4t Below Zero: Multiple Sclerosis Podcast

Nick and Terry

An international podcast about living with Multiple Sclerosis. 2 Guys with MS not MS'ing around. Hosted by Nick and Terry, discussing and attempting to normalize the conversation around life with a chronic and invisible illness.

  1. 1d ago

    Why Hiding MS Made Me Lonely — Until I Discovered Comedy

    Most people hide their struggles; she turned hers into stand-up gold. Meet the comedian with MS who turned seventeen years of silence into a one-woman show that’s breaking barriers—and maybe a few glasses of whiskey along the way. In this raw and hilarious episode, we dive into how she went from hiding her MS for nearly two decades to performing on stages across Canada, all while navigating relapses, relishing the absurdity of it all, and flipping societal ableism the bird. You’ll discover how humour became her therapy, why sharing your story might just be the bravest thing you do, and the surprising ways MS teaches us about resilience, vulnerability, and finding your tribe. We break down her journey from silence to spotlight, exploring her experiences with diagnosis, acceptance, and the wild chaos of public events—think MS walks, drone flying, and the art of saying “no” without PTSD. Plus, get insider tips on managing invisible illness, turning adversity into art, and why every MS warrior should consider their own comedy show. Why does this matter? Because if you think MS—or any challenge—has to be a solitary struggle, think again. This episode is a pep talk for anyone feeling invisible, overwhelmed, or just plain tired of pretending everything’s perfect. Her story is a call to embrace vulnerability, laugh in the face of adversity, and realize we’re all part of one big, sometimes hilarious, but always resilient family. Perfect for MS warriors, advocates, and anyone craving honesty with a side of humour. This isn’t just talk—it’s a celebration of strength, sass, and the fact that sometimes, the best medicine is a good laugh. Join us as she shares her journey, unleashes her humour, and proves that even with MS, life can be full of moments worth celebrating. Trust us, you’ll want to hear this one—and then maybe send her a thank you card for making you smile. Instagram: https://www.instagram.com/karinfekko/ YouTube: https://www.youtube.com/@KarinFekko ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ✔ Instagram: @4tbelowzero ✔ TikTok: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use #ComedyWithMS #InvisibleIllness #StandUpComedy #Resilience #MSAwareness #LaughThroughAdversity #BreakingBarriers #Vulnerability #HumorHeals #MSWarrior

    44 min

  2. Jun 3

    Another Round with Karen Jacoby: Continuing the Conversation on MS and Empowerment

    Ready to laugh, learn, and maybe shed a tear or two? This episode dives into family planning with MS warriors, the miraculous advances in treatment, and the power of community advocacy — all served with a healthy dose of wit and heart. If you think MS is just about medications, think again — it's about identity, resilience, and finding humour in the chaos. The importance of family planning during MS diagnosis and journey Cutting-edge blood tests for B-cell regeneration and personalized treatment How treatment timing can be customized based on immune system levels The evolution of MS medication: from injections to pills The impact of advocacy and visibility in raising MS awareness (hello, Drake!) Unique ways MS warriors assign nicknames to symptoms for mental survival The role of community ambassadors in transforming lives and raising funds Navigating infertility and MS: stories of hope, loss, and resilience The significance of inclusivity and policy reform in disability recognition The power of collective action: landmarks lit red and advocacy moves https://linktr.ee/Karenvsms Follow me on IG: @karenvsms Learn more about MS Canada: mscanada.ca Note: Stay tuned for upcoming research, community events, and more stories that remind us MS doesn’t define us — but it sure makes for a wild ride. Thanks for hanging out with us! ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ✔ Instagram: @4tbelowzero ✔ TikTok: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    49 min

  3. May 27

    A Relaxed Chat with Dorice

    Get ready to dive into the power of authentic connection and mental resilience in this episode . Whether you're living with MS, leading support groups, or just looking for deeper connections, we're unpacking how shared experiences, rhythm, and vulnerability can create meaningful bonds. Join Nick, Terry, and Dorice as they explore the impact of community on emotional healing. From drum circles to heart-to-heart convos, they'll show you how activities like these foster empathy and resilience. You'll discover how your body's vibrations can reduce stress and reset your nervous system - mind blown, right? We'll share practical tips for building stronger support groups, like setting safe spaces and respecting boundaries. Plus, hear candid stories about embracing imperfect support and finding strength in vulnerability. This episode is for caregivers, support group leaders, MS warriors, and anyone craving genuine connections. You'll walk away with new perspectives on community, resilience, and the art of listening. Dorice, our guest, is a rockstar facilitator and supporter in the MS community, known for her innovative approach to healing spaces. Check her out on Instagram @doriceteplay Having honest, open conversations like these reminds us that community isn't just about support—it's about shared humanity, vulnerability, and resilience. Whether you're managing MS or supporting someone who is, this episode offers a perspective grounded in authenticity and the transformative power of connection. ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ ✔ Instagram: @4tbelowzero ✔ TikTok: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    39 min

  4. May 20

    Resilient Creativity and Medical Adaptation in MS: Tyson Kipfer's Journey

    This episode dives into the inspiring story of Tyson Kipfer, a musician navigating life with multiple sclerosis. Tyson shares how he’s adapted his passion for music while coping with the disease, exploring new methods, treatments, and mental resilience that keep him inspired. In this episode: Tyson discusses his transition from traditional instruments to digital and adapted playing methods Insights into alternative and experimental MS treatments like oxygen therapy and hydrogen therapy The psychological impact of diagnosis and how staying creative fuels resilience The importance of community, support, and finding new ways to pursue passions Practical advice for MS management and maintaining independence Resources: Paulo Zamboni – CCSVI and MS Oxygen Therapy for MS – UK MS Centres Hydrogen Therapy & MS Tysabri (Natalizumab) – Official Info Canadian MS Society Neuroplasticity Resources Connect with Tyson Kipfer: Instagram: @tysonkipfer ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or on ✔ Instagram: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    44 min

  5. May 13

    From Marathon to MS: How Running Keeps Brent Mandel’s Disease at Bay

    This episode isn't just about survival—it's about thriving with MS. Brent's story emphasizes that you are not alone, and with the right tools, you can influence your health trajectory positively. If you're searching for inspiration, actionable strategies, or simply a deeper understanding of how lifestyle interacts with MS, this is essential listening. Whether you're new to diagnosis or years into your journey, you'll walk away with a renewed sense of empowerment and a clearer view of how daily choices build resilience against MS's challenges. Tune in to see how community, attitude, and proactive care can redefine what’s possible. Note: Brent Mandel is an MS support group facilitator and marathon enthusiast, known for blending real-world experience with expert guidance, making complex health topics accessible and motivating. ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or on ✔ Instagram: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    54 min

  6. May 6

    Richard and Marc: Beyond MS

    Most people overlook the profound impact of MS beyond the diagnosis—it changes relationships, careers, daily habits, and even how we support each other. Richard and Marc’s story offers a rare look at living with multiple sclerosis while refusing to let it define their lives. From navigating care and stigma to embracing new identities — including bold fashion choices and community activism — this episode reveals how resilience and vulnerability coexist in the journey through MS. You'll discover practical insights on managing healthcare routines, from stacking doctor visits to writing symptom diaries that improve communication with your medical team. Richard’s candid account of his diagnosis, treatment choices, and overcoming social anxiety shines a light on the emotional ripple effects of MS. Marc’s role as a caregiver and their shared strategies for balancing independence with support will inspire anyone feeling overwhelmed by the unpredictability of a chronic condition. We break down the importance of community and advocacy, highlighting campaigns like MS Awareness Month and storytelling that humanizes the statistics. Their innovative approach to raising awareness, including a heartfelt letter to Richard from 2021 and plans for city hall flag raisings, underscores the power of visibility and shared purpose. Supporting MS isn’t just about medicine — it’s about reshaping perceptions, fostering connection, and turning personal struggles into collective strength. This episode isn’t just for those living with MS or their loved ones; it’s vital for anyone who wants to understand the ripple effects of a chronic illness on every corner of life. With humor, honesty, and hope, Richard and Marc show that even in the face of waves and valleys, embracing vulnerability and community can pave a path to a richer, more resilient life. Perfect for caregivers, advocates, or anyone confronting change—this episode offers clarity amid uncertainty and invites you to see MS not just as a challenge, but as an opportunity to redefine strength and support. Resources & Links: FashionableCanes.com — Stylish and functional canes MS Canada — Support, resources, and advocacy Canadian Accessibility Apps — Tools for finding accessible venues Improv for Social Anxiety — Courses to boost confidence and social skills Connect with Richard and Mark: Instagram: @richardandmarc Lets AGO Together: https://luma.com/1ldjjb4f?fbclid=PAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGnHQCXjGGD047QTLES7O8RcRRqXAQWWXd8gPqhvjknh5LhvNAkimSWjCrsN8A_aem_rfCvxWpSTGfbDQCEjxVDKg&utm_content=link_in_bio&utm_id=97760_v0_s00_e0_tv3_a1dennhaw6h0z7&utm_medium=social&utm_source=ig Link.Bio: https://lnk.bio/richardandmarc?utm_source=ig&utm_medium=social&utm_content=link_in_bio&fbclid=PAZXh0bgNhZW0CMTEAc3J0YwZhcHBfaWQMMjU2MjgxMDQwNTU4AAGn-u1sIJApTLpIkTP5PRIpKNNFo26wErkoBDctZ96Aq6hNmQWERvTf12EHAOw_aem_XoHrn23_X3JICM5Ye5rtNA Facebook: https://www.facebook.com/richardandmarc/?ref=NONE_xav_ig_profile_page_web# ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or on ✔ Instagram: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    56 min

  7. Apr 15

    The Encore: Ardra Shephard Unplugged

    In this episode, Ardra Shepard joins us to explore how mobility aids, disability representation, and personal style intertwine. We delve into topics like authentic self-expression, the importance of representation, and practical tips for navigating social events in style, all grounded in real experiences. Key Takeaways: Ardra’s upcoming book, The Tripping Point, is a style manifesto highlighting disability-led fashion movements. Representation matters: seeing mobility aids as empowering tools rather than barriers can influence social perceptions. Navigating social events in style involves clever tips on shoes and accessories that fit personal comfort and aesthetic. The emotional toll of planning, uncertainty, and managing MS is significant, with shared strategies around anxiety and resilience. Adaptive equipment, like sock pullers and dog leashes, can enhance independence and quality of life. The conversation touches on housing accessibility issues, the importance of authentic representation, and building inclusive communities. Ardra’s advocacy emphasizes that style and fashion are powerful forms of self-expression, breaking outdated beauty norms and fostering a sense of pride. Timestamps: 00:00 - Introduction & Ardra Shepard's return after 4 years 02:50 - Ardra’s motivation from guest stories and impact of the podcast 05:25 - The significance of disability representation in media and fashion 09:00 - Ardra’s book The Tripping Point and its focus on style for the chronically chic 12:20 - Challenges in audio recording for disabled authors & representation in voice work 16:45 - Navigating social events, dress codes, and adaptive fashion tips 19:30 - Managing MS: stress, planning, and emotional resilience 23:00 - The importance of community, advocacy, and breaking stereotypes 27:20 - Accessibility issues with housing, doors, and public spaces in Canada & US 32:00 - Exploring meditation, hypnosis, and mental health tools 36:30 - Building visibility and community through events like Disability Pride and Access Fest 40:00 - Practical fashion tips: shoes, socks, and self-expression at galas 45:10 - Stories of adaptive tools for daily independence, including socks pullers & dog leashes 48:00 - Dog training mishaps and safety lessons from Ardra’s experiences 50:00 - The power of authenticity & representation in style and media 54:00 - Closing thoughts and upcoming projects, including Ardra’s new book and speaking engagements Resources & Links: Ardra Shepard’s Book "The Tripping Point" (Pending release, check for updates) Fashion Diss Podcast — Check out Ardra’s earlier show Mind Life Hypnosis — Ardra’s recommended hypnosis resource Disability Pride & Access Fest Toronto Wawa’s Community-Focused Doors The Ability Expo Books about representation and style Ardra Shephard - Book "Philosophy," on Amazon MS Canada Nerva Gut Health App Stella Young TED Talk: "I'm not your inspiration, thank you very much" Connect with Ardra Shephard: Instagram: @ms_trippingonair Twitter: @tripping_onair Podcast (YouTube): @TrippingOnAirPodcast⁩ Website: https://trippingonair.com/ Note: For upcoming events, book signings, and accessibility advocacy, follow Ardra on social platforms and subscribe to her updates. ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or on ✔ Instagram: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    45 min

  8. Apr 8

    From Silence to Sound: How a Podcast Made an MS Warrior’s Voice Louder

    Hold onto your coffee mugs, folks! Today’s episode is a rollercoaster of laughs, tears, and serious insight into life with MS—plus tips for advocacy, mental health, and surviving the medical maze—all served with a side of humor. If you're even a tad curious about MS, podcasting, or just how to turn your own health journey into a voice that matters, you're in the right place. In this episode: Selena’s journey from diagnosis in 2020 to becoming a podcast pioneer in MS awareness The power of sharing stories to fight stigma and invisible illness misconceptions Tips for advocating for yourself in the healthcare system The mental health toll: anxiety, overthinking, and staying sane while navigating MS How small acts of self-care, like a Starbucks run or meditation, keep hope alive The role of research and clinical trials as a lifeline for those with no access to treatment Practical advice for managing MRI fears, tattoos, and labelling in the medical world The importance of a good support system—family, friends, and even AI Timestamps: 00:00 - Introduction to Selena and her MS story 00:20 - Why she started her MS-focused podcast 02:10 - Symptoms she experienced, early warning signs 04:00 - The shock of diagnosis during a global pandemic 06:00 - The invisible illness stigma—how perceptions affect MS warriors 09:00 - Advocacy tips: how to prepare for doctor visits 11:45 - The MS community and advocacy work with Society 13:00 - Moving from diagnosis to activism in just a few years 15:00 - The fear and excitement of sharing your MS journey publicly 17:00 - Mental health struggles—anxiety, overthinking, and mindfulness 20:00 - The battle with healthcare system hurdles and insurance issues 22:00 - Research as a treatment option—trials and trials 26:00 - Managing MRI fears and the metal in your life 29:00 - Self-care tips on bad MS days: walks, coffee, meditation 32:00 - The power of community, family, and support networks 36:00 - The importance of asking for help and setting boundaries 39:00 - Medications, side effects, and the joy of discovery like LDN 44:00 - The role of research, clinical trials, and hope for the future 50:00 - Everyday life hacks: managing pain, fatigue, and mental overload 54:00 - How podcasting becomes a tool for advocacy and connection Resources & Links: MSWired Podcast – Tune in for more stories and tips National MS Society – For advocacy, funding, and support Low Dose Naltrexone (LDN) – Discover the potential Research Trial Opportunities – Your portal to hopeful treatments Robin Nunley - MS Society South Florida – Advocate for change Connect with Selena: Instagram Facebook Spotify Keep the conversation flowing and lift each other up—because every voice counts! Want to see more brave stories, or get tips on dealing with MS? Subscribe, share, and keep spreading the word. Until next time, stay strong, stay witty, and keep that coffee cup full! ✅ Thank you to all of our Warriors and supporters for listening! You can reach us at: ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Info@4tbelowzero.com⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ or on ✔ Instagram: @4tbelowzero 👉 Hope you enjoy the video. If you do, don't forget to like and subscribe 😊 Copyright Disclaimer 👇 Disclaimer- Some contents are used for educational purposes under fair use. Copyright Disclaimer Under Section 107 of the Copyright Act 1976, allowance is made for "fair use" for purposes such as criticism, comment, news reporting, teaching, scholarship, and research. Fair use is a use permitted by copyright statute that might otherwise be infringing. Non-profit, educational, or personal use tips the balance in favor of fair use

    50 min
See All (113)

Ratings & Reviews

5
out of 5
4 Ratings

About

An international podcast about living with Multiple Sclerosis. 2 Guys with MS not MS'ing around. Hosted by Nick and Terry, discussing and attempting to normalize the conversation around life with a chronic and invisible illness.

Information

You Might Also Like