steeper. GULP will be available on Amazon and on my site - ensure you are signed up here when its live. Eat Well. This is a public episode. If you'd like to discuss this with other subscribers or get access to bonus episodes, visit yvonnemcclaren.substack.com/subscribe

    2 min

About

A podcast empowering global communities affected by head and neck cancer & dedicated to reducing social isolation through curated resources. Inspire and educate fellow patients, clinicians, and caregivers alike, paving the way to embrace an optimal food life journey during and after treatment. Lived practical advice on achieving better patient care with food, eating & PEG transitioning. Ideas & online resources to create best food life outcomes for head & neck cancer patients. Providing patient insight for interprofessional collaboration regarding commensality, food and communication. yvonnemcclaren.substack.com