Carpe Seizen'

Young Adults With Epilepsy
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Young Adults With Epilepsy's podcast for young adults with epilepsy by a young adult with epilepsy, to share stories and give advice.

Episodes

  1. 2025-05-13

    Seizen' 1 Shake Out

    In this episode, Jordan (host) and Chels (editor) sit down to celebrate and recap a whole year of Carpe Seizen. They pull up and talk through their favorite clips and some fun behind-the-scenes moments. Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠,Join our weekly peer support groups⁠http://youngadultswithepilepsy.org/⁠Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠Find UsInstagram @youngadultswithepilepsyTikTok @youngadultswithepilepsyX @yawecoastHosted by Jordan Wernerjordan@yawecc.org@jordanwernerrEdited by Chels Scantlandchelseascantland@gmail.com@chelscantland

    1h 8m

  2. 2025-03-25

    New To Epilepsy? Navigating Insurance, Doctors, and Other Advocacy with Erika Fleck

    In this episode, we sit down with Erika, the founder of the Epilepsy Advocacy Network and secret comedian. We discuss her journey with epilepsy as a mom and creating what she so badly needed when she was first diagnosed— the Epilepsy Advocacy Network. Through candid discussion we learn how Erika came to the decision to have brain surgery, how she handled epilepsy and being a mom, and how she came to founding EAN. The Epilepsy Advocacy Network provides those diagnosed with epilepsy many resources, such as: HOBSCOTCH, PACES, Peer support, and even help navigating insurance and finding the right doctor. We hope you enjoy this conversation with Erika! Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    32 min

  3. 2024-12-11

    How Epilepsy Saved my Life with Jessie Mae Lambert

    In this episode, Jessie opens up about her journey from being misdiagnosed with anxiety to finally discovering she had epilepsy—and how an MRI for her seizures revealed something even more shocking: a brain tumor. Jessie shares how persistence, self-advocacy, and support from others helped her navigate this life-changing diagnosis and find the right treatment. Through an honest and inspiring conversation, we explore the intersection of mental health, epilepsy, and the power of community to build resilience. Don’t miss this compelling story about finding strength in the face of medical challenges. Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    31 min

  4. 2024-10-29

    A Mother-Daughter Talk On Growing Up With Epilepsy

    In this episode, we reverse the roles and sit down with podcast host Jordan and her mom, Mary, as a guest host. Jordan shares her journey living with epilepsy, from moving out at 17 to earning a master’s degree at 23. Reflecting on their early experiences, they discuss the uncertainties they faced when symptoms first appeared and the moments of clarity that emerged along the way. They explore what they felt they got “right” during Jordan’s childhood and the resources they wish had been available. Drawing from their experiences with YAWE, they talk about the invaluable support the organization provides and the upcoming projects such as parental support groups and expanded resources.  Brought to you by Young Adults with Epilepsy ⁠http://youngadultswithepilepsy.org/ ⁠ Join our weekly peer support groups ⁠http://youngadultswithepilepsy.org/⁠ Learn more about our monthly workshops ⁠http://youngadultswithepilepsy.org/ ⁠ Find Us Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    37 min

  5. 2024-10-01

    Embracing Epilepsy Through Golf and Art with Kenzie O'Connell

    In this episode, we sit down with Kenzie O'Connell, a golfer and advocate as she shares her journey with epilepsy. We discuss the transformative moment of acceptance, detailing how she shifted from feeling blamed for her seizures to embracing her condition with confidence. Through candid reflections, we delve into the therapeutic power of sharing personal experiences with epilepsy and how this has fostered a sense of community and understanding. Kenzie also highlights how golf has served as a platform for advocacy, reshaping her relationship with her diagnosis and empowering them to inspire others. Join us for a heartfelt discussion celebrating resilience, advocacy, and the transformative power of sport and art.  Brought to you by Young Adults with Epilepsy: http://youngadultswithepilepsy.org/ Join our weekly peer support groups: http://youngadultswithepilepsy.org/ ⁠ Learn more about our monthly workshops: http://youngadultswithepilepsy.org/ ⁠ Find Us: Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    29 min

  6. 2024-09-17

    A Journey of Service, Epilepsy, and Advocacy with Jenna Dalton

    A Journey of Service, Epilepsy, and Advocacy | Carpe Seizen' Join us as Jenna shares her journey with epilepsy, revealing how it has shaped her passion for advocacy and service. Discover how she's turned her challenges into opportunities for helping others, and get motivated by her innovative projects and outreach efforts. Whether you’re living with epilepsy, passionate about service, or simply looking for inspiration, this episode offers a powerful message of resilience, empowerment, and the impact of giving back.  Brought to you by Young Adults with Epilepsy https://www.youngadultswithepilepsy.org Join our weekly peer support groups https://www.youngadultswithepilepsy.org Learn more about our monthly workshops https://www.youngadultswithepilepsy.org Find Us instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    34 min

  7. 2024-08-21

    From Brain Surgery to Novelist with McKenzie Leary

    Join us today as we chat with McKenzie, a student and writer living with epilepsy. She shares her powerful journey of undergoing brain surgery to manage her condition, navigating life through homeschooling, and finding inspiration in solo traveling through Europe. McKenzie is now writing a novel that beautifully explores the challenges and joys of loving someone with epilepsy. Tune in to hear her story of courage, creativity, and the impact she hopes to make through her writing.Follow McKenzie on instagram @kenziebenzeeBrought to you by Young Adults with Epilepsy:https://www.youngadultswithepilepsy.org/Join our weekly peer support groups:https://www.youngadultswithepilepsy.org/peer-support-groupLearn more about our monthly workshops:https://www.youngadultswithepilepsy.org/workshopsFind Us: Instagram @youngadultswithepilepsyTikTok @youngadultswithepilepsyX @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    33 min

  8. 2024-07-16

    Epilepsy, Dating, and Men's Mental Health with Austin Cole

    In this episode, Austin chats with Jordan about living with epilepsy as a man, often an under represented group in our community. They cover topics including mental health, social dynamics, & stigma. Follow McKenzie on instagram @kenziebenzeeBrought to you by Young Adults with Epilepsy:⁠https://www.youngadultswithepilepsy.org/⁠Join our weekly peer support groups:⁠https://www.youngadultswithepilepsy.org/peer-support-group⁠Learn more about our monthly workshops:⁠https://www.youngadultswithepilepsy.org/workshops⁠Find Us:  Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    37 min

  9. 2024-06-09

    Epilepsy, College, and Josh Hutcherson with Abigayle Weitl

    Abigayle and Jordan talk about growing up with epilepsy, how being diagnosed changed Abigayle's life as a young athlete, having a seizure in front of Josh Hutcherson, and YAWE's peer support groups. Follow McKenzie on instagram @kenziebenzeeBrought to you by Young Adults with Epilepsy:⁠https://www.youngadultswithepilepsy.org/⁠Join our weekly peer support groups:⁠https://www.youngadultswithepilepsy.org/peer-support-group⁠Learn more about our monthly workshops:⁠https://www.youngadultswithepilepsy.org/workshops⁠Find Us:  Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    54 min

  10. 2024-05-12

    Raising a Son With Epilepsy and Launching YAWE with Wendy Steel

    Jordan sits down to talk with Wendy Steel, the executive director and founder of Young Adults with Epilepsy Central Coast. They discuss Wendy's inspiration to start YAWE, the impact YAWE has had on young adults with epilepsy, and what she hopes the non-profit can achieve moving forward. Follow McKenzie on instagram @kenziebenzeeBrought to you by Young Adults with Epilepsy:⁠https://www.youngadultswithepilepsy.org/⁠Join our weekly peer support groups:⁠https://www.youngadultswithepilepsy.org/peer-support-group⁠Learn more about our monthly workshops:⁠https://www.youngadultswithepilepsy.org/workshops⁠Find Us:  Instagram @youngadultswithepilepsy TikTok @youngadultswithepilepsy X @yawecoast Hosted by Jordan Werner jordan@yawecc.org @jordanwernerr Edited by Chels Scantland chelseascantland@gmail.com @chelscantland

    29 min
  • 10 Episodes

About

Young Adults With Epilepsy's podcast for young adults with epilepsy by a young adult with epilepsy, to share stories and give advice.

Information

  • Creator
    Young Adults With Epilepsy
  • Years Active
    2K
  • Episodes
    10
  • Rating
    Clean
  • Copyright
    © Young Adults With Epilepsy
  • Show Website
    Carpe Seizen'