Autistic: Beyond the Label

Dana Colarusso, Ph.D., Mom

Hey, have you made an autistic child smile today? Let's talk about what we are learning as we parent, teach and provide fundamental services to autistic children and youth. If you are reading this, you probably already know about Temple Grandin, one of the world's foremost autism advocates. Check out mr recent two-part interview with Dr. Grandin. Come back for a new interview and book review each month!

  1. Whatever It Takes: Theresa's Story

    2025-12-22

    Whatever It Takes: Theresa's Story

    If your autistic child has meltdowns, displays unusualbehaviours, and scores low on psychometric tests, is it reasonable to hope that he or she can have a bright future? What about success in post- secondary education or a chance at a satisfying career? In thisepisode of Autistic: Beyond the Label, I will explore these questions with Theresa, a dental hygienist from Ontario, Canada who is the mom of two grown boys, the oldest one, Michael, being autistic. What is clear in listening to the story of Theresa and her autistic son, is that where you begin in your autism journey need not determine where you arrive. Even after a healthy start new setbacks can emerge which seem to threatenthe progress that your child is making. However, Theresa shows us that a willingness to ask questions, to seek the right help for both you and your child, and to try, and try again, can make --as it did with her own son -- all the difference. Theresa describes her son’s “blossoming” from a child with tics and odd behaviours who struggled in school and was two years behind his peers in reading, to a thriving university scholar. She also recounts some of the unconventional steps she took to overcome obstacles: For example, her decision to show a psychologist videotapes of her child’s concerning behaviours and her own difficultefforts to manage them.  When new challenges arose in her son’s teen years, she turned to the same technique toensure that the most effective intervention was identified. Theresa opens up about the fears and doubts that haunted her as she struggled to understand and find answers to her son’s condition.  Many parents will relate to the challenge of dealing with conflicting information and advice. She alsoshares what she has learned about the psychological conditions that often go along with autism and how they can be effectively managed. Gradually with each new success, Theresa learned to let go of the low expectations that seemed to accompany an ASD diagnosis, and to recognize and celebrateher son’s growing skills and strengths, leading to his enrolment in university where he is now excelling in his secondyear.  Theresa’s story about raising her autistic son Michael to his full potential is an inspiring reminder that autistickids must have the same access to pathways that the neurotypical world takes for granted. A Note about the diagnosis: In our conversation, the fact that Theresa’s son was alsotested by a pediatric psychologist by way of a play session was incidentally left out. Music composed by and provided with the permission of Peterde Mello. Research: Front Psychiatry. 2022 Feb 28;13:768586. doi:10.3389/fpsyt.2022.768586 Recognizing Psychosis in Autism Spectrum Disorder Michele Ribolsi 1,*, Federico Fiori Nastro 2,3, MartinaPelle 2,3, Caterina Medici 2,3, Silvia Sacchetto 2,3, Giulia Lisi 4, AssiaRiccion     i 5, Martina Siracusano 6,Luigi Mazzone 5, Giorgio Di Lorenzo 2,3,… https://www150.statcan.gc.ca/n1/pub/11f0019m/11f0019m2024004-eng.htm https://universityaffairs.ca/news/neurodiversity-in-canadian-postsecondary-education/ Resources: https://www.ontario.ca/page/identifying-students-special-education-needs Look for psychological and behavioural services in yourlocal area. Here are a few in Ontario: https://www.autismontario.com/programs-services/adults/mental-health-resources https://kinarkautismservices.ca/request-a-free-consultation/utm_source=google&utm_medium=search&utm_campaign=sa_kinark_autismcentretoronto_ 2025&gad_source=1&gad_campaignid=19781378094&gbraid=0AAAAApZpaICJnAuVjXy79ZJ_9oR54ACD_&gclid=Cj0KCQiAjJTKBhCjARIsAIMC44_ 2DUoaF9pXIenvAr_csyG3ziqzW8ezj0GyrKV4Ugjge8Cq1gJEBUcaAuooEALw_wcB https://thefamilyhelpnetwork.ca/services/autism-and-behavioural-services/

    1h 25m
  2. Insights on Occupational Therapy: An Interview with Cathy Vey, OT

    2025-11-07

    Insights on Occupational Therapy: An Interview with Cathy Vey, OT

    Cathy Vey is a Canadian Occupational Therapist registered with the ⁠College of Occupational Therapists of Ontario.⁠ She isa member of the ⁠Ontario Society of Occupational Therapists⁠. Cathy has over 20 years of experience providing occupational therapy services for infants, children, and adolescents with a wide range of needs and abilities. She has also worked with other groups such as Veterans. In this episode of Autistic Beyond the Label, podcast host Dr. Dana Colarusso interviews Cathy Vey about what occupational therapy is and how it can help autistic kids. Cathy Vey shares her knowledge of how occupational therapists tailor the therapy program to the individual child’s specific needs and goals. She explains the difference between top-down and bottom-up strategies, and the dual focus on need-to-do and want-to-do goals. In this conversation, Dr. Dana Colarusso and Cathy Vey explore the different facets of occupational therapy, especially in regard to children with autism, including: *The ways in which occupational therapy can help children participate in daily activities at home, at school, and in the community *the importance of parental involvement *the role of sensory processing and stimming in therapy. The discussion also highlights success stories and the various therapeutic approaches used to support children's development. Cathy Vey can be reached at her website: cathyveyot.com Music composed by and used with the permission of Peter de Mello.

    28 min
  3. 2025-07-03

    Atypical Characters and Their Helper Guides

    In this episode, we will look at changes in how the mediaportray atypical characters and their helper guides in books, films and tvshows. Among some famous neurodivergent characters, like Sheldon Cooper, in BigBang Theory, there is no mention of a diagnosis. Nevertheless, there is anunmistakeable pattern of traits and behaviours consistent with Asperger’s. Thecomedy we find in modern day characterizations of people on the spectrum, orhaving similar sensory issues, (Monk, Geek Girl, Young Sheldon, Sam Gardner) isa far cry from the dark, tragic depictions of atypical characters in classicbooks like Of Mice and Men and Lord of the Flies. We can further trace atransition from dark, to chiaroscuro (a mix of dark and light), to a greaternumber and variety of stories of atypical characters that are more light intone and hopeful in perspective.  Alongthe way, we find that the treatment of helper characters also evolves, from thesolitary figures who cannot overcome their society’s response to neurodivergence,to individuals like Siobhan in The Curious Incident of the Dog in theNighttime, who make all the difference in smoothing the road to maturity forthe atypical Christopher Boone. Please comment if you know other books withatypical characters and whether you would characterize them as having a dark,chiaroscuro, or light perspective -- or none of the above -- and why! This article was written by Dr. Dana Colarusso and cannot be reproduced whole or in part without the author's express written permission. Narrated by Dana Colarusso with guest narrator Beth McBarnett. Music composed by and used with permission of Peter de Mello. Website Cited: Books with Autistic Characters for Kids and Teens on thewebsite andnextcomesL. https://www.andnextcomesl.com/2019/03/autism-fiction-chapter-books.html   Works Cited: Dark Steinbeck, John. Of Mice and Men. Covici Friede Inc., 1937. Golding, William. The Lord of the Flies, Coward-McCann,1955. Darabont, Frank. The Green Mile. Warner Bros. 1999. Chiaroscuro Haddon, Mark. The Curious Incident of the Dog in theNighttime. Doubleday, 2003. Larsson, Stieg. The Girl with the Dragon Tattoo. VintageBooks, 2009. Light Demonia, Lori. Leah’s Voice. Halo Publishing International,2012. Hoang, Helen. The Kiss Quotient. Berkley, 2018. Smale, Holly. Geek Girl. Harper Collins, 2015

    31 min

About

Hey, have you made an autistic child smile today? Let's talk about what we are learning as we parent, teach and provide fundamental services to autistic children and youth. If you are reading this, you probably already know about Temple Grandin, one of the world's foremost autism advocates. Check out mr recent two-part interview with Dr. Grandin. Come back for a new interview and book review each month!