PeDRA Pearls

Pediatric Dermatology Research Alliance

The Pediatric Dermatology Research Alliance (PeDRA) is vibrant research network pursuing the mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.

  1. Rare Disease, Real Progress: Unraveling Bachmann-Bupp Syndrome

    há 4 dias

    Rare Disease, Real Progress: Unraveling Bachmann-Bupp Syndrome

    In this episode of PeDRA Pearls, we explore the discovery of Bachmann-Bupp syndrome and the remarkable collaboration that transformed a single patient observation into a growing body of research and a promising treatment pathway. Host Jenn Dawson speaks with Caleb Bupp, MD, Andre Bachmann, PhD, and Liz VanSickle, PhD, about the genetics, skin and hair findings, and translational science behind this ultra-rare disorder, as well as the critical role pediatric dermatologists can play in recognizing patients, advancing research, and building connections for families navigating rare disease.

    53 min
  2. Connection, Service, and Redirection with Mitchell Hanson, MD, MPH

    22 de jun.

    Connection, Service, and Redirection with Mitchell Hanson, MD, MPH

    In this episode of PeDRA Pearls, host Jenn Dawson welcomes Mitchell Hanson, MD, MPH, PeDRA’s new Education Fellow, for a conversation about connection, service, and intentionality in pediatric dermatology. Mitchell shares how his path through neuroscience, public health, medical education, and community-centered initiatives led him to PeDRA, and reflects on the importance of keeping patients at the center of research and education. Listeners will hear about his passion for making pediatric dermatology more accessible, the lessons he learned through global health work and SunSafe Augusta, and how setbacks can become meaningful redirections toward purpose.

    30 min
  3. The Evolving Research Landscape in Epidermolysis Bullosa

    15 de jun.

    The Evolving Research Landscape in Epidermolysis Bullosa

    In the first installment of PeDRA’s 2026 educational series – Research in Action: Advancing Care for Epidermolysis Bullosa (EB), Dr. Peter Marinkovich of Stanford University provides a timely overview of emerging therapies and clinical research in EB, including gene therapies, cell-based approaches, inflammation-targeted treatments, and strategies to improve wound care and long-term outcomes. Dr. Marinkovich includes an excerpt from Aaron Owens, a dystrophic EB patient who participated in a clinical trial. Designed for clinicians, researchers, patients, caregivers, and others involved in EB care, this program highlights recent progress in the field and the collaborative work driving better treatment options for patients. Click here to view the video version of this webinar. Special thanks to BioMendics, Castle Creek Biosciences, Chiesi, and Krystal Biotech for their support of the 2026 EB Educational Series. PeDRA is solely responsible for all program content and the selection of all presenters, authors, moderators, and faculty.

    55 min
  4. Beyond Alopecia: Advancing Pediatric Hair Disorders Research

    8 de jun.

    Beyond Alopecia: Advancing Pediatric Hair Disorders Research

    Tune in to hear Dr. Cathryn Sibbald and Dr. Ilka Netravali, leaders of PeDRA’s Hair Disorders Focused Study Group, explore how pediatric hair disorders research is evolving beyond alopecia areata. They discuss multicenter studies, emerging biomarkers and precision medicine approaches, cross-specialty collaboration, and the importance of incorporating patient and family perspectives to improve care. The conversation highlights how this growing body of research is helping move the field toward more personalized, evidence-based, and equitable treatment for children with hair disorders.

    37 min
  5. Pediatric Atopic Dermatitis: New Guidelines, New Treatments, New Questions

    1 de jun.

    Pediatric Atopic Dermatitis: New Guidelines, New Treatments, New Questions

    In this episode, host Jenn Dawson talks with Dr. Dawn Davis, Dr. Amy Paller, and Dr. Larry Eichenfield about the newly published pediatric atopic dermatitis guidelines and what they mean for clinicians, patients, and families. Together, they unpack the evidence behind prevention, comorbidities, and treatment recommendations, discuss how rapidly the therapeutic landscape is evolving, and highlight the biggest unanswered questions that remain in research. The conversation also explores the importance of patient advocacy, shared decision-making, and improving access to care as the field moves toward more personalized treatment. Guidelines of care for primary prevention of atopic dermatitis and awareness of comorbid conditions in pediatric atopic dermatitis. Guidelines of care for the management of atopic dermatitis in pediatric patients. Please click here for a list of speakers' conflicts of interest.

    52 min
  6. PeDRA at SID - Key Takeaways from the 2026 Meeting

    21 de mai.

    PeDRA at SID - Key Takeaways from the 2026 Meeting

    In this episode of PeDRA Pearls, Jenn Dawson is joined by PeDRA Executive Director Mike Siegel and Outcomes Committee Chair Dr. Marcia Hogeling to recap key themes from the Society for Investigative Dermatology (SID) meeting. They discuss emerging trends in dermatology research, including the growing role of genetics, molecular diagnostics, multi-omics, and biologic therapies, as well as highlights from PeDRA’s featured session on vascular anomalies, rare skin diseases, and RIME. The conversation also explores the importance of patient advocacy, collaboration between clinicians and basic scientists, and the exciting future of pediatric dermatology research. Announcements: Register for the Epidermolysis Bullosa webinar with Dr. Peter MarinkovichRegister for the 14th PeDRA Annual Conference

    35 min
  7. PeDRA at SID - A Patient Advocacy Perspective

    20 de mai. ·  Bônus

    PeDRA at SID - A Patient Advocacy Perspective

    Meredith Weiss joins the podcast to discuss a study that was presented in the inaugural Gorlin Syndrome Alliance Round Table session at the Society for Investigative Dermatology (SID) meeting. Meredith is the Executive Director for the Gorlin Syndrome Alliance. Novel PTCH1 Variants in Gorlin Syndrome Identified through Genomic Analysis of 118 Patients. The authors of this study are: Ryan Kern*1, Amy Xiong1, Qianqian Wang2, Philip Beachy2, Jean Tang1 1Department of Dermatology, Stanford University School of Medicine, Stanford, California, United States; 2Department of Developmental Biology, Stanford University School of Medicine, Stanford, California, United States Please click here for more information about the Gorlin Syndrome Alliance.

    11 min
  8. PeDRA at SID - Poster Interviews

    20 de mai. ·  Bônus

    PeDRA at SID - Poster Interviews

    Tammy Esohe Ehimwenma Point Du Jour, Medical Student, Meharry Medical CollegeNeha Momin, Medical Student, University of HoustonRachel Zhang, Johns Hopkins UniversitySarah Commaroto, Research Fellow, University of South FloridaMadeline Guy, Medical Student, Northwest Ohio Medical University

    38 min
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Sobre

The Pediatric Dermatology Research Alliance (PeDRA) is vibrant research network pursuing the mission to create, inspire, and sustain research to prevent, treat, and cure childhood skin disease.

Informações

  • Criado por
    Pediatric Dermatology Research Alliance
  • Anos de atividade
    2020 - 2026
  • Episódios
    200
  • Classificação
    Livre
  • Copyright
    © Copyright 2026 Pediatric Dermatology Research Alliance
  • Site do podcast
    PeDRA Pearls

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