Disability Dialogues

CERC Health Equity and Community Wellbeing

From the Canada Excellence Research Chair in Health Equity and Community Wellbeing, Disability Dialogues is a podcast series on important topics in health and wellbeing of our communities. Stay tuned!

  1. 6d ago

    Digitizing Thriving in Community and Care

    In episode 4 of Disability Dialogues Season 2, we open with a few technical difficulties… thankfully not for long, but digital spaces are sometimes pretty inaccessible! That’s the subject of today’s interview with Chris Sivarajan, who talks about what thriving looks like in digital health spaces as a woman living with multiple sclerosis, or MS. As a peer volunteer with MS Canada, Chris has both lived experience of MS and as someone who has done the work of helping her fellow MS community. This episode introduces the topic of a current collaboration between the CERC HECW and MS Canada, lead by Karen Soldatic and Vayshali Patel. P.S. We forgot to add it in, but optic neuritis, the symptom that led to Chris’ eventual diagnosis, is a condition involving the painful inflammation of the optic nerve, which blocks signals from moving between your eye and your brain. It can cause blurry vision, dull colors, and eye pain when you move it. Sorry for leaving it out, but enjoy the episode! Important Links and Resources: CERC HECW website: https://www.torontomu.ca/cerc-health-equity/  Project Information: https://www.torontomu.ca/cerc-health-equity/research-program/projects/women-living-with-ms/  MS Canada: https://mscanada.ca/about-us/about-us  References: Corrigan, Patrick W., Amy C. Watson, and Leah Barr. 2006. “The Self–Stigma of Mental Illness: Implications for Self–Esteem and Self–Efficacy.” Journal of Social and Clinical Psychology 25 (8): 875–84. https://doi.org/10.1521/jscp.2006.25.8.875. Corrigan, Patrick W., and Deepa Rao. 2012. “On the Self-Stigma of Mental Illness: Stages, Disclosure, and Strategies for Change.” Canadian Journal of Psychiatry. Revue Canadienne de Psychiatrie 57 (8): 464–69. https://doi.org/10.1177/070674371205700804. Patricia. 2025. “The Experience of Stigma and Concealment in Multiple Sclerosis.” EMSP, April 2. https://emsp.org/news/the-experience-of-stigma-and-concealment-in-multiple-sclerosis.

  2. Aug 12

    Following Thriving Youth Pathways

    In Season 2 episode 3, Eunice is her own guest! We’re talking about how diverse youth navigate post-secondary pathways, and more specifically, Eunice discusses her own pathway through learning about her own mental health and disability status, and her successes and adversities after high school. Finally, we discuss the co-designed Tracking Pathways project, and the value of youth-led, intersectional research. Trigger warning for discussions of mental health and eating disorders from 8:00 – 10:30. Important Links and Resources: CERC HECW website: https://www.torontomu.ca/cerc-health-equity/  Project Information: https://www.torontomu.ca/cerc-health-equity/research-program/projects/tracking-pathways-through-education-and-employment/  References: Crenshaw, Kimberle. 1989. “Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics.” University of Chicago Legal Forum 1989 (1). http://chicagounbound.uchicago.edu/uclf/vol1989/iss1/8?utm_source=chicagounbound.uchicago.edu%2Fuclf%2Fvol1989%2Fiss1%2F8&utm_medium=PDF&utm_campaign=PDFCoverPages. Navarro, J., F. Johnstone, J. Temple Newhook, et al. 2021. Health and Well-Being among Trans and Non-Binary Youth. https://transpulsecanada.ca/results/report-health-and-well-being-among-trans-and-non-binary-youth/. Statistics Canada. 2021. Educational Experiences of Young Women with Disabilities. https://doi.org/10.25318/36280001202101000003-ENG. University of Toronto Scarborough. 2023. National Dialogues and Action for Inclusive Higher Education and Communities. University of Toronto Scarborough. https://www.utsc.utoronto.ca/nationaldialogues/sites/utsc.utoronto.ca.nationaldialogues/files/docs/2022-NationalDialoguesReport_EN.pdf.

  3. Jul 15

    Rethinking Thriving in Primary Care

    Welcome back to Season 2 of Disability Dialogues with the Canada Excellence Research Chair in Health Equity and Community Wellbeing! In our first episode, we’ll be featuring a conversation with Shelley Petit, the chair of the New Brunswick Coalition of Persons with Disabilities (NBCPD), about her personal experience of invisible disability and navigating Canada’s healthcare system. This episode will also highlight some of the key findings from our 2026 survey on the primary healthcare experiences of women and gender-diverse persons with  disabilities throughout Canada, conducted in partnership with DAWN Canada, and Atlas Institute of Veterans and Families. Important Links and Resources: CERC HECW website: https://www.torontomu.ca/cerc-health-equity/  NBCPD website: https://www.nbcpd.org/ DAWN Canada website: https://dawncanada.net/ More Than A Footnote: Canada Human Rights and Treaty Obligations: https://dawncanada.net/resource/more-than-a-footnote-canada-human-rights-and-treaty-obligations/  Atlas Institute for Veterans and Families website: https://atlasveterans.ca/ Blog post: Connie Uetz, Peer Researcher at Atlas and CAF veteran (on injury and moving forward): https://atlasveterans.ca/perspectives/the-long-road-forward-navigating-trauma-and-finding-meaning/  Digital stories: Daphne, RCMP veteran (dual-service couple story and release due to post-shingles Ramsay Hunt and her own recovery after release): https://youtu.be/GHxYdgOxVLk?si=Lu2DteiOTcoc0smH  Fact sheet on women veterans and chronic pain: https://atlasveterans.ca/documents/fact-sheet-chronic-pain-en.pdf  References: Evans, B., Allam, A., Bê, A., Hale, C., Rose, M., & Ruddock, A. (2024). Being left behind beyond recovery: ‘crip time’ and chronic illness in neoliberal academia. Social & Cultural Geography, 1–21. https://doi-org.ezproxy.lib.torontomu.ca/10.1080/14649365.2024.2410262

  4. 2025-10-01

    Rethinking Crisis Response: Building Community-Led Alternatives in Ontario

    Ontario’s crisis response system often relies on police as the first point of contact for people experiencing mental health or substance-related distress. This approach can criminalize individuals instead of addressing the deeper issues—such as poverty, housing insecurity, and discrimination—that shape many crises. Community-led crisis models offer a different path. By centering lived experience, equity, and trauma-informed care, these services provide health and social responses rather than defaulting to law enforcement. With mobile teams, crisis lines, short-term housing supports, and partnerships across sectors, these models create low-barrier, accessible ways for people to seek help. In this episode of Disability Dialogues, Researcher, Criminology Professor and affiliate fellow Jessica Evans is joined by the Executive Director of the Gerstein Crisis Centre, Susan Davis, to discuss the limitations of current crisis response systems in Ontario. Which often involve police and criminalize individuals experiencing mental health or substance use crises. Jessica, and Susan, advocate for community-led crisis responses that are built on equity, dignity, and anti-oppressive principles.  The conversation underscores the importance of individualized care, addressing social determinants of health, and the need for more accessible and non-coercive mental health services. At the heart of this approach is dignity, choice, and autonomy—meeting people where they are and recognizing that mental health care is not just medical, but deeply tied to social conditions. Investing in these alternatives has the potential to transform crisis response into something that truly supports wellbeing. Here are three reasons why you should listen to this episode: Explore ways to increase funding and resources for community-based, non-coercive mental health crisis response services. Advocate for a greater focus on upstream solutions, such as improving access to housing, income support, and mental health care, to prevent the need for crisis intervention. Discover the information about the Gerstein Crisis Centre,'s services and how to access them, including the crisis line for yourself or someone you know in need. Resources Explore the CERC in Health Equity and Community Wellbeing’s ⁠Website⁠ Jessica Evans and Susan Davis: Website Dr. Karen Soldatic: ⁠LinkedIn⁠ | ⁠CERC Profile⁠ Toronto Metropolitan University: ⁠Website⁠ SSHRC – Social Sciences and Humanities Research Council: ⁠Website⁠  CIHR – Canadian Institutes of Health Research: ⁠Website⁠  NSERC – Natural Sciences and Engineering Research Council of Canada: ⁠Website Enjoyed this Episode? If you did, be sure to subscribe and share it with your friends! Disability Dialogues is a podcast that explores bold ideas, community-led research, and inclusive practices shaping the future of healthcare and wellbeing. Post a review and share it! If you enjoyed this episode, please leave us a review. Share it with friends and colleagues. Let’s inspire more people to co-create change. Find out more about the Canada Excellence Research Chair in Health Equity and Community Wellbeing at https://www.torontomu.ca/cerc-health-equity/ Thank you for tuning in!

  5. 2025-09-24

    Bridging the Gap: How Community-Driven AI Can Transform Online Safety for Disabled Individuals

    AI moderation often fails marginalized groups, especially disabled women and girls, because existing datasets ignore their lived experiences, leading to missed abuse, over-censorship, and reinforced bias. Researchers advocate for co-created, intersectional datasets and contextual AI that understands nuance, intent, and transparent explainable systems to build trust. Addressing data scarcity, bias, and accessibility requires community-driven design, continuous feedback, and survivor-centered policies that prioritize safety, accountability, and wellbeing. In this episode of "Disability Dialogues," Dr. Karen Soldatic and Researcher Glaucia Melo discuss how contextual AI can help detect and prevent technology-facilitated violence against disabled women and girls. They explore a research project that develops AI models using data based on lived experiences to reduce bias and better recognize nuanced online abuse. The conversation highlights the importance of community-driven, inclusive AI, challenges in data collection, and the need for stronger policies and digital literacy to ensure safer, more equitable online spaces for marginalized groups. This episode offers a compelling vision for the future of online safety—one where contextual AI, co-created with marginalized communities, can detect and prevent technology-facilitated violence in all its forms. By centering lived experience, embracing nuance, and demanding accountability, we can build digital environments that are not only safer but also more just and inclusive. Definitions:  AI: The development of machine-based systems that can perform tasks typically requiring human intelligence, such as learning, reasoning, problem-solving, and decision-making, often with a degree of autonomy. Ethical AI: Artificial intelligence that adheres to well-defined ethical guidelines regarding fundamental values, including such things as individual rights, privacy, non-discrimination, and non-manipulation. Data sets: A collection of related sets of information that is composed of separate elements but can be manipulated as a unit by a computer. Technology-facilitated violence: behaviours where technology is used to cause virtual and/or in-person harm. Metadata: Dr. Karen Soldatic sits down with researcher Glaucia Melo to discuss technology-facilitated violence against disabled women and girls, and the efforts underway to address and combat this issue. Here are three reasons why you should listen to this episode: Learn about the role of contextual AI in understanding the nuances of online communication. Understand the importance of datasets based on lived experiences to avoid biases in AI. Discover the use of emerging technologies, particularly contextual artificial intelligence (AI), to detect and prevent online abuse. Resources Explore the CERC in Health Equity and Community Wellbeing’s ⁠Website⁠ Glaucia Melo Website Dr. Karen Soldatic: ⁠LinkedIn⁠ | ⁠CERC Profile⁠ Toronto Metropolitan University: ⁠Website⁠ SSHRC – Social Sciences and Humanities Research Council: ⁠Website⁠  CIHR – Canadian Institutes of Health Research: ⁠Website⁠  NSERC – Natural Sciences and Engineering Research Council of Canada: ⁠Website Enjoyed this Episode?If you did, be sure to subscribe and share it with your friends! Disability Dialogues is a podcast that explores bold ideas, community-led research, and inclusive practices shaping the future of healthcare and wellbeing. Post a review and share it! If you enjoyed this episode, please leave us a review. Share it with friends and colleagues. Let’s inspire more people to co-create change. Find out more about the Canada Excellence Research Chair in Health Equity and Community Wellbeing at https://www.torontomu.ca/cerc-health-equity/ Thank you for tuning in!

  6. 2025-09-17

    Tracking Pathways: Youth Shaping Healthcare Solutions

    The voices of Youth lend an important addition to community research, in every stage from design to dissemination. Centering co-design, training, accessibility, and lived experience ensures marginalized voices are included and systemic barriers are addressed. This approach builds confidence and trust while creating tangible impacts on policy, practice, and community wellbeing. In this episode of Disability Dialogues, Dr. Karan Soldatic introduces the Tracking Pathways project, which partners with marginalized youth to co-design inclusive healthcare research. Senior Research Associate Dr. Mikyung Lee interviews Nastacia Crowe-Missens, a nursing student and youth leader, who shares their experience shaping the project through lived expertise, collaborative survey design, and specialized training. Nat highlights the importance of centering youth voices and addressing root causes of health inequities. The episode demonstrates how genuine youth engagement makes research more relevant, accessible, and impactful for communities facing systemic barriers. The Tracking Pathways project, as highlighted in this episode of Disability Dialogues, sets a new standard for inclusive, community-driven research. By centering youth—especially those from marginalized backgrounds—as co-designers and leaders, the project not only produces more relevant and impactful findings but also empowers the next generation of change-makers.For researchers, practitioners, and community leaders, the message is clear: meaningful youth engagement and co-design are not just ethical imperatives—they are essential for creating research that truly addresses the needs and aspirations of diverse communities. Here are three reasons why you should listen to this episode: Learn about the experiences of a youth leader involved in the project and their journey into research. Understand the co-design approach in research, emphasizing collaboration between youth and researchers. Explore the role youth voices have in shaping research questions and ensuring relevance. Resources Explore the CERC in Health Equity and Community Wellbeing’s ⁠Website⁠Doctor Mikyung Lee and Nastacia Crowe-Missens: WebsiteDr. Karen Soldatic: ⁠LinkedIn⁠ | ⁠CERC Profile⁠Toronto Metropolitan University: ⁠Website⁠SSHRC – Social Sciences and Humanities Research Council: ⁠Website⁠ CIHR – Canadian Institutes of Health Research: ⁠Website⁠ NSERC – Natural Sciences and Engineering Research Council of Canada: ⁠Website Enjoyed this Episode? If you did, be sure to subscribe and share it with your friends! Disability Dialogues is a podcast that explores bold ideas, community-led research, and inclusive practices shaping the future of healthcare and wellbeing. Post a review and share it! If you enjoyed this episode, please leave us a review. Share it with friends and colleagues. Let’s inspire more people to co-create change. Find out more about the Canada Excellence Research Chair in Health Equity and Community Wellbeing at https://www.torontomu.ca/cerc-health-equity/ Thank you for tuning in!

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From the Canada Excellence Research Chair in Health Equity and Community Wellbeing, Disability Dialogues is a podcast series on important topics in health and wellbeing of our communities. Stay tuned!

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