Discomfort Zone

Jason Herterich

Discomfort Zone is a podcast about living with chronic illness and disability. Through interviews, conversations, and stories, each episode uncovers what it means to be chronically ill and disabled. Jason helps listeners understand that the best way to cope with the discomfort of illness is to turn towards it and laugh at it. Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis (ME/CFS), and postural orthostatic tachycardia syndrome (POTS).

  1. 8 - Caring in a Crisis Pt 3 - A Rare Disease Family: Keith McArthur

    2020-08-08

    8 - Caring in a Crisis Pt 3 - A Rare Disease Family: Keith McArthur

    Keith’s son Bryson is a charming and outgoing 13-year old who loves his family, friends, and school. But he faces tremendous challenges. He lives with a rare genetic disease that has his brain locked at the developmental level of a 1-year old. The closure of schools has been especially hard on Bryson as he no longer has access to many of the tools he uses for therapy. Keith, host of the CBC Podcast ‘Unlocking Bryson’s Brain’, talks about life as a rare disease dad, the impact COVID has had on his family, and his search for a cure to Bryson’s brain disease.About Keith Keith McArthur is an author, speaker, kidney transplant survivor, and rare disease dad. He is the host of the CBC Podcast Unlocking Bryson’s Brain, an 8-part documentary-style podcast about his son Bryson, his rare disease, and his family’s search for a cure. Keith is also the CEO and Head of Science for CureGRIN, an organization dedicated to finding cures and therapies for people around the world suffering from GRIN disorders.A full transcript with photos is available in the show notesLinks Listen to Unlocking Bryson’s Brain on CBC Listen, Apple Podcasts, Google Podcasts, or wherever you listen.To help support research into GRIN disorders, you can donate to: CureGRIN or U of T’s GRIN Disorders Research FundFollow Keith on TwitterFollow CureGRIN on Facebook, Instagram, and TwitterFollow Discomfort Zone on Facebook, Instagram, and Twitter Credits Written, Hosted, Produced, and Sound Designed by: Jason HerterichVideo Editor: Raihan HussainAssociate Producer: Rahima MullaAudio Engineer: Justin Maradin

    27 min
  2. 7 - Caring in a Crisis Pt 2 - Firefighter Without a Hose: Lindsay Couture

    2020-08-04

    7 - Caring in a Crisis Pt 2 - Firefighter Without a Hose: Lindsay Couture

    Lindsay is no stranger to adversity. While most 11-year olds were out playing with their friends, she was at home caring for her mom. Now a front-line healthcare worker in the midst of a pandemic, she is faced with unprecedented challenges. Lindsay shares her insights on how the government could ensure the safety of personal support workers and their clients. About Lindsay Lindsay Couture has been a live-in caregiver for her mom since a young age. Supporting her through respiratory issues and 2 double lung transplants. It was while caring for her mom she realized that caregiving was her passion. Lindsay went to school to become a PSW in 2016 and graduated with honors. Since then Lindsay has worked in both the long-term care sector and in the community helping support our most vulnerable. Lindsay got away from corporate work after experiencing burnout and has now taken a different approach in the PSW profession. While no longer working in the corporate world, Lindsay has opened her own homecare company, Oakwood Home Healthcare. Being a PSW herself Lindsay knows the struggles and hardships PSWs go through in their profession. Between working the front-line, and managing a team of compassionate PSWs by herself, Lindsay makes time to advocate for change in the PSW profession.A full transcript with photos is available in the show notes LinksOakwood Home HealthcareFollow Oakwood Home Healthcare on Facebook and InstagramFollow Discomfort Zone on Facebook, Instagram, and TwitterCreditsWritten, Hosted, Produced, and Sound Designed by: Jason HerterichVideo Editor: Raihan HussainAssociate Producer: Rahima MullaAudio Engineer: Justin Maradin

    23 min
  3. 2020-07-24

    We Are Visible: Karina Sturm

    Award-winning filmmaker and journalist Karina Sturm joins the show to talk about Ehlers-Danlos Syndrome, a rare connective tissue disorder she lives with. She opens up about the medical gaslighting she experienced during her long path to diagnosis and how she transitioned from laboratory technician to chronically ill patient to journalist and filmmaker. Karina then talks about her feature-length film, We Are Visible, the challenges she faced while making it, and the false ‘fabricated or induced illness’ (FII) allegations many of her interview subjects experienced.' We Are Visible' highlights the challenges people living with invisible illnesses face every day, specifically in the context of Ehlers-Danlos Syndrome. The film features seven stories including people of all ages (5 - 60 years old), from six different countries with diverse backgrounds, different financial standing who are all differently affected by this invisible condition. They will share their challenges, fights, and fears, but also their achievements, hopes, and triumphs. A full transcript with photos is available in the show notes Karina Sturm Journalistic Website We Are Visible Website German Blog We Are Visible Trailer 2 Follow Karina on Facebook, Instagram, and Twitter Discomfort Zone Podcast Follow Discomfort Zone Podcast on Facebook, Instagram, and Twitter Produced by: Jason Herterich Audio Engineering by: Justin Maradin Editing help provided by: Melanie McPhail

    18 min
5
out of 5
29 Ratings

About

Discomfort Zone is a podcast about living with chronic illness and disability. Through interviews, conversations, and stories, each episode uncovers what it means to be chronically ill and disabled. Jason helps listeners understand that the best way to cope with the discomfort of illness is to turn towards it and laugh at it. Jason is an engineering graduate who reinvented himself as a podcaster and chronic illness/disability advocate after developing fibromyalgia, myalgic encephalomyelitis (ME/CFS), and postural orthostatic tachycardia syndrome (POTS).